Student Nurse looking for help!

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Ignorant people who think T2s who now take insulin, must therefore now be T1s. (this often includes the PWD themselves)

TBH I really think that since I've had a pump, people I've met have been far better educated - I'm very upfront about it - we are naturists (- and therefore already 'peculiar' in the eyes of many LOL) so to see me on holiday and eyeball my cannula, my tubing and my pump on a lanyard round my neck when I walk past them or vice versa - can be a bit of a shock LOL But they get the picture that this IS 24/7/365 much, much more easily than when I used to inject discreetly - or in private usually when it was my basal late at night or early morning.
 
... And the friend who is a medic who said I must be a 'brittle diabetic' because I test so often!!,!,
 
I have fortunately rarely had the "you can't eat that" reaction when having a careless Wispa, but I stopped doing meals with my friend William because he has the opposite problem, of believing that no meal is complete without potatoes. 🙄 (He probably believes in the "balanced diet" myth; he certainly believes that drinking a lot of water will somehow protect him from the consequences of his smoking.:confused:) Still, he also reckons that I suffer the mythical "mild" diabetes. 🙄
 
My mum always told me that I'd got diabetes because I ate too many sweets and totally ignored the fact my father and her own brother also had type 2 diabetes. It also gets to me when people say you need sugar in your tea and coffee so you don't go too low.
 
Very annoying when healthcare professionals say a person is being 'obsessive' if they test their levels more than 3 times a day! 😱
 
Very annoying when healthcare professionals say a person is being 'obsessive' if they test their levels more than 3 times a day! 😱
I had this when I was very first diagnosed, and on diet control. I sometimes tested frequently to figure out which foods affected me, and was told it was over the top, bordering on obsessive behaviour :-/
Luckily I have a fantastic health care team now, but my first couple of years of diagnosis I received, what I can now see, was atrocious care. Including, at diagnosis, being told I had an average of 20 years to live with this condition :confused:
And now I have white coat syndrome...
 
Very annoying when healthcare professionals say a person is being 'obsessive' if they test their levels more than 3 times a day! 😱

Good one, also when the health care professional is a dictator and tells you to do as they say, not what is right for the individual.
 
Whilst having diabetes is perfectly manageable, no-one, unless you've got it yourself, fully knows the complexities of dealing with it day in day out. Yes, this all becomes second nature and from the outside this can seem like (speaking from my own point of view) take your insulin, eat something, check your blood occasionally - what's so difficult about that? Well it can look straightforward but there are all the other things going on behind that with calculations, adjustments, exercise etc to make it look straightforward. It's not anyone's fault they think like that and as I say it is manageable it's just a lot more involved than it looks.

As an anecdote a year after being diagnosed I went to stay on holiday at my Uncle and Aunt's house overseas. My Uncle told me he had recently been diagnosed with high blood pressure and had been told to cut down on salt. He said "I've got to cut out salt and you've got to cut out sugar!" Er, well it's a bit more involved than that.
 
"Are you a type 1 diabetic because you ate too,much sugar as a child ? "
Errr no .
 
"You must have eaten too many sweets when you were little"
"Are you allowed to eat that?!"
"No you can't have that chocolate, you're diabetic!"
"I could never do what you do" (referring to injecting) - me: "well I have to..." - "no I really couldn't, I'd rather die"
"Oh low blood sugar is when you go all flakey and have a hissy fit, isn't it?"
 
Also had a GP who refused to prescribe me test strips. She rang me to tell me this (day before I flew to the US for 3 weeks) and we basically had an argument about it: "but you shouldn't be testing more than once per day!" "I'm TYPE ONE! I need to know my BG level to calculate my bolus!" "I'm a doctor and I don't know any other patient who tests more than once per day!!!"

Grrr...

Also I feel that type 2s should also be allowed to test more than once per day!
 
Last time I saw my (relatively new) GP she said "You're testing, what, twice a day?" which left me a bit flabbergasted. She knows I have loads of hypos, sometimes several in one day, so how on earth she thought I could keep a check on this with as few as 2 tests per day, I don't know. Even if I had perfect control and never had a hypo I'd still be testing four times a day so I knew how much to inject!

Family/friends have generally been pretty good, but my partner's Mum shocked me when we met up in a cafe recently and I was trying to do the maths so I could eat a cake. She is hopeless at maths so she wasn't really following the conversation and I think she'd got a bit bored with it - "oh, just eat it" she said, as if I could decide not to inject just that time because it didn't happen to be convenient at that moment 🙄

Generally speaking the worst misconceptions have come from medical professionals though. I doubt I could remember all of them to list, but the one that stands out is the occasion when we were on holiday staying in a cottage in the middle of nowhere and, having injected for dinner, my other medical condition kicked in and made it impossible for me to eat - couldn't chew, couldn't swallow anything solid. The only thing I could think of was to drink lots of sugary tea to offset the 5 units of Novorapid I'd injected, but I'd stupidly forgotten to pack carb counting lists (I have a very limited diet so I normally know all the carb details I need). It was too late to ring my DSN, so the only thing we could do was ring the number for emergency doctor.

First I spoke to a nurse, who, when she realised I was diagnosed in my 40s and was telling her I had type 1, said, in a patronising voice "oh you mean type 2". No, I mean type 1. Thankfully got her to believe I did actually know what type I have. Then, I explained that all I wanted to know was how many grams of carbs there are in a spoonful of sugar so I could make the right amount of sugary tea, but she said, still patronising, but now also horrified "but you can't do that, that's a hypo treatment, you can only have that if you're hypo". Well, I'd only had diabetes for a few months, but I knew she was wrong, but it was all she had to offer, so this left me exactly where I'd started. Thankfully (!) I was so stressed by this time my bgl was actually going up rather than down. About three hours later the emergency doctor rang back and, although my bgl was around 13 by this point, his contribution was to tell me that I should not have my basal injection when I went to bed that night because otherwise I'd hypo in the night. I was pretty sure this was wrong too, and I tried to explain the difference between basal and bolus, but there was no arguing with him, so I thought I had better do what he said as he was, after all, a doctor, and perhaps he knew something I didn't. He didn't. My bgls remained high for the whole of the rest of the fortnight's holiday. My DSN, when I got back and told her the advice I'd been given, was horrified.
 
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