Still struggling to get things smoothed out..any tips?

[Sara Grice]

I'm having a hard time....I realy am, I need support and help but it's not gonna be available until Monday..

On top of everything
.my sensor had decides to just suddenly become super inaccurate after working fine a day....it just is refusing to come down, my actual levels have gone down to 10.1. But it's been stuck near 13 for hours.... why today

Just ignore the Libre and fingerprick @Sara Grice This is perfectly safe and will be more accurate. Remember, people only fingerpricked for decades.

I know you said you’re waiting for a therapy appointment. Do you have someone you can phone in that department to speak to? If not, could you phone your GP on Monday. This sounds more like an anxiety thing than the diabetes. Even ‘just’ the GP should be able to help you.

I honestly don't think people understand how terrified not having them makes me, my anxiety would make me fixate on fingre pricks instead, when I had to go without a sensor for the weekend I had to fight the urge to test my fingers every five minutes. I was a mess. I'm sure if I looked it up the death rate for type 1s was much higher before the sensors where a thing, but I don't want to check for sure because it would freak me out to much.

And in terms of therapy not much I can do other than wait, different medication was suggested by my gp doctor said considering my triggers are so specific (my diabetes, my health, stuff going wrong with the sensor) that doing that alongside therapy would be better s medication can't nessecerly give you coping skills (am already on trazodome btw)
But as an update, the sensor has fixed itself pretty well, I just needed a bit of patience but I was already stressed so it didn't help

 

[Inka]

I do understand @Sara Grice I don’t feel that same intense anxiety but I understand how you could. Even though I spent years and years just fingerpricking, I felt pretty anxious when there was a blip in my Dexcom delivery and I was without a sensor for two or three days. But, I reminded myself I’d been ok before and I set an alarm to check my blood sugar in the night just for reassurance. It was the night I worried about not the day so much.

Your body will alert you to impending hypos. It releases hormones like adrenaline that have a noticeable effect. There are other signs too. When I had my first hypo after diagnosis, I knew what it was even though I’d never had one before.

If the doctor has suggested different medication that might be better, you could maybe try a trial of it to see if it does help.

CGMs are great, but they should be your servants not your master. They should be ‘watching’ you in the background not at the forefront of your mind. I know you’re struggling with anxiety and you’re not alone, but keep faith that your anxiety will ease and that things will become easier with the emotional aspect of the Type 1 x

 

[Woodywoodpecker]

I honestly don't think people understand how terrified not having them makes me, my anxiety would make me fixate on fingre pricks instead, when I had to go without a sensor for the weekend I had to fight the urge to test my fingers every five minutes. I was a mess. I'm sure if I looked it up the death rate for type 1s was much higher before the sensors where a thing, but I don't want to check for sure because it would freak me out to much.

And in terms of therapy not much I can do other than wait, different medication was suggested by my gp doctor said considering my triggers are so specific (my diabetes, my health, stuff going wrong with the sensor) that doing that alongside therapy would be better s medication can't nessecerly give you coping skills (am already on trazodome btw)
But as an update, the sensor has fixed itself pretty well, I just needed a bit of patience but I was already stressed so it didn't help

Anxiety can also put your glucose up, did with me in the beginning. I eat 26 carbs most mornings but have to take 5-6 units off insulin to cover spike, as I’m in the honeymoon stage. Find hour to 2 hours later I need a snack. I wait 25 minutes before eat breakfast 10 rest off meals, some days I spike and some I don’t. I was very fixated on numbers, mad if I went high or low and stressing myself out trying to figure it out. I’m more relaxed now, and in time I’m sure you will be as well

 

[everydayupsanddowns]

And in terms of therapy not much I can do other than wait, different medication was suggested by my gp doctor said considering my triggers are so specific (my diabetes, my health, stuff going wrong with the sensor) that doing that alongside therapy would be better s medication can't nessecerly give you coping skills (am already on trazodome btw)
But as an update, the sensor has fixed itself pretty well, I just needed a bit of patience but I was already stressed so it didn't help

Sorry to hear you’ve been having a stressful time with your diabetes @Sara Grice

To reassure you, I don’t think there have been any large-scale studies into increased mortality in T1 specifically before sensor use was widespread. The widening of access is only very recent. T1 treatment options and screening programmes are improving all the time so improvements in life expectancy are part of a bigger picture than just sensors 🙂.

Sensors are great. And they can really help us keep an eye on how out levels are moving… But there’s a burden to that flow of data too. In some senses in my early years with diabetes it was easier to ‘leave it on the table’. I’d have a meal and dose for it… and then only really find out what had happened at the next mealtime several hours later (unless my own natural hypo warning signs fired in the meantime).

Glucose sensors are a brilliant servant, but can be a terrible master. And while it can be hugely helpful to check how things are going with a glance, we need to guard ourselves against becoming anxious and over-consumed by every wobble.

Hope things are a little easier for you today and through the next week.