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T1 LADA just diagnosed

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Mr Dog

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Type 1.5 LADA
Hi all,

Out of the blue I've been diagnosed with T1 LADA. Went to A&E with blood sugar 25 and keytones of 3.0. Seems to settled around 15 now after insulin.

I'm 40 and quite fit or so I though lol. It's a minefield of information but glad there are forums and resources out there. Anyone else with LADA newly diagnosed?
 
Welcome @Mr Dog 🙂 There are lots of later-onset Type 1s here. Contrary to popular belief, Type 1 is more common in adults than children.

What insulins are you on? It’s best to bring your blood sugar down slowly soon after diagnosis, so you’ll find your insulin doses may well increase.

Just a note - Type 1 is nothing to do with how fit you are. It’s an auto-immune condition. I say that as much as to the casual reader here as to you.
 
Hi, not recently diagnosed, have had type 1 diagnosed at age 42 for for 9 years now. Oops, just gave away my age! Yes, loads to take on board and a huge shock. You have found a great forum, so glad you joined us.
 
Welcome to the forum! I’ve had Type 1 6 years. Feel free to ask any questions! We are a very knowledgeable forum
 
Hi thanks for the replies! Not sure what type of insulin, I know I have a slow acting and fast acting one so far. It's only been 3 days, I was nearly put on something called sliding scale for risk of ketoacidosis but they went with the insulin pens in the end after the blood pH settled. I'm due to see a consultant and diabetes nurse today so should find out more. My head is spinning with carb ratios and how much chicken breast I can eat in place of rice
 
Mr Dog said:
Hi thanks for the replies! Not sure what type of insulin, I know I have a slow acting and fast acting one so far. It's only been 3 days, I was nearly put on something called sliding scale for risk of ketoacidosis but they went with the insulin pens in the end after the blood pH settled. I'm due to see a consultant and diabetes nurse today so should find out more. My head is spinning with carb ratios and how much chicken breast I can eat in place of rice
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Yes, a huge amount to take on board. How you manage it in terms of carbs is very much a personal thing. We have type 1s on here who low carb and those who eat a normal diet. I guess as someone who likes to exercise, you will need to balance your body getting enough fuel vs any carb restrictions you may decide to make . All this takes time and experimentation. I personally eat a normal diet with some small adjustments when I deem some things 'not worth the carbs'. For e.g. I dont bother with mince pies as I don't particularly like them, so not worth the calculation!
I think there is a very useful website called something like run sweet for people with type 1 who enjoy exercise.
 
A slow (basal/background) insulin and a fast (bolus) insulin is the normal regime for Type 1. The recommended diet for Type 1s is just the same healthy diet recommended for all. Once you learn how to adjust your fast/bolus insulin, you can eat what you want within reason. Carb-counting (counting the carbs in your meal and taking the appropriate amount of bolus insulin) is crucial to good control - and flexibility.

There’s a lot to learn so give yourself time and be patient. A lot of it is experience and that gradually comes over the months and years.
 
I would urge you to make sure you are given contact numbers of the diabetic support team and also know what you should do if you start to feel unwell (potential hypo) before being discharged.
My Other Half was discharged with a catheter with no instructions about what to do so we were trawling the internet at 11pm wondering how to set things up for the night and then nobody to contact when there was a blockage a couple of days later.
 
Mr Dog said:
Hi thanks for the replies! Not sure what type of insulin, I know I have a slow acting and fast acting one so far. It's only been 3 days, I was nearly put on something called sliding scale for risk of ketoacidosis but they went with the insulin pens in the end after the blood pH settled. I'm due to see a consultant and diabetes nurse today so should find out more. My head is spinning with carb ratios and how much chicken breast I can eat in place of rice
Click to expand...
It’s good that you’re seeing a diabetes nurse and consultant today
 
Thanks everyone for the replies it's really kind people take the time to share advice! I'll try do the same once I find me feet!
 
Welcome to the forum @Mr Dog

Good to have you here, though sorry you’ve had to join our exclusive club :D

Diabetes can be a steep learning curve for sure, and will love to throw curveballs and googlies into the mix as soon as you begin to feel that you might be getting the hang of things… but diabetes IS something over which you can exert a degree of influence.

Not control, exactly, but certainly actively manage with a combination of guesswork, gut instinct, trial and error, and a few handy gadgets and gizmos. 🙂

You’ll be back up and running in no time!

Another useful exercise resource is Extod (exercise in type one diabetes)

www.extod.org
 
everydayupsanddowns said:
Welcome to the forum @Mr Dog

Good to have you here, though sorry you’ve had to join our exclusive club :D

Diabetes can be a steep learning curve for sure, and will love to throw curveballs and googlies into the mix as soon as you begin to feel that you might be getting the hang of things… but diabetes IS something over which you can exert a degree of influence.

Not control, exactly, but certainly actively manage with a combination of guesswork, gut instinct, trial and error, and a few handy gadgets and gizmos. 🙂

You’ll be back up and running in no time!

