Six months' experiences

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Thank you, Dodger and Vanessa. I'm most grateful for your contributions.

Indeed, my main problem is not physical, but psychological.

This is where I need, please, to hear the experiences of people who similarly have had to handle the crisis of being told, out of the blue, they're type 2.

How do you come to terms with the devastating news?

How do you come to believe that you are in control of your life as you were before?

Jean

Dear Jean,

I am trying to think back to the time (Jan 6th 1994 10am!) when I was diagnosed. I went through all the classical symptoms rejection, anger, denial etc. My way of coping with Diabetes was to immerse myself in the science behind this terrible disease we all share. To my surprise what I found was completely at odds with the advice I had been given by my diabetes team. The more I thought about it the crazier the advice seemed. Diabetes is a disease characterised by an inability to handle glucose (blood sugar). So what do DUK (Diabetes UK) tell us – eat plenty of starchy carbohydrates at each meal! They believe that we must eat at least 130gms of carbs each day. It sounds reasonable but for diabetics it's just plain wrong. Now, I started controlled carbing and the blood sugar readings became near normal within days and HbA1cs decreased with every successive test. It was this that solved my psychological problems. What I did was to set myself some goals and then achieve them! You have only been diagnosed for six months or so and have not had time to think things through. It took me three years to get to where I felt in control of my situation. I ditched the Metformin because the readings with it were much worse that those achieved by carbohydrate control. It may be of help for you to set some targets and then set about achieving them. Type 2 diabetes is indeed a progressive disease so the only thing we can do is slow down the progression to such an extent that it becomes irrelevant. If you want to ask any questions feel free -use PM (private mail) if you wish, we all want to get you through this phase of your condition.

Warmest Regards Dodger
 
... They believe that we must eat at least 130gms of carbs each day. It sounds reasonable but for diabetics it's just plain wrong....

A bit of a sweeping statement there, Dodger! What we can say is that there is no 'one size fits all' unfortunately as far as diabetes goes. It is up to each individual to experiment and determine the right balance for them. It's difficult when you are newly-diagnosed to discover that there are no hard and fast rules, only guidelines that we must adapt and tailor to find the best fit with our lifestyle and BG control. With time and patience, and the support of others, we will get there 🙂
 
Carbohydrate requirements

A bit of a sweeping statement there, Dodger! What we can say is that there is no 'one size fits all' unfortunately as far as diabetes goes. It is up to each individual to experiment and determine the right balance for them. It's difficult when you are newly-diagnosed to discover that there are no hard and fast rules, only guidelines that we must adapt and tailor to find the best fit with our lifestyle and BG control. With time and patience, and the support of others, we will get there 🙂

Dear Northerner,

It's not my sweeping statement, it's what the "Establishment" believes. Here is a link to the document - see Table S-2, Brain Glucose Utilisation

http://www.nap.edu/nap-cgi/report.cgi?record_id=10490&type=pdfxsum

Regards Dodger
 
I was referring to your statement that 'for diabetics it's plain wrong', Dodger, not the 130g.

Dear Northerner,

Sorry, I got the wrong end of the stick! However, I have posted previously on the subject. The traditional Inuit eat no carbs at all and I only eat about a 100gms per week, so at least for the Inuit and me they are wrong, seriously though, the science shows that the minimum amount of carbs needed per day is zero. The brain in fact works more efficiently on ketones.

Regards Dodger :D
 
Dear Northerner,

Sorry, I got the wrong end of the stick! However, I have posted previously on the subject. The traditional Inuit eat no carbs at all and I only eat about a 100gms per week, so at least for the Inuit and me they are wrong, seriously though, the science shows that the minimum amount of carbs needed per day is zero. The brain in fact works more efficiently on ketones.

Regards Dodger :D

YES BUT DODGER KETONES ARE DANGEROUS FOR A DIABETIC TO HAVE!!!!!!!! IT IS WHAT LEADS TO DKA!!!!! WHO EVERS RESEARCH YOU HAVE READ CONTAINING THIS IS VERY VERY WRONG!!!!!
 
