• Please Remember: Members are only permitted to share their own experiences. Members are not qualified to give medical advice. Additionally, everyone manages their health differently. Please be respectful of other people's opinions about their own diabetes management.
  • We seem to be having technical difficulties with new user accounts. If you are trying to register please check your Spam or Junk folder for your confirmation email. If you still haven't received a confirmation email, please reach out to our support inbox: support.forum@diabetes.org.uk

Who signs off a Libre?

Status
This thread is now closed. Please contact Anna DUK, Ieva DUK or everydayupsanddowns if you would like it re-opened.

dannybgoode

Well-Known Member
Relationship to Diabetes
Type 2
So, now I have my 'formal' diagnosis and am, for the purposes of being fitted in a box, going to be classed as a Type 2 treated cos MDI insulin who do I lobby for a Libre - my GP or the DSNs at the hospital.

The DSNs said ultimately it was the GPs call so am I best just to start there when I see mine in a couple of weeks or?

Keen to get going on one as it'll help particularly when working on figuring out how exercise affects things...
 
Last edited:
It was my hospital DSN who wrote to my GP asking them to add the Libre to my repeat prescription. The hospital DSNs seem to have quite a say in my area. After my last appointment before Christmas she is writing to the GP to get the prescription changed to the new Libre 2+ (which replaces the Libre 2 later this year).

Could you call your DSN and ask them? It might carry more weight than asking your GP - here our GP Health Centre defer all insulin treated diabetics to the hospital and follow their advice.
 
It was my hospital DSN who wrote to my GP asking them to add the Libre to my repeat prescription. The hospital DSNs seem to have quite a say in my area. After my last appointment before Christmas she is writing to the GP to get the prescription changed to the new Libre 2+ (which replaces the Libre 2 later this year).

Could you call your DSN and ask rather than waiting for your next appointment?
I'm seeing my GP on 15 Jan and then my DS consultant on 16 Jan so I may just ask the GP and if he says he needs it from the diabetes centre I'll ask the consultant.

Got the trial one to stick in the will see me though until then...
 
Either can do it. The hospital can write to GP telling them to prescribe or the GP can prescribe themselves. I’d consider using the sample one for the two weeks before next appointment then you can show them how helpful it’s been.

As a type 2 you’ll need to be testing 8+ times a day to be eligible so have your explanation of that ready. Before and after meals, before during after running, before and during driving, before bed etc.
 
As a type 2 you’ll need to be testing 8+ times a day to be eligible so have your explanation of that ready. Before and after meals, before during after running,
Thanks Lucy - yes I have already been thinking about that. I want to use my trial one for that very reason also, so I can demonstrate how helpful it is when I am exercising - which of course is something they should be encouraging :D
 
Thanks Lucy - yes I have already been thinking about that. I want to use my trial one for that very reason also, so I can demonstrate how helpful it is when I am exercising - which of course is something they should be encouraging :D
Good luck - key point to raise if any issues is you’re having to test 8+ times a day to learn to exercise again so a libre would be more cost effective and safer
 
Either can do it. The hospital can write to GP telling them to prescribe or the GP can prescribe themselves. I’d consider using the sample one for the two weeks before next appointment then you can show them how helpful it’s been.

As a type 2 you’ll need to be testing 8+ times a day to be eligible so have your explanation of that ready. Before and after meals, before during after running, before and during driving, before bed etc.
According to my DSNs they can write to the GP and request they prescribe but the actually decision whether or not to do so is down to the GP themselves. They said some do, some don't so I may as well start with the GP and work from there is they say no...
 
