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Who and what is JDRF?

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This thread is now closed. Please contact Anna DUK, Ieva DUK or everydayupsanddowns if you would like it re-opened.
Adrienne

Adrienne

Well-Known Member
Relationship to Diabetes
Parent of person with diabetes
Juvenile Diabetes Research Foundation

That does imply that it is a children's charity. It has however moved on from that.

This was started by parents in the USA.
http://www.jdrf.org/

There is loads of info for adults and kids alike on there.

Then we have our UK branch :
http://www.jdrf.org.uk/

They are a fantastic charity and not just about research. They will get involved with campaigns about all sorts of things.

They are purely about type 1 diabetes in anyone.

Take a look and see what you think. 🙂🙂
 
Definately a charity I want to learn more about. Have supported DUK in past but in light of recent comments and having seen JDRF'S measured, informative response on the DUK facebook page I feel my support would achieve more with JDRF.
 
Ah right ok Northerner. If I was involved before I would never remember. Too much going through my head at all times 🙂

Still doesn't hurt to talk about them once in a while.

🙂
 
Thanks for sharing Adrienne. I too was of the view that it was just about children, until you have specifically pointed it out! it looks like a good website (will have a better look through later).

For me, re: donations, I think I'd still give to DUK as they are the 'big' charity that surely is more likely to get progress as it can fund more work....just my view though (and I don't mean that in an offensive way to any JDRF reps or supporters!) 🙂
 
Ford UK (cars and stuff:D) support JDRF as a nominated charity.

We found this out in the showroom last year. They had a pile of leaflets about them.

So by buying a fiesta, we have indirectly supported JDRF 🙄

Rob
 
JDRF have change their emphasis a lot recently. Their new logo has no mention of the word juvenile. They say 'improving lives, curing T1 diabetes'
Because they've dropped the total emphasis on cure and juvenile, they've come in for criticism from mothers of young T1s in the US.
 
Adrienne said:
Juvenile Diabetes Research Foundation

That does imply that it is a children's charity. It has however moved on from that.

This was started by parents in the USA.
http://www.jdrf.org/

There is loads of info for adults and kids alike on there.

Then we have our UK branch :
http://www.jdrf.org.uk/

They are a fantastic charity and not just about research. They will get involved with campaigns about all sorts of things.

They are purely about type 1 diabetes in anyone.

Take a look and see what you think. 🙂🙂
Click to expand...

Hi Adrienne,

Thank you for highlighting the great work that JDRF does and linking to the JDRF UK website.

I?m the Diabetes Community Relationship Manager at JDRF and I?d be happy to tell any members of the forum more about what we do. You can reach me by email smitchell@jdrf.org.uk or telephone 020 7713 2031. As this is a Diabetes UK supported forum, we have felt it more appropriate for JDRF to keep a low profile on here. Of course, if the moderators and members of the forum feel this is not necessary we will be happy to join in.

Best wishes,

Simon
 
SimonJDRF said:
Hi Adrienne,

Thank you for highlighting the great work that JDRF does and linking to the JDRF UK website.

I?m the Diabetes Community Relationship Manager at JDRF and I?d be happy to tell any members of the forum more about what we do. You can reach me by email smitchell@jdrf.org.uk or telephone 020 7713 2031. As this is a Diabetes UK supported forum, we have felt it more appropriate for JDRF to keep a low profile on here. Of course, if the moderators and members of the forum feel this is not necessary we will be happy to join in.

Best wishes,

Simon
Click to expand...

Your input is very welcome Simon, so please feel free to keep us updated with your news and events 🙂
 
everyone can subscribe to theie e-newsletter i have 3 from different county plus london as well
 
HelenM said:
JDRF have change their emphasis a lot recently. Their new logo has no mention of the word juvenile. They say 'improving lives, curing T1 diabetes'
Because they've dropped the total emphasis on cure and juvenile, they've come in for criticism from mothers of young T1s in the US.
Click to expand...


I think it's interesting that previously some US adults in the US community felt abandoned by JDRF and then when JDRF changed focus (Artifical Pancreas, looking at prevention of complications) it provoked an incredible debate on the US boards...Many US parents are as critical of JDRF as British parent are of DUk..I welcomed this widening of focus and think the work JDRF have done (in partnership with DUK) on support for children in schools is just as important (possibly more so) than the search for the elusive cure...Much of the work they do is actually of benefit to both adults and children with type 1 and and some to type 2 (prevention of complications)...Don't be put off by the name


I try and cover all bases and give a small monthly donation to JDRF (via standing order), then pay yearly membership and the odd donation to The Insulin Dependant Diabetes Trust and DUK.....(IDDT also collect used toners and phones). JDRF sell charity Christmas cards as do the IDDT...I am a DUK parent rep too..

I was told by someone who works for a charity that a small monthly amount (via a standing order) is the most helpful as it allows them to have a clearer idea of their income..perhaps someone could comment on this...

In terms of advocacy and help on a personal level I think Jenny Hurst of the IDDT does an incredible job on a small budget and I appreciate the times she has been on the end of the phone for me (their helpline is 24 hours a day). Their work in Global South is also very important to me..
 
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