Another useful exercise resource is Extod (exercise in type one diabetes)

www.extod.org
Click to expand...
Thankyou I'll certainly check that out. I just got discharged from hospital today so got those first time in control of the insulin nerves! Getting the hang of it I think. Going to make a data project out of it and dial that carb ratio in as much as I can!
 
You’ve been given your carb ratio(s) for meals already @Mr Dog ? That’s good 🙂 Knowing how many carbs one unit of insulin covers will enable you to eat pretty much normally as you can cover the food with your insulin simply by doing the Maths.

There are helpful links for carb counting - ie adjusting your insulin to suit your carbs - but I don’t want to overwhelm you when you’ve just got home. I suspect you’ve been given one ratio for all three meals, but often people need different ratios so don’t worry if it doesn’t seem to work so well. Just keep notes and speak to your team.

One thing I will say though is keep hypo treatments around the house and always take them with you when you go out. For exercise, take the glucose and longer-acting snacks too.
 
Thankyou! I have just been thinking about leaving snacks etc about especially in the car. I've not been given any carb ratios just been reading and trying to work things out from the data points on the freestyle libre they gave me. Which I have to say I am unbelievably grateful for. I've been told to take 6ml Novarapid with meals and 10ml Levemir in a morning. It's looking like about 60ish grams of carbs have worked for this so 1:10 so far.
 
Hi I am almost 42 and was diagnosed on 17th December past as type 1 by my GP. I attended back in October when he diagnosed me as type 2 with an A1C result of 115 and later told me that my blood sugar that day was 21.6!. I attended the diabetic nurse 4 weeks later and the A1C had dropped to 85. The GP wouldn't repeat it again until 3 months have passed which is due now on 19th January, 2021. I attended the dietician and she suggested it could be type 1 and ordered the test through the Nurse. The test for the GAD anti bodies was positive and they referred me to the hospital on 22nd December. I am not on any medication at all and they just want to monitor the situation for now. The consultant said it looks like its LADA but she cannot say for certain as I show symptoms of both type 1 and 2. Weight loss associated with type 1 but after about 3 days of changing my diet the symptoms of thirst and running to the toilet were almost gone. The dry mouth has also now subsided and the sugar results I am getting at home do spike but seem to return to normal range although always high in the morning and at night. The hospital did another A1C on 22nd December and it had dropped again to 55. Did they run an anti GAD test in the hospital and did you have many symptoms and weight loss?

It certainly is an awful lot to get your head around and for me now personally I feel completely physically fit and well however my mental state is more difficult to deal with. The hospital for me were great I felt very reassured and there is lots of help available. I have found (strange as it may seem) spending time with friends and family is a big big help and actually lowers my blood sugar readings! It can be hard to talk to friends about it as i find they don't seem to understand it and just how massive the change is on your life.
 
Hi Richard, the dry mouth and thirst was relentless wasn't it! This has also subsided for me after the initial treatment. It's really reassuring that you say you feel physically fit, brilliant.

Last night I ate 2 salmon steaks, salad and a bagel and took 6ml of Novarapid, couldn't believe that I didn't have an after meal spoke at all (flash tracking on a libre). I was in range for bedtime for the first time (hadn't been lower that 12 in hospital spiking to about 18 an hour after food). I set an alarm to scan the libre every 2 hours through the night and was hovering around 8/9. Then on waking, I saw a slight rise. Took my Levemir as directed 10ml and 6ml of Novarapid and ate 45g carbs in a bagel, cottage cheese and black coffee, the whoosh up to 21.5 within an hour and a half. So I took 3ml Novarapid and went for a walk with a pocket full of jellybabies haha. I then read a bagel is a terrible choice as the carbs are super fast release, in fact the article mentions worse than a donut!

Currently sitting at 12 Blood Glucose and calling the hospital nurse as directed on my discharge notes.

I'm finding this forum super helpful!
 
Mr Dog said:
Hi Richard, the dry mouth and thirst was relentless wasn't it! This has also subsided for me after the initial treatment. It's really reassuring that you say you feel physically fit, brilliant.

Last night I ate 2 salmon steaks, salad and a bagel and took 6ml of Novarapid, couldn't believe that I didn't have an after meal spoke at all (flash tracking on a libre). I was in range for bedtime for the first time (hadn't been lower that 12 in hospital spiking to about 18 an hour after food). I set an alarm to scan the libre every 2 hours through the night and was hovering around 8/9. Then on waking, I saw a slight rise. Took my Levemir as directed 10ml and 6ml of Novarapid and ate 45g carbs in a bagel, cottage cheese and black coffee, the whoosh up to 21.5 within an hour and a half. So I took 3ml Novarapid and went for a walk with a pocket full of jellybabies haha. I then read a bagel is a terrible choice as the carbs are super fast release, in fact the article mentions worse than a donut!

Currently sitting at 12 Blood Glucose and calling the hospital nurse as directed on my discharge notes.

I'm finding this forum super helpful!
Click to expand...
Bagels are a whopping amount of carbs. Crumpets are also pretty high considering they are all air.
You do sound to be getting to grips with things, you will probably end up with a list of OK, not so good, not worth it for foods.
 
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