According to my DSNs they can write to the GP and request they prescribe but the actually decision whether or not to do so is down to the GP themselves. They said some do, some don't so I may as well start with the GP and work from there is they say no...
My GP seems to see the hospital diabetes team as like the diabetes gods and just does what they say! I’d ask GP first as will be quicker if they do it, saves waiting for the letter then ask the hospital. You could alternatively submit an econsult to the GP to request it if doing it in writing is easier. If you don’t ask you don’t get though so just ask everyone till it’s sorted :rofl:
 
Hi @dannybgoode
I would say hopefully it might not necessarily be a lobbying process
hopefully it’s not (if you feel you would benefit from CGM which I think you are saying)
there is a criteria you will need to meet, it’s not just a case of if your on insulin funding will be available

my questions from a fellow T2 (also on amongst other meds insulin)
having successfully proved I met the criteria then was successful in obtaining CGM on prescription

How many times per day are you currently injecting insulin ?
are you currently/ were you previously FP testing with a BGM I’m assuming you are / were
how many times per day were you FP testing on your BGM
how many different meds are you on ?
are you currently good control (I’m guessing not so good hence Insulin is needed despite them thinking your T2)

I’m happy to share my experience
 
  • Like
Reactions: Moi
I was diagnosed type3 nearly 4 years ago. I went in hospital with DKA. I was given my Libra 2 by my DSN about a month after diagnosis. It is better than the finger prick. Only problem I've had 2 faulty Libra 2, which where replaced 2 days later by the company . Othere than that I'm put Happy with it.
 
My GP seems to see the hospital diabetes team as like the diabetes gods and just does what they say! I’d ask GP first as will be quicker if they do it, saves waiting for the letter then ask the hospital. You could alternatively submit an econsult to the GP to request it if doing it in writing is easier. If you don’t ask you don’t get though so just ask everyone till it’s sorted :rofl:
I think my GPs would just prescribe if the DSNs asked however they are pretty good in general so happy to ask and make my case. I am already a hugely expensive patient what with my stoma etc so as a % of my cost to them already, Libre isn't a huge dent :D
How many times per day are you currently injecting insulin ?
are you currently/ were you previously FP testing with a BGM I’m assuming you are / were
how many times per day were you FP testing on your BGM
how many different meds are you on ?
are you currently good control (I’m guessing not so good hence Insulin is needed despite them thinking your T2)
Thanks GB - I am newly diagnosed and they initially thought T1 and in any event my Hba1c was so high (121) that they started me on insulin regardless. The c-peptide and antibody results suggest T2 though however even the DSNs said I don't really fit the standard profile for T2 and I am very responsive to injected insulin.

Following an appt on NYE and having discussed other meds and me point blank refusing them due to the possible side-effects and having to manage those with a stoma they happily agreed that I could just stay on insulin.

On a full MDI routine with both basal and bolus shots.

FP'ing at least 8 times a day on exercise days and when back at work I need to factoring in driving too so I very much meet the criteria. Control is pretty good however with factoring in my target exercise load it will become a little more dicey with much more FP'ing required.
 
  • Like
Reactions: Moi
I know there is a criteria. I was given mine, because the cancer treatment I'm on coursed my diabetes and othere health issues I have. I'm happy to say I am 6months cancer free and will stop my treatment in 3 months if I stay cancer free, but alas the diabetes won't go away then.
 
You should be ok either way @dannybgoode - Consultant or DSN should request that your GP prescribes it as you are on insulin (you would be expected to test on waking, before and 2hrs after meals, plus before bed - so 8 times at least - that would fit the criteria for T2) - I'm confident you will get one (and rightfully so!)
 
I think my GPs would just prescribe if the DSNs asked however they are pretty good in general so happy to ask and make my case. I am already a hugely expensive patient what with my stoma etc so as a % of my cost to them already, Libre isn't a huge dent :D

Thanks GB - I am newly diagnosed and they initially thought T1 and in any event my Hba1c was so high (121) that they started me on insulin regardless. The c-peptide and antibody results suggest T2 though however even the DSNs said I don't really fit the standard profile for T2 and I am very responsive to injected insulin.

