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Steroids

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Yorkieiron

New Member
Relationship to Diabetes
Type 2
Hi
Primarily my biggest health issue is that I suffer from severe asthma for which I take a cocktail of medication including steroids which I have taken continuously for 7 years. About 3 years ago I was told that the steroids had given me diabetes and I was given metformin, then glimepiride but neither helped get things under control and was finally given an insulin pen, humalog, which I take at the same time as my evening meal, it was found that a daily low dose of 8 kept things pretty much under control despite my steroids ranging from 20 to 40 mg daily.
However I recently suffered a bad asthma attack which resulted in an hospital admission onto HDU for a few weeks which resulted in my steroids (prenisolone) increasing to 60mg and salbutamol nebs every 2 hours. This resulted in my bloods going all over the place, suffering from hypo's (readings circa 2.5 to 3.5) over night and early morning, then increasing rapidly throughout the day and by mid afternoon / early evening to circa 20, probably due to taking the steroids in the morning. I then took the insulin with my evening meal and it dropped back to something like normal. The diabetes team came to see me in hospital and intended to put me on a slower acting insulin and take it once with my steroids and then depending on what my readings were in the evening take it again or if the readings were high to take the humalog. However before this happened I was discharged.
Two weeks have passed and despite seeing my GP who was not prepared to alter anything and made he an appointment for March with my diabetes nurse (she is currently on leave and there is nobody covering for her).
My asthma is steadily improving and the steroids are down to 40 but the diabetes is still a mess, predominantly following the same pattern with the odd hypo thrown in during the day which I can't explain.
Hardly a day has gone by without at least 1 hypo / low readings per day and at least 1 reading over 20 per day. This is really taking its toll now, I am struggling to concentrate, totally shattered, not sleeping well, headaches and always feeling light headed (probably a combination of the salbutamol nebs and the blood sugar)
Sorry for the moan but I getting very down with everything, even when my asthma is bad I feel in control, I consider myself a bit of an asthma expert and also have good support from my asthma consultant and nurses at the hospital. However I am out of my comfort zone with the diabetes and don't know where to turn. Any help / advice would be appreciated and I apologise if any of the phrases or terms that I have used aren't correct.

Moan over!

Mark
 
Welcome to the forum yorkieiron. March is too far ahead for an appointment in your situation. It sounds like the nurse you are waiting to see is connected to your GP's surgery? If so, can you contact anyone from the hospital diabetes team?
 
Welcome.
I know you said you were discharged before the hospital team could sort you out. Did they give you any information how to contact them , it might be worth giving them a call .
 
I know that the hospital diabetes team didn't want to rush into changing things as the initial hope was that once the steroids were reduced slightly then hopefully the bloods would behave, upon discharge they told me to speak to my own diabetes team at the GP surgery, however this has not been possible and despite reducing the steroids the bloods still aren't behaving. I have now spoken to my GP surgery again this evening and told them that I need to see somebody pretty urgently and can't wait until March. I now have an appointment with a doctor in the morning, if they can't help I am going ask if they can refer me to the diabetes team at the hospital as an out patient, the only worry is that may take a while to get an appointment.
Feeling very frustrated, I am desperate to get back to work as the asthma is improving but if I can't get the bloods under control there is no chance of driving (I have a 60 mile drive to work).
 
I know that the hospital diabetes team didn't want to rush into changing things as the initial hope was that once the steroids were reduced slightly then hopefully the bloods would behave, upon discharge they told me to speak to my own diabetes team at the GP surgery, however this has not been possible and despite reducing the steroids the bloods still aren't behaving. I have now spoken to my GP surgery again this evening and told them that I need to see somebody pretty urgently and can't wait until March. I now have an appointment with a doctor in the morning, if they can't help I am going ask if they can refer me to the diabetes team at the hospital as an out patient, the only worry is that may take a while to get an appointment.
Feeling very frustrated, I am desperate to get back to work as the asthma is improving but if I can't get the bloods under control there is no chance of driving (I have a 60 mile drive to work).
Good luck. Maybes they could ring for advice on your behalf.
 
I was going to suggest you ask the hospital asthma team - who you have contact details for - to tell them you're struggling and need EXPERT advice, and can they put a word in with the hospital D team for you, please?

If your doc agrees to refer you, let that happen and check back with the surgery to make sure it's been sent - THEN ring the Asthma crew and ask what I suggested, to stress to the D team that they DO need to get you seen asap.
 
If it's any help to you at all ............. When pred is taken in the morning the impact of the steroid hits at around 12 noon. Thus in my own experience I need to bump my insulin up at around 10 AM so it hits the system at 12. The steroid then tappers off gradually through the day.
So it would be worth doing some hourly tests so you know exactly what is going on, then ring the hospital team and say this is what is happening also explain how your work and general health is being affected.
 
Welcome to the forum. I am sorry to hear that your asthma has been so bad and you are continually on steroids as I hate it when I have to take them as they make me feel so ill. I hope you get better soon and find the right solution to managing your asthma and diabetes together.
 
please can anyone help, I have been put on a short course of prednisolone, steroid, my blood sugar has shot up to 17.5, my usual reading is 8.o . I am type 2 , and the doctor did not warn my my blood sugar would be affected. I am on metformine, should I increase my dosage to bring my sugar down, I already restrict my diet, to sugar no bread no pasta or rice, anything with flour, no potatoes. today I felt very ill and fainted, could it be the blood sugar?
 
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