YES BUT DODGER KETONES ARE DANGEROUS FOR A DIABETIC TO HAVE!!!!!!!! IT IS WHAT LEADS TO DKA!!!!! WHO EVERS RESEARCH YOU HAVE READ CONTAINING THIS IS VERY VERY WRONG!!!!!

Just to clarify - I think that ketones are dangerous chiefly to Type 1s, as the body is unable to process them correctly in the absence of insulin - this is why many Type 1s rapidly decline in health before diagnosis and often end up in hospital, Type 2 is quite different in this respect. This is not the case with most Type 2s, as they do produce their own insulin so the ketones do not build up and DKA is far less likely. Ketones are a by-product of burning fat for energy when there is insufficient glucose available or it can't be used by the body.

Apologies Jean, we appear to be moving off the topic of your original post somewhat. As you can see, there is no straightforward answer, unfortunately!
 
YES BUT DODGER KETONES ARE DANGEROUS FOR A DIABETIC TO HAVE!!!!!!!! IT IS WHAT LEADS TO DKA!!!!! WHO EVERS RESEARCH YOU HAVE READ CONTAINING THIS IS VERY VERY WRONG!!!!!
Dear Mike,

You have not disappointed me! I just knew that some type 1 would confuse diabetic ketoacidosis with dietary ketosis - they are not the same. For a start type 2s still produce insulin (unless the beta cells are completely destroyed) so although we are producing ketones there is no accompanying high sugar levels. Also, the level of ketones is typically 5% of that in ketoacidosis. Dietary ketosis is a normal condition ketoacidosis is not.

Regards Dodger

PS We are hijacking Jean's thread if you want to persue this we should start another thread or use PM
 
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Thank you, Dodger and Vanessa. I'm most grateful for your contributions.

Indeed, my main problem is not physical, but psychological.

This is where I need, please, to hear the experiences of people who similarly have had to handle the crisis of being told, out of the blue, they're type 2.

How do you come to terms with the devastating news?

How do you come to believe that you are in control of your life as you were before?

Jean

Hi Jean, like Vanessa, it's taken me a long time to work out what works best for me. I was diagnosed 2 years ago, at age 52, initially as a type 2. I was put on Metformin almost straight away. I was also diagnosed with hypothyroidism (underactive) at the same time. It was quite a shock because altho' I'd started to get some of the symptoms (thirsty and a recurring fungal infection, plus eyesight problems (now fine I didn't suspect diabetes. I improved my lifestyle, lost 2 1/2 stone and began exercising more (running and yoga alongside gardening - yoga is great I find, for coping with the psychological side of things for me and you can do it at any age, altho' you sound like you already have a good exercise regime.) Anyway, things improved a bit, but not enough and I was prescribed gliclazide alongside the Metformin. I was quite devastated about a year after diagnosis to be told I would need to go onto insulin. I felt that I had worked hard with diet and exercise and felt very guilty about any relapses I'd had with this regime - felt somehow I hadn't done enough (I had of course, and more!) Anyway now I have been on insulin for a year and control is much better and I feel much more positive, and it is becoming just part of life. It turns out that I am what's now called a type 1 1/2, but for all intents and purposes, the treatment and behavour is as type 1.

I think the thing that helped me psychologically is finding I can be in control with the help of medication, to a large extent, and I guess you must feel that everything is out of your control at the moment? I'm sure things will improve with time and as you learn more about how diabetes affects you as an individual and what works for you. I think Northerner's suggestion of getting a meter is a good start. Many companies will give these to you for free, but you need to get your GP to agree to prescribe test strips, or your surgery may give you a meter. Its early days and don't be hard on yourself 🙂
 
Hi Jean, I have moved the messages about Asian food to a new thread in the General messageboard, as the discussion may be useful to people there🙂
 
........Others have said that exercise is important, and indeed it is, but as an older person (I am almost 69) is is not always possible to do the amount that makes a significant difference to my blood sugar. Restricting carbohydrates works for me regardless of the amount of exercise I do..........
Dear Jean,

Further to your PM, I've been taking a look at your posts. I'm a non-insulin dependent Type 2 on metformin tablets.

I'm exactly the same as Dodger - i.e. I've found the dietary changes - particularly with regard to restricting carbohydrates - the starchy carbohydrates in my case e.g. cereals, bread and potatoes in particular but also pasta and rice - to be far more significant to my situation.

