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Type 3c

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Mollymule

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Hi I am new to this site and my interest is type 3c.
Currently it does not appear to be recognised very well on an official footing and I believe I am right in saying there is not a code for it on the nhs coding system either. Consequently many are treated as a type 2 to start with when they should be treated as a type 1 and be put on insulin.
Also education is denied in the form of the DAFNE course as some professionals regard it as a form of type 2 and as there usually a waiting list for this the 3c’s have no hope. It seems that the most that can be done is a carb counting study day for them. I do hope that with the support of Diabetes UK, 3c will gain a more official recognition and be treated appropriately.
 
If you look at the NICE recommended treatment of complications of chronic pancreatitis, specifically diabetes, no treatment other than insulin is even mentioned, let alone recommended.

https://www.nice.org.uk/guidance/ng104

The implications, clearly laid out, is that 3c should be treated as Type 1, with all that goes with it - testing, pump availability etc - should be accorded. There is therefore no excuse for any 3c patient to be placed on inappropriate therapy, but you know as well as I do Molly, that just doesn’t seem to happen.

I got the link from the Pancreatitis forum.
 
Exactly no excuse at all, not rocket science but basic human biology. Not sure how long it’s actually been a NICE recommendation to use insulin but not very long I think.
 
The link Mike posted dates it as September 2018, in other words it's new. Hence if a person has T3 and is not being treated as T1 to all intents and purposes - then they or their carers should complain to the medical team and quote the Guidelines. If no help ensues then back to the GP and request a second expert opinion!
 
I'm having issues with this and not sure whether to write to GP or Diabetes Specialist with a copy of guidelines.
 
Both, Leya, but particularly the Diabetes specialist. Many Diabetes specialists have never seen a 3c, so a touch of education will do no harm. GPs are even less likely to have seen one.

The problem with the treatment protocol that NICE recommend is that it is hidden in the Pancreatitis treatment, but absent from the diabetes protocols.
 
mikeyB said:
Both, Leya, but particularly the Diabetes specialist. Many Diabetes specialists have never seen a 3c, so a touch of education will do no harm. GPs are even less likely to have seen one.

The problem with the treatment protocol that NICE recommend is that it is hidden in the Pancreatitis treatment, but absent from the diabetes protocols.
Click to expand...

Thanks Mike. Is there any way that I could PM you as I desperately need advice. Things have taken quite a turn for the worse.

Leya xxx
 
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