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This was meant to be my good year

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I'm not surprised you were upset. Keep strong. Our lives are just so complicated, aren't they.
 
Thank you Susan. Yes our lives are complicated but at least it stops us getting bored🙂
 
Sorry to hear this awful problem has reappeared, AJ. :(I hope you get an answer asap.
 
Thank you Bloden. I'm having a good day today so I'm making the most of it🙂
 
Thank you Ronnierabbit. The neurology appointment is on February 18th, so quite soon, and I will know more then about tests etc - although I'm not sure what tests that they can do as I had an MRI 14 months ago which was clear and nerve conduction tests on my hands in the summer which were also fine. in the meantime I just need to completely put out of my mind what the GP said about MND.
 
Sorry to hear that Amanda. I hope it turns out to be nothing important. x
 
If it gives you any confidence, they at one point thought I had ms. Then they decided on rheumatoid arthritis. Then when I actually got to see the specialist I found out I am coeliac (which explained the fatigue) and I have Ehler danlos joint hypermobility (which explains the weakness and pain when I walk).

Also, if it does turn out to be the worst and turns out to be ms, my step dad has it. I don't think he has it too badly. He struggled working full time hours, but on the whole he manages to live a full life.

So there is still hope 🙂
 
Thank you Kate x Thank you for the reassurance Amberzak. You've made me feel a lot better because I've had GPs tell me before, on different occasions, that they think I have rheumatoid arthritis, breast cancer and MS and were wrong, so hopefully they are wrong again this time. Hopefully whatever goes wrong with my hands/feet can be easily sorted.
 
AJLang said:
Thank you Kate x Thank you for the reassurance Amberzak. You've made me feel a lot better because I've had GPs tell me before, on different occasions, that they think I have rheumatoid arthritis, breast cancer and MS and were wrong, so hopefully they are wrong again this time. Hopefully whatever goes wrong with my hands/feet can be easily sorted.
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Try changing your GP, a GP can not diagnose or even suggest MS, if it's suspected then a neurologist apt is made and there are many and I do mean many tests to be done, they are not done overnight either. A neurologist deals with many conditions including diabetes related problems and even spinal cord infections which did surprise me.
 
You have enough on your plate Amanda, but I am glad the appointment has come through fairly quickly. There have, as you say, been numerous incorrect diagnoses in the past but once a suggestion has been made it is very frightening. I do hope that you will still be able to dance a jig with me on the 14th Feb (my birthday - not a valentine jig before anyone says!!) just to stick our fingers up at all this stuff that keeps happening. Remember "we are the bestest" haha. And sorry to turn a very serious post a bit daft but somehow it just happens when I am around.
 
Thank you Sue. I had a neurologist check me for MS 14 months ago. The only tests they did were an MRI and nerve conduction test in my hands. They didn't mention any other tests and discharged me.
 
ha ha Karen lol at you being daft. Of course I'm going to dance a jig with you at your birthday because we are the bestest. Two fingers up to the other stuff xx
 
Sorry to hear you've not had the best start to the year AJ. I hope the GP is just being a little over cautious and it turns out to be neither condition and something that can be quickly sorted. Neurologists are in my experience pretty good at tracking down the problem, the one I saw when being investigated for Motor Neurone issues a few years ago was the chap who managed to identify it was actually a B12 deficiency and not MS. fingers crossed X
 
Thank you KookyCat. I'm feeling more positive. The neurologist at the TIA clinic did get my B12 checked and that was fine. I'm sure/hope it's going to be something simple x
 
I also hope it turns out to be something simple AJ. Wishing you all the best for Friday.
 
Thank you Bessiemay
 
AJLang said:
Thank you Sue. I had a neurologist check me for MS 14 months ago. The only tests they did were an MRI and nerve conduction test in my hands. They didn't mention any other tests and discharged me.
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Well they would do as no Lesions to worry about and a nerve conduction test would have shown any problems as well.
They have gone a lot further with me due to have a spine lesion. So if you have no lesions then you are in the clear.
 
Thanks Sue I just need to find out what is wrong and hope that it can be easily dealt with because the problem is horrible when it flares up. They only did a head MRI not a spine one.
 
AJLang said:
Thanks Sue I just need to find out what is wrong and hope that it can be easily dealt with because the problem is horrible when it flares up. They only did a head MRI not a spine one.
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A head MRI is the normal procedure. I had both and spine done with contrast due to certain symptoms appearing that were not normally expected. Has anyone checked your folic acid levels?
 
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