Suffering with distress and burnout

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Are you perhaps staying up a bit late and dwelling on things?
I am not at all in your situation, but I had fallen into the habit of staying up late into the night.
I went off on holiday at the beginning of August and found that I did not have anything to do late at night. I was in my camper van, so went off to the quiet spot where I was staying overnight and settled down, went to bed early and slept until I woke naturally.
It has made such a difference to how I feel about the problems I have. I still have them - but they seem far less threatening now. It is a bit of a struggle to maintain an early bed time, and I don't always succeed, but I am maintaining the optimism fairly well.
 
Hi @Tori-Hermione

I am so pleased that you have found the forum. As @everydayupsanddowns mentioned I went through a period of burnout, during which I had set myself totally unrealistic targets, and I was having far too many hypos in an attempt to keep far too tight control. I certainly found getting a more realistic perspective of what was possible and more important sensible from others on here helped me.

We are having a meet up in Taunton which is not far for you if you fancy meeting some others on the forum in person. Chat spreads wider than just diabetes but it might help for you to be able to ask some questions face to face, and have a good lunch too. (Have a look at SW meet up 3 Sep in the General message - I hope this link works).


Tap into the experience on here, have a rant, ask questions. No one minds.
 
@Tori-Hermione sorry to read about your struggles.
You mention that your Honeymoon period was over nine months after diagnosis when you got a cold.
I suspect it was the cold that caused your insulin resistance to increase rather than the end of your honeymoon period. For those of us diagnosed as adults, this can last years. I found my insulin needs slowly rose (in stops and starts) for eight years before they stabilised to what they are now.
Annoyingly, our insulin needs rarely stay exactly the same as there are so many things that can affect it. So, I am with @Inka that this may be more of your insulin producing cells dying off increasing your injected dose. And it may not be the last - this may not be the end of your honeymoon period.
You seem to be concerned about your insulin dose increasing. Why? We all need different amount. The right amount is what our body needs.

I agree with the other comments that you need to demand help. Whilst your time with a diabetes team is what many of us experience (my last appointment was by phone about 14 months ago and I am still waiting for my next appointment), it does not mean it is the right amount for you. If you need assistance either physically or mentally for your health, you need it.

Take care.
Bless you! No, sadly it was the end of the honeymoon period at that point.

It was a huge dip and change. It decreased fore fold and bit by bit over the course of the next year - swimming daily and eating super healthily- I regained some decent tolerance.

I haven’t been in the mood since moving etc to live so healthy. Kind of lost my mojo entirely and it’s stopping me from living somewhat.

I am concerned as it puts the average daily things out of reach, like eating out, or driving. With doses so high I am often having to break down the injections to stay safe. So injecting a lot everyday, as not just the dosage but the amount of times.

I was on a date just the other night, and ended up having constant low blood. Was a disaster and inevitably messed the date up.

While I get I can split an injection if I am having to inject like 10-15, but gosh it can be dangerous.

So many things feel out of reach. Unachievable and the reality is I am not living much of a life at all.

No worries! I am trying to find a balance with my doctor currently. You too x
 
Hi and welcome from me too.

Really sorry to hear you are going through such a tough time but so pleased you have found the forum as it really is a goldmine of support and advice and knowledge and comradeship that you can tap into any time, so in many respects far better than the clinic because we are here every day if you need us and we understand the frustrations and idiosyncrasies that diabetes throws at us every day. I have learned far more from the good people here than I have from any nurse or consultant but most importantly, the people here understand the psychological impact of it all and just knowing that people here have been there and come out the other side really helps you to keep going.

It seems that perhaps you have fallen victim to your previous really excellent results and are not coping because you are unable to maintain that level at the moment, because other things in your life are taking more of your time and effort and understandably causing you stress. Most of us could not hope for an HbA1c of 4.8 which appears to be 29mmol/mol and would certainly not aim for it, so I think you are probably just putting far too much pressure on yourself. These days most of us go by Time in Range rather than HbA1c as it gives a better picture of how you are doing. A low HbA1c may mean that you are hypo far too much of the time, whereas your TIR will show how much time you spend hypo. I am absolutely not saying this is the case for you but I certainly hypo far too often even if I aim for mid 40s and I have really good management with TIR usually in the 90s and my consultant is delighted with that although I speak to him once in a blue moon on the phone. We are all different and our diabetes and bodies and insulin and the foods we eat and the exercise we take, all affects that. You have to work with where you are now, not how fantastic things were before and accept that you have other priorities in your life at the moment so really just keeping your head above water with your diabetes management is good enough for now. As @Inka says, cut yourself some slack and lower your expectations. Once you have settled in and found your feet a bit in your new life, then you may want to devote a bit more time to improving your management again but you may have to accept that your previous amazing HbA1c results were a one off. Life is for living, not getting the absolutely best diabetes results you can.

I would guess that it is the lack of exercise which is probably bumping up your insulin needs at the moment.... and probably stress too. I am trying to push myself into getting back to daily exercise and even in just 4 days, my basal requirements have come down 7.5 units and bolus also reduced, so exercise can have a huge impact on how much insulin you need and if you were exercising regularly before and are not now, which is entirely understandable in your current situation, then it is totally expected that your doses and ratios will go up. The thing is that you can get them down again when you have the time and energy to start exercising again. In the meantime, you need what you need and you are clearly very capable of adjusting your doses and ratios to balance things, so in reality, you are doing great because you are adjusting things to manage your current situation. You just need to cut yourself some slack and accept that this is all part of the diabetes journey. Nothing is forever. You get good patches of management and rough patches. Enjoy the smooth waters where you can and learn to doggy paddle the rough bits until yoiu get into smooth waters again. If there is one thing I have learned about diabetes (and mental health for that matter) it is that if you hang in there and do whatever you need to do to keep your head above water, it will all come right again sooner or later.

