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Woe is me... whinge moan

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This thread is now closed. Please contact Anna DUK, Ieva DUK or everydayupsanddowns if you would like it re-opened.
Rosie, I'm so sorry your treatment has been so appalling. Sending you huge virtual hugs! You definitely have every right to rant away, and be angry, I do that quite often myself too!
I wanted to tell you that my 'diabetes journey' has been very similar to yours. I too was diagnosed with type 2 at age 24, regardless of the fact that I wasn't overweight and my dad is T1.
I managed to control it for a while wth diet, (I lost 20kg in 3 months, and I was just congratulated on my fantastic control o_O) over time, I was started on metformin, then gliclazide and then stitagliptin, all the will being criticised for my increasing HbA1cs... Finally last year (6 years after initial diagnosis) I was sent to the DSN who started me on basal bolus and gave me the diagnosis for LADA, or late onset type 1, whichever you want to call it. I had a GAD antibody test, which was negative, according to the practice nurse that meant I was definitely type 2, which of course isn't the case. The consultant has confirmed type 1, and changed my records to reflect this.
You can ask to see a different DSN, if you feel that your one isn't working for you.
I've been lucky enough to see a diabetic psychologist, as these years of incorrect diagnosis and feeling (and being subtly told) I was failing, have left a huge impression on my life, and se has written to my practice nurse to gently tell her she may need some updates training - I may need to change doctor's surgery now!
I don't know if this post has been helpful at all to you! But I wanted you to know you are not alone. Stand your ground, and demand your treatment!
More hugs xxx
 
It seems to me just crazy that a grown up should not be given the necessary insulin to manage her condition effectively. Particularly a grown up who needs to work and therefore eat, and therefore who cannot live on basal alone. I agree, copy and paste your rant and send it to everyone who has ever been involved in your care. Good luck and keep on their case. I would also consider going to your MP about your care, which has been just appalling.
 
I am so sorry to hear what you are having to go through, especially at such a young age. I hope it all gets sorted out for you soon.
 
Rosie {{{{{{HUG}}}}}}
It's not right nor is it fair to you the way you're being treated.
 
I find that throwing a tantrum with doctors is quite effective🙂

Im sure ive got 'patient from hell' on my notes in several places - I'm not - i'm just a patient who is determined to get the right/best treatment.

So get ranting/foot stamping. We're all standing shoulder to shoulder with you.
 
Rosie, the fact of the matter is that your HbA1cs are way, way too high, and so your current medication is doing nothing to help. Why not? Because you are on the wrong treatment. That should be obvious to your care team, but you won't get better fiddling with the timing of the basal dose, you need to be on multi dose insulin, and forget these useless tablets. And get rid of that type 2 label, because you aren't.

You need to be seen by a consultant. You cannot hope to be treated appropriately otherwise. Go to your GP and insist on a referral. Take your rant with you. and do it soon, before those HbA1cs have a chance to really mess you up.
 
It's like deja vu but the message still stands and I hope you get it sorted soon Rosie. I cannot fathom the logic of the hcp's at your surgery. :confused:
 
Thanks to everyone that replied. I don't normally moan so much but sometimes I think it's justified!

I AM being seen by the hospital team. I saw the consultant two weeks ago who said he's sure I'm LADA. Im seeing him again end of August. The hospital diabetes nurse is ringing me every two days to adjust my basal insulin. So far she's kind of against bolus. She keeps saying it's an option but she wants my basal to be correct first. I did point out that when I go on bolus my basal will probably decrease anyway (after advice on here!) but I think she chose to ignore that.

I have been working long hours throughout all of this. I only took time off two weeks ago to go to A&E twice then obviously when I was admitted for two nights I rang in sick. I was back the day after I was discharged though.

I'm just struggling right now to stay positive and the upbeat Rosie I've always been!
 
