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What a whirlwind few days - newly diagnosed and overwhelmed

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Ellen19780

New Member
So after what has been a surreal few days in hospital following suspected Diabetic Ketone Acidosis, I am now home with a diagnosis (although not 100% if I'm type 1 or 2), a whole stack of paperwork, no sleep and a very confused head.
On Monday I thought I was well, albeit displaying symptoms such as excessive thirst, frequent weeing and unexplained weight loss), but my glucose at 33 and Ketones at 1.2 told a different story.
I am hoping that joining this forum will introduce me to lots of people with advice, stories and support.
Thanking you all in advance, Ellen
 
So after what has been a surreal few days in hospital following suspected Diabetic Ketone Acidosis, I am now home with a diagnosis (although not 100% if I'm type 1 or 2), a whole stack of paperwork, no sleep and a very confused head.
On Monday I thought I was well, albeit displaying symptoms such as excessive thirst, frequent weeing and unexplained weight loss), but my glucose at 33 and Ketones at 1.2 told a different story.
I am hoping that joining this forum will introduce me to lots of people with advice, stories and support.
Thanking you all in advance, Ellen
Hi Ellen, welcome to the forum 🙂 Glad you found us so quickly, hopefully we can ease your concerns and answer any questions you may have 🙂 Have you been given any medication (hopefully insulin with such high levels and suspected DKA)? I was in a similar position just over 10 years ago - felt fine one week, apart from the thirst, peeing and weight loss (which I now realise I had been largely ignoring or attributing to other things) - the next week I was in hospital with a blood levels of 38 mmol/l and full-blown DKA 😱 8 days later I left hospital with two insulin pens, a box of various stuff and a very steep learning curve to navigate over the following few weeks. The good news is that, ten years on I'm still here, fit and healthy and doing pretty much what I was doing prior to diagnosis 🙂 It doesn't have to have a negative impact on your life, but it will need a bit more planning ahead 🙂

Hopefully, your diagnosis will be confirmed soon and then we will be able to give you more specific guidance. Are you in regular touch with your healthcare team? When is your next appointment?
 
Hi @Ellen19780 , welcome to the forum. I hope you are starting to feel better now.
I would like to reassure you that whatever type of diabetes you have, with the right info and some work by yourself, Diabetes is a condition that can be well managed.
We can help with the info and we’re good at cyber support.
So feel free to ask questions about diabetes
 
Hi northerner, wow, 8 days, you must have been bad! just reading your story makes me realise how much I was denying my symptoms. When I was peeing all the time it was because I was drinking a lot. I was drinking a lot because I was exercising a lot which then made me pee a lot.. and so the cycle went on. For me, the unexplained weight loss was the bit that triggered me to have my bloods checked I lost almost a stone in 8 weeks (and I’m not big!).

Anyway, yes they have given me insulin to inject 3 times a day plus the basal injection at night. I have a blood glucose monitor and attending a clinic on Monday next week. I have to admit the hospital have been great and they have been very attentive and the diabetic nurse has been very reassuring.. it’s just that there’s been so much to take in! I’m sure it’ll all pan out and that it will become normal and easy to manage but I guess it’s just that first stage of transitioning into this and really looking at how I structure my days to make sure I eat regularly! I guess it’s all in the planning!

I’m sure I’ll be a regular poster on here as I start to learn and understand!!

Thank you
 
Hi @Ellen19780 welcome and thankyou for joining the forum 🙂. You will have great support from members, I`m sorry you find yourself as a Diabetic but a positive attitude and just stick to simple rules will enable you to live a healthier life than your peers. Keep us up to date on your progress or if you're a bit fed up one day, rant it out no problem. Take care
 
Hi northerner, wow, 8 days, you must have been bad! just reading your story makes me realise how much I was denying my symptoms. When I was peeing all the time it was because I was drinking a lot. I was drinking a lot because I was exercising a lot which then made me pee a lot.. and so the cycle went on. For me, the unexplained weight loss was the bit that triggered me to have my bloods checked I lost almost a stone in 8 weeks (and I’m not big!).

Anyway, yes they have given me insulin to inject 3 times a day plus the basal injection at night. I have a blood glucose monitor and attending a clinic on Monday next week. I have to admit the hospital have been great and they have been very attentive and the diabetic nurse has been very reassuring.. it’s just that there’s been so much to take in! I’m sure it’ll all pan out and that it will become normal and easy to manage but I guess it’s just that first stage of transitioning into this and really looking at how I structure my days to make sure I eat regularly! I guess it’s all in the planning!

I’m sure I’ll be a regular poster on here as I start to learn and understand!!

Thank you
I was due to run a marathon the week I was diagnosed! 😱 I put the peeing down to the drinking, and the drinking/thirst down to the training! I put the weight loss down to the training too. In my case though, things came to a head when I caught a virus and my already-depleted pancreas just couldn't cope any more, which is why I ended up with DKA. Still, since then I have run many thousands of miles, and the good news is that exercise will really help with your levels once you get to grips with things 🙂

It sounds almost certain, from what you say, that you are Type 1 rather than Type 2, in which case I would highly recommend getting a copy of the excellent Type 1 Diabetes in Children Adolescents and Young People by Ragnar Hanas. Don't be put off by the title, it applies whatever age you are (I was 49!), and it covers all aspects of living with Type 1. It's a superb reference and very useful in these early stages to know what areas of your life will be affected and how to deal with them so they become firstly a minor inconvenience, then second nature 🙂 My tip would be to do lots of testing to see how your levels are affected by your food choices, activities bedtime and waking levels etc. Write them all down in a diary, alongside the food and drink you have partaken of - eventually, you will spot patterns that will help when you learn more about adjusting the timing and doses of your insulin 🙂

Get yourself a free copy of 100 things I wish I'd known about diabetes from Diabetes UK, it's full of helpful tips, some of them from forum members 🙂
 
Hello and welcome to forum
 
Wow, amazing advice, thank you so so much. I've ordered the book and I've downloaded the free copy to my inbox as suggested.
I've just been onto DVLA to update record and seen another symptom of low blood sugar levels at night that i would never have attributed to diabetes... crying out and having nightmares, sweating excessively at night and waking with confusion..this has been happening quite frequently in the last few months. Hindsight is a wonderful thing hey!

I will definitely take your advice about the writing down what I eat and testing frequently etc. I do exercise a lot, so i will need to really monitor levels. So glad I have come online.

I had a good nights sleep last night and only woke once for the loo! That's a good sign for sure 🙂

Thank you again!
 
Ellen I still wake at least once for the loo even now, that is the life I have saldy!

We are all here for you, ask away.

I get nightmares with higher levels, if I wake with a bad dream I test straight away.

Welcome to the forum
 
Status
This thread is now closed. Please contact Anna DUK, Ieva DUK or everydayupsanddowns if you would like it re-opened.
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