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Spoke to my nurse

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My thoughts on mixed insulins were reflective on my real opinions on them............whish is that they really are useless in this day and age......

You could test till your blue in the face, but you cant actually do anything about it because its only 2 a day jags........

I feel that posters are trying to say "go on MDI" and they would be right, but thats not the situation here.....

As I said, test at all the times Adrienne mentioned, so as to establish the behaviour of the sugars, then the tests can be relaxed because ultimately no action can be taken with mid injection test (apart from hypo resolve, but thats rule of thumb)
 
However much I dislike mixed insulins I don't agree that any team that uses them isn't good. I know of very good pro-pump teams that uses mixes for some children. It's about assessing each child and family and finding what will work best.

It's good that you have the support of your DSN and have trust in her. If you are struggling to give the 2 injections a day, then it might not be the right time to go onto MDI. MDI is better for most people but only if they are going to be getting all the injections.

I think it's a good idea to train someone at school to be able to test if Dylan feels low. If he needs to be tested everyday at school that is something that needes to be decided by yourself, DSN and school. Also ou need to think about how you will use that information if you are testing him more frequently.
 
One of the things that really baffles me about this blasted disease is the sheer number of treatments and regimes there are. What works for one, or might seem old hat to another, works beautifully for someone else. It's absolutely maddening. Wouldn't it be great if there were a 'one size fits all' treatment that all of us could rely on?
 
Hope MrsBoyle is ok not seen her about since this thread went awry.
 
Dear Mrs Boyle- Hope you have a lovely weekend- try not to worry about all the different opinions- people are only trying to help. Take care and best wishes Sheenax🙂
 
I really do Appreciate everyones reply's and so far everyone seems to be right about this insulin. and i cant just do his bloods twice a day. since monday he has had at least one low a day.
Nurse is coming round again on monday afternoon.
 
Dear Mrs Boyle,

I'm so sorry that you & your son even have to think about these things... I'm trying to think back to when I was his age, but unfortunately I don't remember much except that mum used to take me home for lunch & test me before I ate - I know this isn't an option for everyone though. Feeling different due to having to eat at different times can be an issue, so I can see why you'd want to avoid that. I guess maybe later on, if Dylan's on mdi or a pump that won't be so difficult anyway, but if shifting things back time-wise works in the meanwhile, it makes sense! 🙂

Does Dylan hate his blood sugar checks? I remember hating them more than the injections, because they hurt & I couldn't see the point of them, ie a link between blood sugar level & how the injections worked. If he's anti blood sugar testing, have you tried any different lancet devices? I know my experience has been that some are more comfy than others... Also, bit of a weird one (& the docs/ bean counters might shoot me for suggesting this, but if it helps...), but have you tried asking him to check yours, before you do his? Sharing the pain might be a motivator?! (Sorry if that's a bit random!) Just trying to think what might help. Maybe your DSN could let you try some different ones, or I bet if you asked the companies that make them they'd give you one free, as they make the money off hte lancets... I have a 3 1/2 yr old boy, so I really, really feel for you having to go through this with him.

I know some of the posts on this thread have maybe got a bit heated, but I think it's because people do care... I guess the other mums can remember all too clearly how the early days are and I think those of us who have had it a long while & esp as kids & maybe have a few health niggles now are just really keen to see everyone get the best solution for them so they at least are ok! 🙂 All I can say is being the parent of a diabetic kid as young as yours must be incredibly difficult and stressful & it must be very hard to know what is best to do sometimes. I hope you know we all mean well & are routing for you both.

Thinking of you both,

Twitchy x
 
He is really good with his sugar tests i have said a few times about him testing mine and will not let me do it, says it will hurt me and only he needs it doing.

With the ways of holding him to do his insulin is much better on him now its so much faster.
 
Bless him, he sounds lovely...🙂 I've spoken to my sister, she's a pediatric nurse... she says that they were taught to & I quote: "let them practice on teddy bears & let them do it with you, ie help to hold the pen or dial it up. Also praise & reward for being so grown up. It needs to be treated as a normal daily thing & generally only hurts if they are stressed & think it's going to be painful" ... so much for the theory at least!! Now I think of it, I always wanted mum to do it not dad, as she seemed gentler somehow & he just seemed to be abit awkward & jab it in... not sure if that's cos she was a nurse though! Sorry that's not much help! I guess the thing to hold on to is that it will get easier for both of you with time... are you on the shortest needles you can get by the way? Just desperately scratching my head for ideas...
 
He has that rufus bear from JDRF and he does jab that.
We have tried every bribe going and it just doesnt work with Dylan. Its the same when potty training him if i bribed him with a biccy he wouldnt do it.

We use 5mm needles not sure if thats the shortest. When he first started on insulin the docs gave us the 8mm ones and he screamed the house down only new they was the wrong ones when the nurse came that afternoon and seen them in the kitchen.
 
Ouch! Can't believe the docs - such big needles for a little kid! Bet they were the only ones they had in the cupboard or something, but how dire they didn't think about it! My little lad's quite 'strong willed' too - he'll do something when he wants to, it's figuring out how to make him want to isn't it! 😉 Not easy! Are you in contact with any other diabetic kids locally?... Just wondering if he saw another kid his age who was a bit happier with injections having theirs calmly, if peer influence might help? Might be worth asking hte nurse on monday if she could put you in touch with someone from near by?
 
Just had an idea that might work - how about letting Dylan give stickers to adults whose injections "don't hurt me too much". Might let him have an element of input into the procedure (not that no injection is an option). I have had to give many intramuscular injections into children, usually post operative painkilling ones in hospital wards, tetanus injections in A&E and various immunisations in a travel clinic and usually asked child which arm / leg / buttock they'd prefer. Occasionally, children would say "that hurt, but not as much as I was expecting" or "not as much as when X did it", which is why the scoring system might work. IM injections are almost always more painful than subcutaneous like insulin, but usually one off or just for a few days, but still worth considering as a tactic?
 
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