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Strong Stomach required to read this

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AlisonM

AlisonM

Much missed Moderator
Relationship to Diabetes
Type 1.5 LADA
I had a dreadful night that ended up with me at A&E in the early hours. I was so sick - at both ends! And, in so much pain I could only scream. My brother called 999 and they carted off to the hospital.

They eventually gave me something to quell the nausea and I had x-rays taken which showed a mass in my stomach. It seems my digestive system has slowed so much that things aren't moving through as they should and a lump of undigested food has formed. They think it's caused by a form of neuropathy which has caused damage to the Vagus nerve. I'm to have further tests to establish the extent of the problem. They haven't said 'Gastroparesis' yet, but that's what it must be I reckon going by what others have said on here. It could explain, at least in part, why my numbers have been so erratic.

I will need surgery to remove the mass and may require a more restrictive diet to ease future problems. I've been having difficulties for a while but had put it down to the medications, last night though, was the worst I've ever had. I'm in hospital at the moment waiting for the op which may not happen till Monday. They said, if they get busy, they might have to send me home.

Dr S was in visiting someone and stopped by to give me a row for not telling him I was having plumbing problems... I thought I had, but maybe it was lost in among all the other symptoms, or I might have told Dr Idiot and she blanked it.

My brother brought my phone and laptop in so at least I can amuse myself on line while I wait. I'm still pretty uncomfortable and very tired as I've had little sleep. There's no peace in here and I can't seem to tune it all out.

I don't want this complication. It's too much, one too many and I don't think I can handle anything else. I've been crying on and off all day, feeling very sorry for myself. I've got a bad case of the why me's. I've been reading AJ's posts (and others) for ages now and growing more worried that it might be me too but still burying my head in the sand. Stupid, I know.
 
:(

I can't offer any advice, but I just wanted to give you a HUGE hug and tell you that everything will be ok. I will be thinking of you and hope that everything gets sorted out quickly.

Take care and please take time to look after yourself

Miss D x
 
Oh my dear friend, I am so sorry to hear this :( I hope that they are able to operate soon to at least ease the problem for now, and hopefully offer you some good options for the future. Take care, I will be thinking about you. {{{Ally}}}
 
So sorry to hear this Alison. Hope you're feeling more comfortable at least, and not in any pain.
 
Best wishes from me too, Alison, I hope it's all sorted soon xx
 
Hope all ends up ok for you eventually. Sounds like it could be a long haul.
 
Sorry to hear about this Alison, thinking of you, hope it's sorted very soon & you're on the road to a good recovery XX ((((((HUGS))))))
 
Alison I am so sorry that you are this ill BUT if it is gastroparesis - and it is like mine - then it is manageable. I always take my gastroparesis medication and, yes, there are bad days, but there are also very good days. I've just come back from a very lovely lunch and made the most of it by having two glasses of wine🙂 Gastroparesis IS scary but it doesn't have to be. The most important thing, if it is that, is to get the right consultant and the treatment that is right for you. Massive hugs. Please let me know if there is anything that I can do to help xxx
 
Alison

Sending you some gentle hugs & hope you get some rest & feel more comfortable.

If you are staying in could your brother pop into Boots & pick up some earplugs so at least you can block out some of the noise & hopefully get some sleep? You can get get soft ones you can sleep in. A friend at work uses them due to her husbands snoring!!

Take care
Lynne 🙂
 
Oh no, Alison, I am so sorry to hear what you are going through. I hope that the operation takes place sooner rather than later and wish you all the best. Take care. ((hugs))
 
PS the worst part for me with gastroparesis was knowing that there was something wrong but not getting it diagnosed and then, once it was diagnosed, waiting to get the right treatment. The icing on the cake was getting the pump but before that i was prepared to wake up at 3am to give myself an extra bolus.. I've learnt to manage it in my own way - i.e. I usually don't eat that much during the day and then have a "normal" dinner or, if I'm going out for lunch enjoy that, manage the BGs later and don't eat for the rest of the day. This works well for me even though the recommended diet is six small meals a day - personally for me that is not living. Just like with diabetes it is about experimenting. It is manageable but it is also scary until you get used to it - and then it just becomes part of normal life - some good and some not so good - ie just like life. Take care. You know where I am if you need me.
 
Thank you everyone, I don't know what I'd do without this place sometimes. You always give me a boost.

I'm still in a lot of discomfort and my numbers are all over the place, mostly because I'm not being allowed to control my diabetes for myself. I hate it when they take my meter and meds away. They are at least testing regularly, but seem reluctant to tell me the results unless I make a fuss.

I've been moved into a side room so I do at least have a bit of peace. I'm not allowed to eat anything, not that I'm actually hungry but have at least had some fortified juice which actually stayed down. I keep dozing off and then waking again when I try to move because it hurts and the tubes in my arm get tugged on. I have fierce indigestion at the moment too which I've been complaining about. The gastric bloke was here to talk about the operation which will be on Monday morning, he says it will be an endoscopy and the op shouldn't take long but they have to be careful because of the allergies. I've had bad reactions to anaesthesia in the past so I'll be very carefully monitored. If all is well I should be home on Tuesday or Wednesday. He also said, if I wasn't diabetic they'd be feeding me large quantities of coke which can apparently help dissolve these things. What does he think I am, an oyster producing a pearl?
 
Oh Alison, I'm sorry to hear your news.

But you are in the right place and they are planning on giving you the right treatment, whereas had you been in less pain they could potentially have fobbed you off telling you it was this that or the other and failing to diagnose it properly.

I hope they don't send you home before getting it sorted - possession of a hospital bed is 9 tenths of the battle !

(Anyway if they do, just ring 999 again ......)

Hope it gets sorted out quickly for you.
 
Keeping my fingers crossed that you can have a peaceful evening. I hope you can have some visitors to relieve the monotony over the weekend 🙂
 
Wishing you all the very best. You are a great support to so many here, so am hoping you feel buoyed by it coming right back at you. X
 
Adding my good wishes to everyone else's and hoping you have a speedy recovery xx
 
Hope you soon feel better Alison (((((((((hugs)))))))
 
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