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The start of a hopefully long journey

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Hi and thanks for the reply.

I feel a little more rational today which is good! Today was a phone call and it was decided I dont need to go on insulin just now as my bloods are ok, although I have had another hypo today. Just taking 2 Glimipride and 4 Metformin- and if I have another Hypo I will halve the Glimipride.

Thanks for all the support- this board has already been invaluable, even though I have been poor at replying!
 
Hi and thanks for the reply.

I feel a little more rational today which is good! Today was a phone call and it was decided I dont need to go on insulin just now as my bloods are ok,
So have you been confirmed as T1 or is that still under consideration? Was the Libre sensor discussed? Do you have a DSN that you can reach out to if necessary?
although I have had another hypo today. Just taking 2 Glimipride and 4 Metformin- and if I have another Hypo I will halve the Glimipride.
I'm T3c, which is akin to T1 in that I'm fully insulin dependent. But my dependency is from a total pancreatectomy, not because of autoimmune problems - so my understanding of the finer points of T1 (or T2) is limited.
But regarding hypos, those new to DM and on insulin often find they can get on a roller coaster going from low to high and back again repeatedly. Are you experiencing this? Are you content with your ability to manage these hypos?
Thanks for all the support- this board has already been invaluable, even though I have been poor at replying!
Don't feel bad about your delayed replies. You will have numerous things going on as you adjust to your new circumstance. If you have questions ask away and someone will know the answer.
 
Hi
They have said that I have tested positive for GAD antibodies so its likely LADA, and have changed my treatment. As my bloods are in range with the meds, they dont see the immediate need for insulin but I am to keep a close eye on things, and have been referred into a specialist clinic which is different to my current one although I haven't been yet,

With the hypos, I am hoping that dropping the Glimipride dose will now stop these although I certainly dont feel comfortable yet. Some days are fine, yet some days I can eat a decent meal (example being 3 eggs, 2 wholemeal toast) and less than 2 hours later my bloods are below 5 and I can feel that I will need to eat. At present- If I go much longer than 3 hours without eating, I will feel the jitters which is super frustrating. On the occasions I have dropped below 4 and had to eat something to raise the bloods, I end up feeling pretty rubbish and tired- is this normal??
 
A Libre has not been discussed but I am yet to have a f2f since being told its likely LADA. I will ask about it though as it will help me work out what foods I can have etc- as my energy levels feel all over the place/
 
Hi
They have said that I have tested positive for GAD antibodies so its likely LADA, and have changed my treatment. As my bloods are in range with the meds, they dont see the immediate need for insulin but I am to keep a close eye on things, and have been referred into a specialist clinic which is different to my current one although I haven't been yet,
Who was "They"? The referral to a Spec Clinic is good, presumably that will include a DSN.
With the hypos, I am hoping that dropping the Glimipride dose will now stop these although I certainly dont feel comfortable yet. Some days are fine, yet some days I can eat a decent meal (example being 3 eggs, 2 wholemeal toast) and less than 2 hours later my bloods are below 5 and I can feel that I will need to eat.
Yes, can be normal. Depends on a number of things, in fact there are at least 42 factors that can affect BG - not necessarily all at once(!); the 43rd is the D fairy! But activity and exercise can move the goal posts and can affect your BG 24 hrs (or more) later. Without knowing what else has been happening, or you've been doing, its difficult to pin-point exactly why.

So at this stage you can only be alert to going hypo and have a response kit very close to hand. By response kit that might need to include unscented wash-wipes, so you can test a clean finger; you will know if you are likely to have contaminated hands - what you don't need is delay while you wash and dry! Plus a snack of high GI carbs, such as Dextrose, Jelly Babies etc, within very easy reach at all times.

Once the hypo has cleared consider taking a small snack of medium or low GI carbs (eg 1 small biscuit @6-10 gm CHO) or even a little more (eg 1 Nature Valley bar, 13gm, out of a packet of 2) - to reinforce the recovery; particularly if you are even mildly active.

