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Spoke to my nurse

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This thread is now closed. Please contact Anna DUK, Ieva DUK or everydayupsanddowns if you would like it re-opened.
M

MrsBoyle

Well-Known Member
Relationship to Diabetes
Parent of person with diabetes
My husband rang her up this afternoon and she came straight round.
She has shown us how to do some ways to do the insulin and said he could be so up and down becuase i may of not been getting all the insulin in him.

Also said to try these ways for a week and see how things go.
she was really helpfull and made me feel so much better.
Im not to test his bloods alot unless i think i really need to.

She wants us to put all his meals and snacks later ready for school and said i dont need to worry about school i have 3 weeks and so left and she will do all that for me and if i really feel the need she will train school up for blood tests.

And if in a week there is still these highs and lows she will look at changing his insulin and talk about the pump she did say she wouldnt stop us from getting it if we really wanted to just wants us to try the new ways to inject.

And told me if i ever get like i did today just ring her up and she will come straight round again.
 
Hi - I dont wish to dismiss what your nurse has told you, but I think she is wrong. The reason why levels are all over the place is almost certainly due to the mixed insulin regime he is on. There could be a tiny chance that sometimes some insulin doesnt get in - but not every single day!

Most hospitals are phasing out mixed insuliins as they just dont work - for 99% of people.

Regarding school. Again I think your nurse is wrong. You should NOT have to make Dylan eat to suit the school timetable - ever. The only reason your nurse is saying this is because she probably doesnt want to ask them to inject him if you went onto MDI as lots of schools find this difficult to get volunteers to do the injection. It is not right that you should have to feed your child to make his life easier at school. School should be fitting in with Dylans regime - not the other way round.

Your nurse said she will train school to do blood tests 'if you really feel the need' - this is again very wrong. School should be testing Dylan throughout the day and as required. He should be tested before and after P.E. and for any other unscheduled exercise. What if he had a hypo at school and they didnt know how to test? I am quite shocked that this has been left so late in the day to sort out with school. You need to know that from day 1 - there is someone at school who understands the need for blood testing and what to do if he is either hypo or hyper - it is absolutely essential that they know this before he sets foot in the school.

I dont mean to burst your bubble at all - but your nurse seems very laid back about him starting school without having sorted out a care plan or whether there is anyone fully trained to be able to deal with him and make him safe whilst at school. I would not be happy to send my child to school under these circumstances as the 'plans' to keep him safe are not good enough in my opinion.

I would also want to be present at the training that your nurse gives to school as sometimes they can miss things out that seem obvious to them - but not to untrained people.

Sorry if I have misunderstood - its just that it appears that your nurse seems a bit laid back and she should not be advocating the idea that feeding your son up to make it convenient for school is acceptable. All schools are required to 'make reasonable adjustments' and this is covered in the DDA. Letting Dylan eat when he is hungry as opposed to when it fits in with school life is not making 'reasonable adjustments' at all and could be detremental to his long term health.🙂Bev
 
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Im really happy with the things she has said and he has been in that school for a year now so its not like he is starting a brand new school.
 
MrsBoyle said:
Im really happy with the things she has said and he has been in that school for a year now so its not like he is starting a brand new school.
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I hadnt realised that he was already in school - I thought he was just starting new in September. But surely the school already know how to do a blood test?🙂Bev
 
They have never done a blood test. and have treated him for a few hypos.
 
MrsBoyle said:
They have never done a blood test. and have treated him for a few hypos.
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Bit confused - so who does the blood test when he is hypo? Sorry if I have misunderstood you.🙂Bev
 
Mmmmm sorry have to say I agree with Bev wholeheartedly and I think that the info the nurse is giving you is bordering on dangerous. The worst bit is the less testing and only do it if you feel like it. I wonder how she would be if her child had type 1. I wonder if she has children ! Sorry but she is wrong on most points.

It is great however that she is giving you pointers on how to inject differently if it will help Dylan but that is all, in my view, that she has got right.

:(
 
Sorry to say but I feel like your picking on me for following the advice of a trained and experience healthcare professional.

What training do you have? What qualifications do you have?

No one child is the same, you can not go by what works for one, with the other as every child is different.

We never said we won’t change anything, or no to going on the pump. The nurse explained that the reason he is doing this and that and how we can go about. And recommended we try this first before changing anything which I agree with.

So unless you are a experience health care professional, you have no right to tell me or anyone how we should treat and care for our son.

School is 3 weeks away and how do we know that have no one trained? And if we can learn to test bloods in a few hours so can they.

Isn’t the idea to make Dylan feel the same as the other kids? If we can get things to work around the school and times then that is BETTER for Dylan. We should not go on what is best for us but what is best for Dylan.
 
Mrs Boyle, I'm really glad you have a nurse you can trust and who is giving appropriate advice and support, including explaining options for possible future treatment. Bimodal insulin regime does have an advantage of not needing injections during the school day - for some children / families / schools, that's important.
 
MrsBoyle said:
Sorry to say but I feel like your picking on me for following the advice of a trained and experience healthcare professional.

What training do you have? What qualifications do you have?

No one child is the same, you can not go by what works for one, with the other as every child is different.

