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Still unsure on diagnosis... surley theres an easier soloution

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wirralass said:
Ah NOW I understand why @Kaylz has her meals at set times and worries if she doesn't eat on time. Thanks Benny for explaining this. You take care of yourself now.
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I'm not on the first regime that is mentioned here WL, my problem is trying to get my meals in without stacking insulin doses or still having active insulin when I go to bed so its not the same at all x
 
Any chance you can get yourself to the Diabetes Clinic at a local hospital? I did this when I was getting nowhere in the early days of diagnosis on the grounds that I urgently wanted advice. I was so lucky - I know - to see a sympathetic nurse and I had 2 appointments while they contacted my GP to request (or rather demand) a retrospective referral.

I had to really fight to be put on MDI as a mix was horrific as I HAD to eat to stop a hypo and couldn't do any physical work eg carry shopping and was thus putting weight on. Why do they insist MDI is the punishment for not being "a good girl" at the age of 69!!!
 
I think @Sammi87 has said on previous threads that they have been seen at the hospital, but that their treatment/classification was not changed.

Diagnosis is usually best done based on clinical factors, presentation and history, but can sometimes be helped with antibody tests to clarify things (though these are not 100% clear cut in themselves).

From what Sammi has said here, current treatment does not seem to be working, and we are naturally unsure about classification - but if I remember right, Sammi has already been to the hospital, which makes her situation all the more confusing.

When you went Sammi, did you say that you thought you were type 1 as originally diagnosed? What did they say?
 
Is it possible to request a second opinion at another hospital? I think that's the route I would be taking. I really hope you get some answers soon, you must be beyond fed up with it all. It's bad enough having this, without the extra stress of all these shenanigans :(
 
A few things. A negative GAD does not eliminate LADA but a c-peptide does help indicate how much insulin you are producing. I had mine done privately when I gave up with my nurse refusing to list me as T1 despite being thin and having seriously high BS. Fortunately my surgery had a super diabetic nurse and when she put me on insulin she went to MDI within a month. Be prepared to quote the NICE latest Diabetes T1 guidelines (Google them). Mixed insulin is no longer recommended as standard T1 treatment; also being thin at diagnosis is a likely indicator of being T1/LADA and not T2.
 
I had always thought that the presence of the GAD antibodies meant that you were definitely in the process of destroying your own beta cells, albeit unknowingly and unintentionally. Whether you are LADA or T1 is irrelevant, as you will need the insulin to keep your BG on target. Without the insulin it is impossible as demonstrated by your current BG levels.

I certainly would want to be seen at another hospital. Can you find out the quality of the Diabetes teams near you nd ask to go there? I would definitely not rely on any GP or Ractice nurse knowing how to manage this.
 
everydayupsanddowns said:
I think @Sammi87 has said on previous threads that they have been seen at the hospital, but that their treatment/classification was not changed.

Diagnosis is usually best done based on clinical factors, presentation and history, but can sometimes be helped with antibody tests to clarify things (though these are not 100% clear cut in themselves).

From what Sammi has said here, current treatment does not seem to be working, and we are naturally unsure about classification - but if I remember right, Sammi has already been to the hospital, which makes her situation all the more confusing.

When you went Sammi, did you say that you thought you were type 1 as originally diagnosed? What did they say?
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I did explain this on my visits to hospital each time i was told they didnt want to step on my drs toes then when i went in for surgury they were concerned as i had been nil by moith for over 12 hours yet was still 16.6 BM so on my discharge letter it was put that i need to get my diabetes controlled but that was all. I havnr had a c peptide test so perhaps this is the way forward. Its a 5 week wait to see my diabetic doctor currently. Apprently the diabetic clinic at the hospital wont see you without a gp referrel. Im not sure how true that is. Just feels like everyone wants to pass the buck and nobody wants to commit to anything really.
 
Sammi87 said:
...I had a GAD antibodies test yet had mixed answers about that at first **** nurse said none so type 2, other nurse said there are antibodies but its more likely type 2, dr then said could go either way but leaning more towards a conplicated form of type 2. Nobody seems to know...
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Do you have access to your test results online so you can see what the actual numbers where. One thing that generally annoys me is nurses making judgements on what they think is ok.

I had the GAD done many years ago. I was neither negative nor positive - but in the middle! How can this be you might ask? Well, every test has an error range. So a negative test may falsely show some GAD. It sounds fairly possible that you are in the same position - unfortunately. Did they do any other antibody tests at the same time?
 
Hi Sammi

Perhaps you could call the diabetes team at the hospital yourself. I'm sure they'll give you some advice, tell you how the system works and may even chase your gp from their end....its certainly worth a try!
 
Whatever the classification they have decided on @Sammi87, I think you need to be pressing for a proper flexible MDI regime, and some support so that you can adjust it yourself to get those BGs more in range.
 
I don't have enough knowledge to make comments on this Sammi other than 20s and 30s is far too high and must not go on long-term. I do hope you get this sorted soon. What a nightmare for you.

You say you cannot eat regularly due to your shifts. Have you spoken to your employers? Are they approachable? If you explained your situation would they let you have breaks so that you could eat. They do have a duty of care to you, although I know that is very easily said these days.

Have you any friends or family who could help by going along to hospital with you or to appointments?
 
No ive bot seen my results for myself so tgis is something i will enquire about. No other tests other then the hmb1c again dont know the results of this either. Im past aring what my employer thinks. They have shown no interest in my diagnosis. When i was signed off at first diagnosis i never even had a back to work meeting thwy have no idea.
 
Sammi87 said:
No ive bot seen my results for myself so tgis is something i will enquire about. No other tests other then the hmb1c again dont know the results of this either. Im past aring what my employer thinks. They have shown no interest in my diagnosis. When i was signed off at first diagnosis i never even had a back to work meeting thwy have no idea.
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For work I think I would be tempted to ask for a meeting regarding necessary adaptations, even if it is only allowing you time for the appointments we need each year, along with a home for your jelly babies.

For your results, that is what they are. Yours. When I phone my practice they usually just tell that there is no action required, then I ask for the actual results, the figures so that I can then decide what action I want to take. Just keep asking for the results.
 
I would say you should be able to see your results Sammi. When I went to my surgery about mine a couple of weeks back the GP turned the computer towards me and went through all mine with me being able to see them and question what they were and why.

Your employers sound pretty typical these days. When I retired from my NHS post after 21 yrs in the same Dept I did not even get an email, phone call, letter or anything. It was as though I never existed as far as the managers were concerned. Not to care about people's illnesses is so unfair though.
 
just been reading through all this again. I am afraid I cannot be a great deal of help as I don't know anything about all the different types of diabetes. The one thing I do know is that it is disgraceful the way you are being treated. It is no use seeing nurses, you need doctors. Could you ask your GP to send you to a diabetes consultant? Is there anyone you could take with you to help with the consultation with the GP as this is clearly very distressing for you. I have no idea how you are coping with all this and working as well.

I hope to hear that this is getting resolved. I wish I could help more but am completely stumped as to what to suggest.
 
My last visit to the GP was a promising one she has said she will refer me to the hospital diabetes team so now it' just a waiting game I guess to see if and when I get an appointment with them.
 
I have a hospital appointment with the diabetes team whoooooooooo!!
 
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