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Who and when to call?

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This thread is now closed. Please contact Anna DUK, Ieva DUK or everydayupsanddowns if you would like it re-opened.
J

Jode

New Member
Relationship to Diabetes
Parent of person with diabetes
My little one is 4, and just diagnosed since may.
Tonight her readings were (bedtime then hourly) 18.8 , 16.2, 18, 17.4, 14.3 with doing the recommended correction dose on meter of .5 NR.
I am unsettled at these readings, ketones are 0.1, just wondering say it is 2am and she goes back up, do I just keep giving the .5 and hoping for the best ?
Also three days last week she was as high then dropped like a bomb to hypo and I can't sleep fearing that will happen- Would I call nhs24 if it continued like this through the night? or only if she got high ketones call 999 ? I would really like to know if leaving it on this trend will it suddenly esculate and what damage is it doing for the hours she is high?
 
Hi @Jode Sounds like you're on a rollercoaster atm {{{hug}}} As you are understandably worried I would contact your out of hours service now for advice and your diabetic team tomorrow
Does your daughter have an infection ? Infections can play havoc with our BGs as can the weather.
The keytones levels sound ok to me.
When you have time, please let us know how your little on is.
 
Hi ya thanks for being here at 2am! she has just read 11 so it is a steady drop, not like the ones last week that nose dived rapidly (during the day). Going to test at 3am and 4am if she starts nearing hypo will wake her up for snack and chat to nurse in the morning I think. I am never confident of when or who I should be calling for help! During the night especially doubt myself!
 
It's perfectly natural to worry and doubt yourself when it comes to looking after someone else, even more so when it's your child !
I'm glad her levels are coming down gradually rather than like falling over a cliff.
I'm often up during the night . I hope you manage to get some sleep else your going to be cream crackered later on.
 
Thanks Lin, it is her birthday tomorrow, so hoping I will find some energy for fun! she hasn't woken at all so hope she won't be totally wiped out by this. I wish there was a strict flow chart to follow for every scenario that suited every individual, horrid feeling inexperienced and having to make judgements. Only one month passed diagnosis, so I am told it gets easier with experience and holding on to that!
 
Welcome Jode and happy birthday little one.
I was catching up with sleep last night, after staying with friends in a household that includes 2 parents, 4 boys (14 to 5 years), then walking 2 miles, working a full day and driving 40 miles home.
To answer your question. There isn't a simple flow chart, especially so soon after diagnosis, as it's important that blood glucose levels are brought down gradually rather than suddenly, to avoid your daughter feeling false hypos.
However, it would be worth asking your diabetes team for specific advice about who to phone and when, under which circumstances. For example, in some areas, parents are given direct phone number to paediatric ward.
 
Happy birthday to your little one, Jode.🙂 It's early days, so make sure your doctors give you an out-of-hours contact number - it doesn't seem right not to have support at this stage. You must be knackered...
 
Happy Birthday to you little one.
I hope your little I ones levels were ok for the rest of the night and you managed to get some sleep.
 
Happy birthday sweetheart!

Your mummy will never forget your third birthday, even though you will.

@Jode - never be afraid to tell your daughter's team how YOU feel, or whatever you're unsure about or could do with reassurance/more explanation about. Never ever be afraid to ask another question !

You sound completely normal to me and I may have had it myself for 45 years - but I'd be totally clueless trying to second guess what a toddler's BG was doing or was going to do - or the best thing to do when whatever. My expertise such as it is, is only with treating me - and knowing if I try whatever - it's only me that bears the brunt or the benefit of whatever I do !

{{Hugs}} and I hope by now, you've got some assistance.
 
Copepod said:
Welcome Jode and happy birthday little one.
I was catching up with sleep last night, after staying with friends in a household that includes 2 parents, 4 boys (14 to 5 years), then walking 2 miles, working a full day and driving 40 miles home.
To answer your question. There isn't a simple flow chart, especially so soon after diagnosis, as it's important that blood glucose levels are brought down gradually rather than suddenly, to avoid your daughter feeling false hypos.
However, it would be worth asking your diabetes team for specific advice about who to phone and when, under which circumstances. For example, in some areas, parents are given direct phone number to paediatric ward.
Click to expand...

Wow sounds very exhausting! I did ask that today, and was told I could ring the ward (we were on orginally) telephone 24 hours. I had the number but had called it before and no answer- from any extention, so guessed 2 am it def wouldnt be answered! Now I know who to call when, thanks
 
trophywench said:
Happy birthday sweetheart!

Your mummy will never forget your third birthday, even though you will.

@Jode - never be afraid to tell your daughter's team how YOU feel, or whatever you're unsure about or could do with reassurance/more explanation about. Never ever be afraid to ask another question !

You sound completely normal to me and I may have had it myself for 45 years - but I'd be totally clueless trying to second guess what a toddler's BG was doing or was going to do - or the best thing to do when whatever. My expertise such as it is, is only with treating me - and knowing if I try whatever - it's only me that bears the brunt or the benefit of whatever I do !

{{Hugs}} and I hope by now, you've got some assistance.
Click to expand...
Thank you so much x
 
Jode said:
Wow sounds very exhausting! I did ask that today, and was told I could ring the ward (we were on orginally) telephone 24 hours. I had the number but had called it before and no answer- from any extention, so guessed 2 am it def wouldnt be answered! Now I know who to call when, thanks
Click to expand...
Not exhausting, but fun. Just wanted to show that life as an adult with type 1 diabetes can be fun, busy, satisfying etc. You've been aiming to raise an adult with an interesting future since your child was born, so just wanted to give an example to show that hasn't changed.
 
Welcome to you Jode.

Your doing a BRILLIANT job.
 
Welcome, Jode, and I hope your little one had a good day today after last night.
Just to say, I'd always call someone who knows about diabetes - so really good that you now know you can call the ward directly. I don't think out of hours GP is a good person to call, as they aren't diabetes specialists and may not know much about it. I've been given the wrong advice by one in the past. Now I'd contact hospital directly - or ask here!
 
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This thread is now closed. Please contact Anna DUK, Ieva DUK or everydayupsanddowns if you would like it re-opened.
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