We never said we won?t change anything, or no to going on the pump. The nurse explained that the reason he is doing this and that and how we can go about. And recommended we try this first before changing anything which I agree with.

So unless you are a experience health care professional, you have no right to tell me or anyone how we should treat and care for our son.

School is 3 weeks away and how do we know that have no one trained? And if we can learn to test bloods in a few hours so can they.

Isn?t the idea to make Dylan feel the same as the other kids? If we can get things to work around the school and times then that is BETTER for Dylan. We should not go on what is best for us but what is best for Dylan.
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Hi MrsBoyle - I'd just like to say that both Adrienne and Bev are pretty experienced at dealing with diabetes as both their kids have it, and Adrienne's little girl has been diagnosed since she was a baby. All they're doing is trying to help.

I have to say, I agree with them too. It sounds like your nurse is very laid back about it. Twice a day injections just don't work for 99.9% of people, and myself I remember being taken off them PDQ after being diagnosed because they were just...rubbish! I also have to say that the school have to make reasonable adjustments for your little boy, whether that is allowing him to eat when he is hungry, learn how to do the blood tests or the injections. If they don't do that then I hate to say it, but they could be putting your son in danger. Sorry if that seems a bit cut throat, but if your little one has a biiig hypo at school and no one does a blood test for him, what on earth could happen then?

I think you're a really brave lady for dealing with and learning about the injections and dealing with your son when he gets upset with the jabs, huuuge kudos to you with that. It just does really seem as though your nurse is a little too laid back when it comes down to it.
 
Stick with your nurses advice, thats all you can do........

the point that the others were trying to get accross is that if there is to be insulin changes, which there will be as you know, then there has to be lots of testing to investigate what effects its having on the blood sugars.

You will see this happen in time anyway......

Dont get worked up either, the forums are only peoples opinion on things, wether you agree or disagree......and the best qualification in these matters is actually having the condition, or like you and the others, caring for a child that cant learn these things themselves.....

Fingers crosses the new insulin calms the sugars down.....

Keep us posted.........
 
The school will do what they have to do for Dylan and have done but if we can get his snack fitting in with school so he can eat with everyone eles then thats what i want. He did not liek having to sit and eat his snacks before all the other children and that made him hate being diabetic if we can get it so he can eat with the other kids and he doesnt feel left out then thats what we want.

The school are happy to do blood tests if needed but if they cant tell he is having a hypo how do they no wen to test in the first place.

How he has been doing it at school where if he shows signs of a hypo they treat has worked for 6 months.
 
I agree, he is only a small child but I dont see why he could not recognise a hypo and alert a teacher..........

Then it can be treated as normal..........

I dont understand why he cant eat at the same time as everyone else....why is that MrsBoyle.......
 
MrsBoyle said:
The school will do what they have to do for Dylan and have done but if we can get his snack fitting in with school so he can eat with everyone eles then thats what i want. He did not liek having to sit and eat his snacks before all the other children and that made him hate being diabetic if we can get it so he can eat with the other kids and he doesnt feel left out then thats what we want.

The school are happy to do blood tests if needed but if they cant tell he is having a hypo how do they no wen to test in the first place.

How he has been doing it at school where if he shows signs of a hypo they treat has worked for 6 months.
Click to expand...

but as adrienne and bev say, they should really be testing him both before and after pe, and before he eats too as well as if he feels "funny" either low or high. What I think we're saying though is, sometimes hypos can creep up and be a little slow to show symptoms so testing should be done pretty regularly even if he isn't feeling hypo. Also, maybe he will feel hypo but not actually be hypo, which is why it's always important for them to test - if he's not hypo but feeling funny and they treat, that could potentially send your little one hyper instead 😱
 
novorapidboi26 said:
I agree, he is only a small child but I dont see why he could not recognise a hypo and alert a teacher..........

Then it can be treated as normal..........

I dont understand why he cant eat at the same time as everyone else....why is that MrsBoyle.......
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NRboi, I felt the same when I was first diagnosed, I didn't want to be treated as "different" - but I have to say that sometimes I HAD to. Like hypo's etc, I would just go and sit in the staff room and eat then. There are ways around it.

But as I said above, sometimes hypos can creep up and symptoms may be a little slow to kick in. This is why treating is so important.
 
He will be eating his snacks and lunch with all the other children.
 
If the doses are not correct, then yes testing should be done, because of the risk of hypos........

But on paper, with mixed insulin like Mixtard 30 you are only meant to test at injection times, breakfast and dinner, its old school, and wont last much longer I think........

But thats the problem here, the doses might not be right, the insulin might not be right, he might actually need MDI due to varying sensitivity.....

Unfotunately until these questions are answered, testing is the only way to be safe..........
 
So your saying teh school should do blood tests about 5 times in a day.maybe more
 
MrsBoyle said:
So your saying teh school should do blood tests about 5 times in a day.maybe more
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MrsBoyle, on MDI the average testing amount is 8-10 times a day sometimes more.

But I think you're right, if your little ones doses aren't right which may be the case on twice a day jabs, then they should be testing to make sure he's not going low or high. He should be tested before meals which you should know which at school is once right? As well as before any form of snack 🙂
 
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