Mini-Vicki said:
Rosie, I'm so sorry your treatment has been so appalling. Sending you huge virtual hugs! You definitely have every right to rant away, and be angry, I do that quite often myself too!
I wanted to tell you that my 'diabetes journey' has been very similar to yours. I too was diagnosed with type 2 at age 24, regardless of the fact that I wasn't overweight and my dad is T1.
I managed to control it for a while wth diet, (I lost 20kg in 3 months, and I was just congratulated on my fantastic control o_O) over time, I was started on metformin, then gliclazide and then stitagliptin, all the will being criticised for my increasing HbA1cs... Finally last year (6 years after initial diagnosis) I was sent to the DSN who started me on basal bolus and gave me the diagnosis for LADA, or late onset type 1, whichever you want to call it. I had a GAD antibody test, which was negative, according to the practice nurse that meant I was definitely type 2, which of course isn't the case. The consultant has confirmed type 1, and changed my records to reflect this.
You can ask to see a different DSN, if you feel that your one isn't working for you.
I've been lucky enough to see a diabetic psychologist, as these years of incorrect diagnosis and feeling (and being subtly told) I was failing, have left a huge impression on my life, and se has written to my practice nurse to gently tell her she may need some updates training - I may need to change doctor's surgery now!
I don't know if this post has been helpful at all to you! But I wanted you to know you are not alone. Stand your ground, and demand your treatment!
More hugs xxx
Click to expand...

Thank you, reading this has really helped! I know I'm not alone but sometimes it's nice to be told it again. I'm changing doctors when I get the chance, too. My GAD is negative so my GP is convinced T2 and there's no swaying him. I'm glad you got the treatment you need, I hope I do soon too!!
 
Rosie let me know if you want me to buy you a coffee.
 
Rosiecarmel said:
Thank you, reading this has really helped! I know I'm not alone but sometimes it's nice to be told it again. I'm changing doctors when I get the chance, too. My GAD is negative so my GP is convinced T2 and there's no swaying him. I'm glad you got the treatment you need, I hope I do soon too!!
Click to expand...

I'm glad it helped 🙂
I'm glad I eventually got the treatment I need too, but it took 6 long years, and I do worry about the long term effects the lack of a correct diagnosis has had on my long term health. So, definitely keep standing up for yourself, and rant at your healthcare team until you get the care you need and deserve.
Keep us posted xx
 
Hi Rosie, a moan is very valid with the poor support that you have had. Just keep plugging away and get the Bolus Basal regime for TYPE 1 or equivalent in place as soon as you can.

Reading a link to a flow chart for Gps that was posted on here in another thread, it amazes me that I ever got my correct diagnosis at the ripe old age of 53. Perhaps my GP is not so bad.

Just keep going and I am sure that you will get the levels you want soon
 
Rosiecarmel said:
she wants my basal to be correct first.
Click to expand...
And how does she expect to get your basal correct when you are not fasting 24/7? That is absolute BS. If you are inputting carbs (cos you need to eat!) then your numbers will go up and its not your basals job to get them down, its your bolus's job. (I know, teaching your grandmother to suck eggs and all that, you know this.) You need to do fasting tests for 6-8 hours a day to set basals and eat with boluses the rest of the time. Where was this woman trained? The 19th century?
Sorry, I'm just getting furious for you. 😡
 
If Rosie WERE T2 then basal first and then add bolus is how they do it. But why the F (sorry It's how I feel about it) this woman is treating her as T2 - when her bloody boss has already decided and said that she's LADA - is a complete mystery.

She could have been LADA - but by now her previously spluttering pancreas has clearly spluttered its last splut - according to her BGs.

So - there's only ONE treatment possible.

But Mrs DSN (she really has a degree? did she buy it?) refuses to acknowledge it - it must be something in the air where Rosie lives, that makes all medics practically - totally useless.
 
Rosiecarmel I'm so sorry that you've been put through so much and really feel for you. I hope that you can persuade the DSN to start letting you bolus. Big hugs xx
 
trophywench said:
But Mrs DSN (she really has a degree? did she buy it?) refuses to acknowledge it - it must be something in the air where Rosie lives, that makes all medics practically - totally useless.
Click to expand...
In this case the DSN stands for dumb silly nurse.
 
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You need a new GP Rosie. If I had a fiver for every patient now classed as type 1 who had a negative GAD test (including me) I would be writing this from my yacht in the Mediterranean.
 
Status
This thread is now closed. Please contact Anna DUK, Ieva DUK or everydayupsanddowns if you would like it re-opened.
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