Hypos are unpleasant, particularly deep ones. They are also frightening, initially; over time you will come to realise they aren't unduly dangerous - just unpleasant and inconvenient. In fact, the likelihood of you going so low you are getting towards comatose is surprisingly small, and you seem to have a reasonable hypo awareness. So the quicker you can confirm you are hypo and treat, the better. But if also you can resist "over-reacting" then that helps a lot. By this I mean stay relaxed and don't let yourself get stressed, if at all possible; and resist over-eating (surprisingly difficult when hypo and all you want to do is eat ... ) then you reduce the possibility of a really high rebound into hyper.
At present- If I go much longer than 3 hours without eating, I will feel the jitters which is super frustrating. On the occasions I have dropped below 4 and had to eat something to raise the bloods, I end up feeling pretty rubbish and tired- is this normal??
I certainly used to feel rubbish after some of my hypos. Also, for no obvious reason some would last for ages, not seeming to respond to my first JBs; whereas others were done and dusted in a relatively short time. Going hypo can be tiring; your body gets stressed simply because your BG is too low and in its (unsuccessful) fight to help, you get tired. You are also, at this stage, still not particularly well and dealing with the consequence of being diabetic; this is in itself stressful and tiring.

One generic is that we are all different, so individual response to most aspects of DM can be quite different from person to person. This applies to your personal responses to hypos. Keep a log of exactly what you did and when; then adjust your procedure if that didn't work out so well.

Another generic is think of Diabetes as akin to running a marathon; slow and steady (learning as you go) is better than a sprint. Learn from a bad day, but start afresh the next day and don't let that bad day drag you down.

I'm away this weekend and got a difficult funeral to attend on Monday, so I'll be stepping back for a bit. But I'm sure others will pick up on your posts.
 
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A Libre has not been discussed but I am yet to have a f2f since being told its likely LADA. I will ask about it though as it will help me work out what foods I can have etc- as my energy levels feel all over the place/
I don't know what your current meds are doing for your insulin production. But, in principle, since you are now definitely diabetic and not T2, I think you should be able to eat whatever foods you want and let the medications take the strain, ie bost your insulin production to cover the carbs you are eating. However, I don't truly know what the Glimepiride is supposed to be doing, nor can I remember if you also need to lose more weight and so need to control your food intake.

But a Libre might not be the panacea you might imagine it to be just now for your present circumstances. Also Libre has some limitations and when it isn't playing fairly you might find it confuses you more than it helps, while adding to your stress levels! Generally stress, all sorts, is not a friend of diabetes.

Returning to the marathon theme, I've just remembered the title of your Thread alludes to this analogy: the start of a long journey.
 
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Thanks for the update @Bradford84

Glad to hear they are adjusting your meds in light of your reclassification to LADA.

Don’t be concerned if they suggest introducing insulin fairly shortly. I believe there are some specialists who advise introducing insulin sooner rather than later with LADA, instead of using meds that encourage your remaining beta cells to work double-shifts to produce extra insulin. I think this is thought to help prolong your ’home grown’ production 🙂
 
Hi all

A little update as I have now spoken with the specialist who has confirmed LADA. I am not going onto Insulin immediatley but this will be reviewed at my next appointment in 10 days. Since coming off the Glimipiride my Hypos have stopped which is good, and I am feeling slightly better after a tough tough week (deffo the hardest last week).

I have been told I can up my carbs which will hopefully help my energy levels and hopefully the readings stay lowist. They have crept up to the 7s recently and started to have a couple of thirsty nights- the specialist said if the increased carbs push the levels up, rather than reduce the cards, it would be an indicator to start the insulin.

Not sure how I feel RE the Insulin, on one hand I want to get a better handle of my energy, on the other I found the hypos particularly unpleasant so a little cautious.

Thanks again for all the support and advise!
 
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