Really hoping that there is some smoother water for you just round the corner.
Thank you lovely. I agree. I am desperate to try and find space and time to exercise again.

Still a little scared since my seizure and have let life take over and get on top of me.

I wish. I get life it for living but sadly I am working 60+ hour weeks, a part time single parent and just can’t find a place or happiness currently. I will refind it I sure. But feel like I have a lot of work todo. It’s all good!

Thanks for the kind words x
 
Are you perhaps staying up a bit late and dwelling on things?
I am not at all in your situation, but I had fallen into the habit of staying up late into the night.
I went off on holiday at the beginning of August and found that I did not have anything to do late at night. I was in my camper van, so went off to the quiet spot where I was staying overnight and settled down, went to bed early and slept until I woke naturally.
It has made such a difference to how I feel about the problems I have. I still have them - but they seem far less threatening now. It is a bit of a struggle to maintain an early bed time, and I don't always succeed, but I am maintaining the optimism fairly well.
No! But thank you. I am working far too hard and barley have a moment to myself. But due to my hours, I am almost always in bed early x
 
Hi @Tori-Hermione

I am so pleased that you have found the forum. As @everydayupsanddowns mentioned I went through a period of burnout, during which I had set myself totally unrealistic targets, and I was having far too many hypos in an attempt to keep far too tight control. I certainly found getting a more realistic perspective of what was possible and more important sensible from others on here helped me.

We are having a meet up in Taunton which is not far for you if you fancy meeting some others on the forum in person. Chat spreads wider than just diabetes but it might help for you to be able to ask some questions face to face, and have a good lunch too. (Have a look at SW meet up 3 Sep in the General message - I hope this link works).


Tap into the experience on here, have a rant, ask questions. No one minds.
Realised I didn’t say thank you, the week has flown away with me.

They reviewed my libre over the phone with a DSN and she is suggesting my hypos are very low %.

I will have to start notating my libre to be able to show, but the main advice given was to stop breaking down my injections to control or adjust.

Appreciated and thank you for the offer. Yes, sounds so silly. I have only randomly bumped into a few diabetic’s in the last 3 years so have never been able to ask questions.

I will have a look ☺️ thank you x
 
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Just wanted to say a last thank you. I got to the doctors on Tuesday, and spoke to a DSN yesterday but neither was able to offer any advice. The doctor deferring to the diabetes team. And the diabetes team offering me either a nurse appointment in 6-8 weeks or a dietician to review the variance in my ratios.

The variance that I am experiencing is barely noticeable due to my decent control. Which is the problem I have faced now for the last 6 months.

Burst into tears on the call as I seem to have to fight for people just to hear me.

So, back to square one again, and will just have to make the changes alone, which is what has been causing the problems.

I found an older forum post from 2013 with a young guy having the same variance issue as me and has been suffering with it as long as I have. Also tightly controlled so the specialists couldn’t see it in the trend varying daily from 16:1 to 5:1 with no rhyme of reason.

They also do not think it is the end of my honeymoon period I am afraid.

While the chats have helped, nothing has changed really, and back to the start again which has been my experience since arriving in Devon.

The doctor has admitted that they should have referred me to the DSN on arrival and I feel through the gaps but otherwise no support.
 
@Tori-Hermione At least you’ve been able to speak to people. That’s good. My advice is to simplify as I said earlier, but equally importantly relax your control a bit. To be clear, I’m not saying that you should be walking around with blood sugars of 20, I mean a tiny ease-off on the pedal. Bluntly, there’s no need for your HbA1C to be 4.8% (29). You won’t be improving your risk of getting complications anymore than if your HbA1C was 40. So, by easing off, I mean not worrying about reasonable spikes after food, not correcting numbers that are in range, not worrying if you wake up and your blood sugar is 7.7. That kind of thing.

When I had severe burnout, I was lucky enough that the stress (and boy was I stressed!) didn’t affect my sugars too much, but it seems like all the stress you’ve got at the moment with the move and your work on top of the diabetes, might be contributing. So, easing off on the pedal should help that too.

Don’t worry about your changing ratios. You’ve spoken to medical people and no-one has suggested the cause is anything sinister or anything. It’s ok. It’s what Type 1 does. Sometimes there’s no rhyme or reason to it. It won’t be permanent. My ratios have changed over the years: gone higher, then lower, then higher, then lower - you get the idea!

Another thing I’d do is write a list of what your issues are. I don’t mean a long exhaustive list. I mean the main things that are getting to you. Separate those things out and write them down with a bit of detail, then add an explanation of why they’re getting to you.
 
Hi again @Tori-Hermione

I am glad that your Libre data has been reviewed by a DSN And that they are not worried about your percentage of hypos. The difficulty I found was getting to position with me being happy with the data I was getting.

It is us that has to manage things day by day and we have to find reasonable expectations, which will be different for each of us. It took me a long while (a few years) before I was comfortable with accepting levels between 4 and 10 being okay, and it was others on here and seeing others just living with it that helped me.

The honeymoon period is a pest as it makes things unpredictable but that is also part of T1, and as @Inka has said our ratios change over time. Mi change mine with the seasons, so dint worry if they go up, they may well come down again, stay the same or go up further. That is anot a measure of how well we are each doing. We each just need what we need.

Tap into the support available on here. It can be invaluable. Also keep pushing for local support, and be honest with how you feel about your diabetes. The DSNs do, in general, understand that we each have a difficult job.
 
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