• Please Remember: Members are only permitted to share their own experiences. Members are not qualified to give medical advice. Additionally, everyone manages their health differently. Please be respectful of other people's opinions about their own diabetes management.
  • Diabetes UK staff will be logging into the forum at various times throughout this Bank Holiday weekend, however, if you require emergency medical assistance or advice please call 999, or if it is less urgent then please call the 24 hour NHS 111 service on 111. Alternatively, please speak to your GP or healthcare team.
  • We seem to be having technical difficulties with new user accounts. If you are trying to register please check your Spam or Junk folder for your confirmation email. If you still haven't received a confirmation email, please reach out to our support inbox: support.forum@diabetes.org.uk

What is Diasend?

Status
This thread is now closed. Please contact Anna DUK, Ieva DUK or everydayupsanddowns if you would like it re-opened.
j666gak

j666gak

New Member
Relationship to Diabetes
Type 1
Hello,

I went for my annual checkup the other day and I won't mention at which hospital. For a couple of years I have been taking my meter with me every time and was always told they wanted it written in a diary, and do it that way. So this time when I went while checking my weight and blood pressure a nurse asked me if I had my meter with me, I asked why and the nurse said "so the doctor can see your results" to which I passed her my meter and then asked to wait up the hall. Another nurse then came over to me and handed me my meter with a slip of paper that literally said http://www.diasend.com username:(my full name) password:(random), I asked what this was about and the nurse said "your result have been put on the internet". When getting home I have checked the website and was quite shocked that it was not an NHS website which is quite concerning for the following reasons:

1) I was not made aware that my information/result were going to be uploaded to a web application
2) The information is not being stored on an NHS/government website
3) The user name has been made up of my full firstname and surname making the information easily identifiable to me, instead of my patient number or a randomly generated username
4) I wasn't asked to give consent AT ANY POINT!

I don't blame Diasend for this, however I am going to contact the hospital to highlight some issues with this process (or lack of) as it does breech the Data Protection Act and is concerning when your data is unknowing being held with an external company.

Has anybody else had this issue? or used the website at all?
 
I hadn't heard of it before. I would have expected them to have asked for your permission before setting it up, and I would also have expected the identifier to be more anonymous, for example with a coded User Name rather than your full name. The password should protext your privacy. I can see how it can be useful for HCPs though, to see everyone's data presented in a standard format.
 
Hiya diasend is a well known tool for storing your test results.
Just change the password for your own usage.
Certain pumps can download the info to them as well.
 
It does seem shocking that they didn't explain it or seek permission first.

Rob
 
I do understand the benefits to the HCPs, however I don't think that gives the right to use poor process.

Working in cyber security and information assurance I guess that makes me more aware of the risk, I have written a letter or complaint to the hospital this and hopefully address this issue.
 
j666gak said:
I do understand the benefits to the HCPs, however I don't think that gives the right to use poor process.

Working in cyber security and information assurance I guess that makes me more aware of the risk, I have written a letter or complaint to the hospital this and hopefully address this issue.
Click to expand...

Hope you get a satisfactory repsonse. Perhaps the nurse assumed (mistakenly) that you knew it was going to be done, or some step asking for consent was missed.
 
j666gak said:
I do understand the benefits to the HCPs, however I don't think that gives the right to use poor process.

Working in cyber security and information assurance I guess that makes me more aware of the risk, I have written a letter or complaint to the hospital this and hopefully address this issue.
Click to expand...

Oh I agree 100% with you. I object strongly to my data being on line and refuse to partake 😡
 
Well mine's certainly in the pump software at the hospital but to access it you have to have the correct NHS sign-in code - I think it's like a credit card thingy, at least that's what my GP has to use to get into certain info via his PC in the surgery, and then enter passwords and stuff.

But in any case they can access my paper file if they know my hospital number and have authorisation. So you have to trust them with that, don't you?

But the program isn't shared by patients, so no way I can see even my own info that they hold in that prog. I had to load up my own copy of the software and set it all up myself at home to do that. And the hosp can't access what I have.

I wonder if Diasend actually know they are doing that in practice? I can't see them being too happy about it either, bearing in mind they have to prove themselves 'whiter than white' and mega-secure to sell the system to bits of the NHS anyway.
 
Yes diasend do know HCP's are using the service. That's what it was set up for.
The USA are great users of it.
Animas encourage their pump users to use it as their own pump software is so bleeping awful 😡
 
Status
This thread is now closed. Please contact Anna DUK, Ieva DUK or everydayupsanddowns if you would like it re-opened.
Back
Top