Following an appt on NYE and having discussed other meds and me point blank refusing them due to the possible side-effects and having to manage those with a stoma they happily agreed that I could just stay on insulin.

On a full MDI routine with both basal and bolus shots.

FP'ing at least 8 times a day on exercise days and when back at work I need to factoring in driving too so I very much meet the criteria. Control is pretty good however with factoring in my target exercise load it will become a little more dicey with much more FP'ing required.
sorry @dannybgoode
I can’t understand, why have they not automatically allowed you to get CGM on prescription already
if you do meet the criteria, maybe somewhere there is a misunderstanding of your circumstances

after all, your injecting multiple daily insulins
of 2 types on insulin, and your already shown to be responding to insulin
some of us T2’s do need insulin (I’ve been taking it for about 10 years)

plus
as you said your already FP testing in excess of 8 times per day ?

the only thing I can suggest is you ask
quite plainly but politely (to both your GP & DSN)

the same question
who it is that has said you don’t qualify for funded CGM
when it is so obviously something that could benefit you ?

I was told initially when I was turned down (application was made by my GP)
after he said he would ask

He came back only a few days later stating the funding had been refused by the local ICB
(as in my case they would be funding body my GP would need to get funding from)
then following a phone consultation to explain a few more things with my GP
My GP the same day had a DSN call me
and another request was made

TBH im not 100% sure if the second request was made by my GP
or the DSN
but the DSN felt I would benefit from the CGM
so she was going to ask the consultant at the Hospital

ten days later a text was received confirming a prescription had been issued
it’s not always straightforward sometimes

have you already requested the free trials
from both
Abbot & Dexcom (if not head over to their websites and order them both ASAP)
 
I can’t understand, why have they not automatically allowed you to get CGM on prescription already
I just think it's a case of this is all very new. I'll ask the GP when I see him and take it from there.

I am fairly certain now given what you and others have said it won't be an issue. It was only decided on Tuesday that I would stay MDI.

I can ask my GP and tell them if they'd rather the consultant made the call I can then ask the DSC the next day anyway so hopefully won't be any drama 🙂

I have my free Libre trial bit the sensor didn't work so seeing if Abbot will send me another. I'll tap Dexcom up as well.
 
Last edited:
I know its not really funny, but the idea of a free trial not working says a lot...
Check out dexcom...i found them more reliable and you do have a choice
 
I know its not really funny, but the idea of a free trial not working says a lot...
Check out dexcom...i found them more reliable and you do have a choice
I think it depends. Some people find Libre better. Some find Dexcom better.
I had a two sensor trial from Dexcom and they both failed. The replacements were less accurate than Libre.
However, as often mentioned, both need you to take into consideration the limitations of CGMs and be conscious of placement. I lost a couple when I started due to lack of awareness and bad placement (I forgot sensors do not bend when I placed a sensor on a “corner” of my muscle).
 
I just think it's a case of this is all very new. I'll ask the GP when I see him and take it from there.

I am fairly certain now given what you and others have said it won't be an issue. It was only decided on Tuesday that I would stay MDI.

I can ask my GP and tell them if they'd rather the consultant made the call I can then ask the DSC the next day anyway so hopefully won't be any drama 🙂

I have my free Libre trial bit the sensor didn't work so seeing if Abbot will send me another. I'll tap Dexcom up as well.
@dannybgoode If it didn’t work, im pretty sure Abbott will replace it - they did for me, I’m sure if you give them a call, or depending what the fault was they have a online sensor reporting on their website.

back when I was wearing my first one (in the summer) I thought I had an issue & so called them, they happily sent me another, however a few sensors on as I understood more I kind of realised it probably never was actually faulty at all,
Ive had a few failures including one that I dislodged taking of a tight sweater one day, they replaced each one, anyway hope your successful in getting sorted
 
Status
This thread is now closed. Please contact Anna DUK, Ieva DUK or everydayupsanddowns if you would like it re-opened.
Back
Top