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Struggling?

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This thread is now closed. Please contact Anna DUK, Ieva DUK or everydayupsanddowns if you would like it re-opened.
Kee your Chin up Katie Trust us all here your not alone 🙂🙂🙂 Have a great day tommr for your Mums Birthday nad enjoy yourself what ever your doing with her
xx
Marie
 
imtrying said:
Hi everyone.

I feel bad posting this today, after reading so many positive and inspirational posts today, but I'm just getting very close to struggling.

I wrote a long post but felt like it was too negative, so I've written a blog post instead (http://charltonangel.blogspot.com/2012/03/when-does-it-stop.html)

This is some of it.

Right now, I just feel like I'm lost. The more I try to manage my diabetes, the more problems I seem to have. As soon as I 'fix' one problem, another one emerges. I still haven't heard any news about the pump, but I know I just need to be patient...but that emotional rollercoaster isn't helping.

I'm fed up with testing ALL the time.
I'm fed up with all the injections, and adjustment injections.
I'm fed up with having to inject my basal twice a day.
I'm fed up with not being able to just eat, without having to numerically analyse it.
I'm fed up with having to test and make sure my levels are at a certain number before driving...TWICE a day!
I'm fed up with hypos before I go to bed, making me sleep deprived,
I'm fed up with hypos or highs at inconvenient times that stop or delay me doing something. I'm just plain fed up.

For once I'd like to get up, without having to think about anything more than getting dressed.
I'd like to just eat, just because I was hungry, with no other thought.
I'd like to just get in my car and drive.
I'd like to just decide to go to bed...and that it could just be so, without a blood test, adjustment dose, and then a basal injection.
I'd like to be able to leave the house with just my keys and phone...without checking I have my blood test kit, that I have enough strips, that I've got my injection, spare needles, spare cartridges, fast acting sugar for hypos, slow releasing carbs for recovery and a book to record it all down in.

Sorry for this being so negative. I'm sure I'll pick myself up soon enough, but jsut feeling a litte deflated at the moment.
Click to expand...

I have been feeling exactly the same as you. Ive now had T1 6 months and its the testing continuously, you cant just go to bed or wake up when you want, you cant just eat out without thinking about the time and the contents of the food. I pushed myself to hard at work yesterday just trying to fit one more job in and had a hypo so even my work output can be affected. Its there in every corner of your life. But for every bad day I have many good ones. I also have a much bigger bag when I go out-nipping out for a paper takes planning and packing!!! Keep strong and have a great wknd.
 
it has helped me as a t1 of twelve years who has days like this to know it isnt just me..... i dont feel like it all the time but just sometimes i wish i could go one day without it all
 
Marier said:
Kee your Chin up Katie Trust us all here your not alone Have a great day tommr for your Mums Birthday nad enjoy yourself what ever your doing with her
xx
Marie
Click to expand...

Thanks Marie. And had a great time for my mums birthday 🙂

eeyore said:
I have been feeling exactly the same as you. Ive now had T1 6 months and its the testing continuously, you cant just go to bed or wake up when you want, you cant just eat out without thinking about the time and the contents of the food. I pushed myself to hard at work yesterday just trying to fit one more job in and had a hypo so even my work output can be affected. Its there in every corner of your life. But for every bad day I have many good ones. I also have a much bigger bag when I go out-nipping out for a paper takes planning and packing!!! Keep strong and have a great wknd.
Click to expand...

You'll get there, and like you say, the good days outweigh the bad! Last week was just a bad couple of days, that needed to be shared! 🙂 Feeling much better now. Thanks.

Medusa said:
it has helped me as a t1 of twelve years who has days like this to know it isnt just me..... i dont feel like it all the time but just sometimes i wish i could go one day without it all
Click to expand...

Thanks Medusa. I knew I couldn't be alone, but I've been touched by how many people related to what I said. Sometimes you do feel like it's just you. And strangely it helps to know you're not alone.
 
I get fed up by it all sometimes and I dont have as much to deal with as you I'm on meds not insulin. I dont blame you for how you feel at all, and your post potrays the reality of what its like day to day. Tomorrows a new day and hopefully you will feel better again x
 
imtrying said:
Hi everyone.

I feel bad posting this today, after reading so many positive and inspirational posts today, but I'm just getting very close to struggling.

I wrote a long post but felt like it was too negative, so I've written a blog post instead (http://charltonangel.blogspot.com/2012/03/when-does-it-stop.html)

This is some of it.

Right now, I just feel like I'm lost. The more I try to manage my diabetes, the more problems I seem to have. As soon as I 'fix' one problem, another one emerges. I still haven't heard any news about the pump, but I know I just need to be patient...but that emotional rollercoaster isn't helping.

I'm fed up with testing ALL the time.
I'm fed up with all the injections, and adjustment injections.
I'm fed up with having to inject my basal twice a day.
I'm fed up with not being able to just eat, without having to numerically analyse it.
I'm fed up with having to test and make sure my levels are at a certain number before driving...TWICE a day!
I'm fed up with hypos before I go to bed, making me sleep deprived,
I'm fed up with hypos or highs at inconvenient times that stop or delay me doing something. I'm just plain fed up.

For once I'd like to get up, without having to think about anything more than getting dressed.
I'd like to just eat, just because I was hungry, with no other thought.
I'd like to just get in my car and drive.
I'd like to just decide to go to bed...and that it could just be so, without a blood test, adjustment dose, and then a basal injection.
I'd like to be able to leave the house with just my keys and phone...without checking I have my blood test kit, that I have enough strips, that I've got my injection, spare needles, spare cartridges, fast acting sugar for hypos, slow releasing carbs for recovery and a book to record it all down in.

Sorry for this being so negative. I'm sure I'll pick myself up soon enough, but jsut feeling a litte deflated at the moment.
Click to expand...


I've got an appointment with my Diabetic Consultant in 2 weeks time and I've got a very similar list to this as things I want to discuss as reasons to be considered for a pump.

I'd also add:

* I'm fed up with twice a week my BS shooting up over 14 FOR NO REASON just before bed - resulting in an adjusting injections and a 3am wake up to retest.
* I'd like to know why my BS can fall 5.5 units in an hour when all I'm doing is sitting watching TV that I'm not interested in.
* why once every 5 or 6 BS checks do I not get enough blood out of my finger.
 
Status
This thread is now closed. Please contact Anna DUK, Ieva DUK or everydayupsanddowns if you would like it re-opened.
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