• Please Remember: Members are only permitted to share their own experiences. Members are not qualified to give medical advice. Additionally, everyone manages their health differently. Please be respectful of other people's opinions about their own diabetes management.
  • We seem to be having technical difficulties with new user accounts. If you are trying to register please check your Spam or Junk folder for your confirmation email. If you still haven't received a confirmation email, please reach out to our support inbox: support.forum@diabetes.org.uk

Still in denial :/

Status
This thread is now closed. Please contact Anna DUK, Ieva DUK or everydayupsanddowns if you would like it re-opened.
V

Victoriaa12

New Member
I'm new to the forum but I am just wondering if anyone has any advice for me. I am 25 and have been diagnosed type 1 for about 5 years now but I just can't seem to regulate my blood sugar levels, they are always running high and I find myself often not taking insulin because of it I just give up, I can't seem to get it into my head that I have this disease and have to make peace with it.
 
Hello Victoriaa

Welcome to the forum!

Sorry to hear you have been struggling to accept your Diabetes. You and I were diagnosed at a similar age, and it does come as a shock.

You need to speak to our clinic about how you are feeling - they should be able to refer you to some extra support to deal with the emotional side of your diagnosis.

Have you had a chance to go on a structured education course to help you manage your diabetes?
 
I did the DAFNE course last year and found it did help at the start, by I started to get lazy with it and totally fell away from it. I'm embarrassed to tell my nurse at the clinic because I know it's my own fault and it's only myself that can change it
 
Victoriaa12 said:
I did the DAFNE course last year and found it did help at the start, by I started to get lazy with it and totally fell away from it. I'm embarrassed to tell my nurse at the clinic because I know it's my own fault and it's only myself that can change it
Click to expand...
Clinic nurses see people who have fallen off the cart all the time. It's part of their job to roll their sleeves up and help you back on, but if you don't tell them, they won't know.
 
I'm with Robin, DSN 's are used to seeing patients having a rough time, they will help you to put the wheels back on the cart, so to speak. Also, there may be psychological assistance to help you face it.
 
I agree I went through a bad patch where it seemed a struggle but talking to the DSN has helped am gonna be going to dafne course next week hoping to get on the pump as I have to many low levels and have no hypo unawareness
 
Hiya Victoria and welcome.🙂 Don't blame yourself - diabetes is HARD work. Definitely talk to your DSN. He/she can help you develop the skills and mindset to tackle your problems with diabetes. 🙂

I struggled for about five years too, but then I found this forum and started to feel less isolated and more able to look after myself...so don't be a stranger!😛
 
Welcome to this forum and well done for making such a big step. Once you have seen your diabetic specialist nurse then there is so much support here to keep you going. You can look at the thread what people are eating for ideas and can post your waking number and get support from others each morning.
Every day is a new beginning and you can can make changes today, you deserve support and help whatever has happened in the past.
 
Hello and welcome @Victoriaa12 🙂

Diabetes is a tough job with all the other aspects of growing up, getting a job etc and we all go through difficult times with it. Please don't be hard on yourself. We all need help to manage our diabetes and asking for help is the best possible thing to do.

I struggled for years despairing that I could ever get reasonable control but it is doable. It takes time but the first step is to tell your DSN what problems you are having. They will want to help you out sooner rather than later so you can have a happy, healthy future. We get such a small amount of time with medics/DSNs compared to the majority of time spent self managing so the time we do get really needs to count and in order to get the best help they do need to know the challenges we are facing.

Don't despair, get in touch and ask for help and things will start to get better. Diabetes doesn't play ball nicely and a collective approach to dealing with it goes a long way. I wish you well. Please let us know how things go because you are certainly not alone in feeling like this. Good luck 🙂
 
Last edited:
I knew someone who was a DSN, she said that people do find it a struggle and a lot of people don't take it seriously and have some nasty relapses before they do and others just take time to get their head around it and to get to grips with it.
They are there to help you and they know how alien and challenging it is for you.
Good luck, I hope you get some good help.
 
Hi Victoria,
After reading your post I couldn't help but leave a comment as it sounds so similar to my own situation.

I got diagnosed just under 6 years ago and I am also 25 years old. I have been in denial for pretty much all of that time despite having had 6 operations for abscesses as a result of it.

Recently I had a further abscess and for some reason this made things click. I managed to get my sugars down a lot and have been feeling so much better for it. That doesn't mean though that I don't still slip into that denial now and again!

If you want to talk at any time I would be happy to 🙂

Emma
 
Status
This thread is now closed. Please contact Anna DUK, Ieva DUK or everydayupsanddowns if you would like it re-opened.
Back
Top