Leanne-618
Member
- Relationship to Diabetes
- Parent of person with diabetes
Hi Everyone,
So this will be quite a story but I'll get there eventually:-
My son who is 6 (born Sep '09) has always wet the bed, always worn a pull up for bed and could wee at night anywhere between once - 5 times. Having tried to get him out of pull ups, I decided to take it up with the school nurse who then referred me to the continence clinic.
We got an appt in late Feb and I was told to chart down how many drinks he has in a day, how often he visits the toilet, etc. This was to be done for two weeks. I soon began to notice that his drinking was more than I thought it was but carried on charting it. His teacher also pointed out that he was visiting the toilet more frequent and so it began!!
Speed up a bit, I went back to clinic after two weeks and was given desmopressin for him. Once the tablet is taken at night there's no drinking for 8 hours. I then mentioned I would like him tested for diabetes as the amount of bed wetting was unreal (now a night change of pull-ups, two used a night, both full and bed soaking every morning!) and also his thirst was quite excessive.
So I've been to docs (18 Mar) and he has also agreed to test him, gives me a tube for urine sample and tells me to book blood test. His blood test gets booked for Thursday 31 March and that's that!
Now I thought I'd hand in his urine sample in around time of blood test however come Wednesday 23 March my son develops an ear infection, so I kill two birds with one stone and take him along for that and get doc to test his urine. ***This is where everything went in fast forward for me***
Doc tested his urine, full of ketones (really dark red), some protein and sugar. Then does his blood sugar which is 22. We got told to go straight into hospital as a matter of urgency (I really expected his urine to be fine and doctor to say everything was normal, so this was a massive shock).
Lots of tests done at hospital and turns out he has Type 1 diabetes. Had I not taken him for bed wetting and taken him for his ear on Wednesday the nurse said come this weekend he would have more than likely been rushed in seriously ill.
The consultant said my sons blood sugars must have been creeping up for a few months and in the last couple of weeks I've noticed his thirst and excessive trips to toilet and weight loss, that's when his blood sugars have been really getting too high.
So we're back home, my first day yesterday of giving insulin and doing bloods all day. He's on one shot of glargine and 3 shots of novo rapid. He's doing ok at letting me inject him but if I'm honest, I'm positive in front of him and when I get a chance to be alone I sob my heart out!
I know I will get there, I just wish it was me and not him. I feel like he's a pin cushion and hope that feeling will pass. It's also been a massive shock for myself, my son and my whole family.
His blood sugars are still quite varied, still quite high but I'm in touch with our DSN every day and shes changing his doses to get him down to a more normal level before teaching me about carbs.
If you've read this far , thank you very much. It's good to be able to get it all off my chest. If I've confused you anywhere, ask me a question and I'll reply. Any advice, or even just support at the moment will do wonders for me. I'm also trying to think of ways I can support my son more. He's really very bright and understands everything I'm doing but gets very scared when I'm doing his insulin injections, which is obviously normal at this point I'd imagine.
Anyway, I'll stop there and thanks for reading. I'm looking forward to being part of this community xx
So this will be quite a story but I'll get there eventually:-
My son who is 6 (born Sep '09) has always wet the bed, always worn a pull up for bed and could wee at night anywhere between once - 5 times. Having tried to get him out of pull ups, I decided to take it up with the school nurse who then referred me to the continence clinic.
We got an appt in late Feb and I was told to chart down how many drinks he has in a day, how often he visits the toilet, etc. This was to be done for two weeks. I soon began to notice that his drinking was more than I thought it was but carried on charting it. His teacher also pointed out that he was visiting the toilet more frequent and so it began!!
Speed up a bit, I went back to clinic after two weeks and was given desmopressin for him. Once the tablet is taken at night there's no drinking for 8 hours. I then mentioned I would like him tested for diabetes as the amount of bed wetting was unreal (now a night change of pull-ups, two used a night, both full and bed soaking every morning!) and also his thirst was quite excessive.
So I've been to docs (18 Mar) and he has also agreed to test him, gives me a tube for urine sample and tells me to book blood test. His blood test gets booked for Thursday 31 March and that's that!
Now I thought I'd hand in his urine sample in around time of blood test however come Wednesday 23 March my son develops an ear infection, so I kill two birds with one stone and take him along for that and get doc to test his urine. ***This is where everything went in fast forward for me***
Doc tested his urine, full of ketones (really dark red), some protein and sugar. Then does his blood sugar which is 22. We got told to go straight into hospital as a matter of urgency (I really expected his urine to be fine and doctor to say everything was normal, so this was a massive shock).
Lots of tests done at hospital and turns out he has Type 1 diabetes. Had I not taken him for bed wetting and taken him for his ear on Wednesday the nurse said come this weekend he would have more than likely been rushed in seriously ill.
The consultant said my sons blood sugars must have been creeping up for a few months and in the last couple of weeks I've noticed his thirst and excessive trips to toilet and weight loss, that's when his blood sugars have been really getting too high.
So we're back home, my first day yesterday of giving insulin and doing bloods all day. He's on one shot of glargine and 3 shots of novo rapid. He's doing ok at letting me inject him but if I'm honest, I'm positive in front of him and when I get a chance to be alone I sob my heart out!
I know I will get there, I just wish it was me and not him. I feel like he's a pin cushion and hope that feeling will pass. It's also been a massive shock for myself, my son and my whole family.
His blood sugars are still quite varied, still quite high but I'm in touch with our DSN every day and shes changing his doses to get him down to a more normal level before teaching me about carbs.
If you've read this far , thank you very much. It's good to be able to get it all off my chest. If I've confused you anywhere, ask me a question and I'll reply. Any advice, or even just support at the moment will do wonders for me. I'm also trying to think of ways I can support my son more. He's really very bright and understands everything I'm doing but gets very scared when I'm doing his insulin injections, which is obviously normal at this point I'd imagine.
Anyway, I'll stop there and thanks for reading. I'm looking forward to being part of this community xx
This is the second story we have heard in the past couple of days where a doctor has overlooked the possibility of Type 1 diabetes, given the symptoms, thank goodness you didn't just accept it! 
