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Wont eat

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gewatts said:
I musy say I too agree with Adrienne. Katie was dxd in July 2006 (aged 2). She was put on 2 injections a day too. For 3 1/2 years she had terrible control - bloods were up and down all the time. It was Adrienne who convinced me to get her moved onto MDI and I thank God that she did. At first Katie moved to 3 injections a day so that the school didn't need to be involved. But it wasn't long before I pushed for 4 injections a day cos I could see what an improvement 3 a day had made. Katie moved to 4 a day at Easter and her bloods are loads better (not spot on but compared to what she was like before , they are great). I was really scared of carb counting but it really is fine once you get used to it and it means that Katie can eat what she wants and how much she wants.
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Our situation is almost the same as gewatts'. C started on 2, then on 3, now she's on 4. What a difference!! Her bloods are much better now, we hardly ever have to give her extra insulin to bring her down. It was the docs decision to change it that way. And on the last 2 clinic visits the doc even suggested she'd go on a pump(she doesn't want to though)

But as others have already said, don't feel you have to change from 2 just because we say it's better. As long you can manage on it stay on it. But I am surprised that the DSN said that this one is the best, because our Diabetes Team doesn't think so. Maybe she meant the 2 injections a day is the best for him at this moment in time. In our area all the children seem to start on that. Some of the ones I know are still on 2 after quite a few years and some are on pumps, but most are on MDI.
 
am64 said:
still hot here northe ....Mrs Bolye as northe says you must work out whats best for your situation ...and over the next period of time Im sure you will find out lots about the differing way diabetes is treated ...Adrienne because of her situation has alot of experience with dealing with some of the top diabetes teams in the country and so is always worth a listen to even if it just brings up the questions you can ask your team about xxx🙂
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Hiya

Yes sorry, I don't want to alarm you or anything and it is great to have faith in your team but and this is a big but, just because a team is made up of professional people that they are always right. We live between two hospitals and both paediatric diabetes teams are completely rubbish in all their care, from the DSN's to the consultants and loads of families are just beginning to feel the same and are moving their care to other out of area hospitals.

Don't ever be afraid to question your team and make them give you answers. Ask why your DSN says two injections a day are the best (I would be interested to hear that one actually) and if you agree with there, no problem but always question their every move. They should discuss every single aspect of regime and care with you rather than just tell you things. They should be able to back up their care with vast, up to date knowledge. You need the best for your child, as we all do so question them always. They are not always right and not always up to date.

It is your choice what regime your son goes on to and totally up to you, we can support you and each other in any way you want and need. We can help you with twice daily injections and we can help you with info about why it is not the best and other regimes.

Just ask questions of us and someone will know the answer.

Hope that helps.

PS Thanks for your kind words everyone. x
 
Hya Adrienne

You have a tons of information and knowledge and we are all very greatful for your help and you are there when we need you. Hows things in York? xx
 
Gemma444 said:
Hya Adrienne

You have a tons of information and knowledge and we are all very greatful for your help and you are there when we need you. Hows things in York? xx
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Hi

Lovely up here. Was baking hot Monday but a lot cooler since. I love York and will come back for a proper holiday and wander without the school at some point.

I met Becky (sacred heart) from this support group this morning. She came to the hostel to say hi so that was really really lovely (thanks Becky).

I do miss my computer and this is costing me a fortune ?1 per 20 minutes, not good !!!
 
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