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Very low basal requirements

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Doghouse

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Relationship to Diabetes
Type 1
Here is something else would welcome comments on. I will be seeing my hospital D consultant at the end of this month, and I am expecting some persuasion down a path I am not keen to follow.


I saw him 6 months ago. His main comment was that I was underweight, my BMI is 21. He thinks that I need a bit more body weight to “buffer glucose decline during sleep” I have not heard of this before, and never thought I would ever be told by a Dr to eat more. Perhaps I could get a prescription to go out and have a bit meal now and again? I think actually he had just lost a patient due to a night hypo, and was a bit on edge. I have absolutely no criticism of the guy, and am glad of all the help he gives.


I was sent to see a D dietitian. She reviewed my case – late onset type 1 for 9 years, I am now 66. For the HbA1c she said I “should not be able to that”, approx. 44 for 8 of the 9 years. We discussed residual B-cell function, and she organised a GABA test, which I thought rather pointless, obviously I am type 1, and a c-peptide test would have established whether my B-cells were still doing something. My insulin sensitivity is 1U to 20g carbs. But basal is very low. I usually have 2U Lantus, but have now found that zero Lantus is workable, giving 5.5 – 7 mMol/l in the morning.


My question is whether other people have had the same experience, and how many type 1 people have dropped the basal and still got good blood glucose readings in the morning? I would be keen to drop the basal because it would make night hypos very unlikely. Also it would probably make the consultant happy
 
The only person I know is Northerner - the Admin of this forum! The rest of us definitely need basal insulin to one degree or another.

Were I your consultant, I'd be more interested in your BG meter readings than your weight - BUT! - you know the liver kicks in when our BG goes low, and helps get our BG back up - perhaps if we have a lack of 'flesh' then the liver doesn't do that as well as it would were we heavier? I don't know whether that's right or not, it's just me thinking out loud!
 
Your liver, by and large, goes it’s own sweet way whatever shape you are. It doesn’t shrink if you’re thin. It sounds very much like you still have some residual beta cell function, but everything proceeds at a statelier pace as you get older. You may not need basal insulin at the moment, but you probably will eventually. Don’t worry about it, enjoy it🙂
 
I have no basal from 10pm til 4am and get about 80% of my insulin from bolus - which some of the experts don't like, but it's way I am. No one seems to have written a rule book for the pancreasless.
 
I'm on 4 units of basal and I've never been able to stop having too many hypos, even now I'm on a more stable basal (I switched from Lantus to Tresiba) I still hypo away like an insulin-dependant person with a slightly functional pancreas. I have actually discussed stopping my basal with my diabetes nurse - she thought it might be a good idea, though I was a bit concerned I might go too high overnight. So I'm waiting until I have a functional enough brain to buy a Libre (I have another illness which causes cognitive dysfunction, so I go for weeks with my brain out to lunch, but Libre is now top of my to-do next time brain is working list) and then once I've got that sorted I'm planning to have a try without basal.
 
In type 1 diabetes, most people need a total of 0.5 - 0.8 units of insulin per kilogram of body weight each day. Roughly half this insulin is basal, the other half bolus.

My Gp has asked me to put a stone on for the last 10 years or so.
How much insulin and what ratio of basal to bolus I have depends entirely on how many carbs I consume (and what my insulin sensitivity is, I assume). I weigh 60kilos. If I had 30 units of insulin on a day when I didn't eat very many carbs I'd be unconscious!
 
LOL - I'm clearly not like most people either then Robin! Average TDD now in the low 20s, I don't even want to weigh 40kg or less - I'd actually have to be a ruddy skeleton!
 
I’m in the same boat as a Robin and Jen. Weighing in at 62 kg and a tdd of about 17-20 units. If I took 31 units I would soon be a lot heavier due to more or less doubling my carb intake.
 
Well according to that I must be a textbook T1. Weight 66kg and TDD around 36u with basal/bolus split of roughly 50:50 (see basal/bolus ratios thread). My BMI is just over 19 but no-one has ever questioned that.
 
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This thread is now closed. Please contact Anna DUK, Ieva DUK or everydayupsanddowns if you would like it re-opened.
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