During the course of my improvement I haven't changed my exercise regime. I do very little other than the occasional one or two mile walk and really ought to try to do more for my general health and well-being. However, at sixty-six I certainly don't want to build a control management around a great deal of exercise.

Diet is the king in sorting out a Type 2 condition as far as I am concerned - especially carbohydrate management and, in particular, cutting back dramatically on starchy carbohydrates.

Best wishes - John
 
............How do you come to believe that you are in control of your life as you were before?..........
Jean,

I've never felt more in control of my life as I do now and all from learning to manage my Type 2 diabetic condition!

What's more my kids are getting worried too - especially my two grown-up daughters. They always thought that I would "go" before my wife and that it'd never end up with them needing to look after me themselves - i.e. I'd always be their mother's responsibility.

They are well scared now!! 🙂

John
 
hahha love the post John!! am sure they love you realy ive reduced my carbs on the whole..not this week no kitchen so chinese tonight... and it has helped
 
Hi Jean,

I can't say for sure how to cope with the sudden news that you're type 2 diabetic. It gets easier, but it takes time. I'll try to explain how it happened to me, in the hope that it helps, if only a little.

I've been diagnosed just over a year and like you, it came to me as a massive shock. I didn't have a GP because i was never ill, so i went along to a minor injuries and ailments service at my local hospital (where i conviently work) with what i thought was a urinary tract infection, coz i was drinking and weeing every hour on the hour, for Britain. The nurse gave me a couple of tests, including a finger test and a urine dipstick test and asked me if i was pregnant or had diabetes...the answer to both at the time was "no!".
To cut a fairly long story short, i ended up on the ward being asked how long i'd been diabetic for.
I've got two grandparents with diabetes, and at least two of my great-grandparents were also diabetic. I'm overwieght and to be honest, not the most sporty person in the world by a long way, and boy did i love chocolate. I figured it would happen to me eventually, probably when i retired, like what happened to my grandma, but not the week after my 32nd birthday.
Needless to say, it scared the bejezzus out of me, suddenly people were talking about blindness and heart attacks and strokes and kidney failure. I figured i'd have to give up my sweet and junk food loving ways and all the things i'd enjoyed.
It took me at least two weeks to beleive that it wasn't all my fault. I think that's a good place to start, people get diabetes for a whole varity of reasons, and really, my lifestyle wasn't any better or worse than anybody else my age. Then for a few months I'd have trouble admitting i was diabetic to myself, i'd think "I'm diabetic" but it seemed too surreal to be true.
Then i stopped getting angry and annoyed whenever somebody mentioned chocolate or cakes, most of the time (i have my moments). Then i managed not to personally offended when somebody said something stupid or ignorant about diabetes (most of the time). Somedays it all comes flooding back, and i'm grumpy as hell. Somedays i'll still get annoyed that people don't think. people yell "Rachel, there's chocolates over here if you want one!" and i'm thinking "cheers mate, i was managing to ignore that massive box of quality streets until you decided to point them out to me". But those days get further and further apart.
By the way, you don't have to give up chocolate, i just thought that trying to reduce my intake would be bound to lead to disater in my case, so i got on the wagon and gave the stuff up completely, except at christmas and my birthday. I grabbed the "must reduce sugar intake" bull by the horns, its's working, thankfully. My HbA1c is low (in the upper 4s last time it got checked), the Metformin has stopped giving me the runs (although sometimes it will come back to haunt you) and i've realised that being diabetic doesn't stop me from having a drink or two or having a treat occassionally. According to one of the hospital's diabetes specialist nurses, the only thing it will stop me from doing is driving a cab or being a airline pilot (I'm not even sure about that, one of the guys who posts on here drives a bus.) But neither of those are at the top, or even on my to do list anyway.
Diabetes is a rotten disease, it can depress you, it makes you feel strange and different from other people, but the good news is that in many cases it can be controlled. Living a generally healthy lifestyle, or in my case, trying to live a healthier lifestyle, is something you can do to slow down the progression of the disease. There are many different drug treatment options for type 2 diabetics and more are being developed all the time. So if you do struggle with one particular drug, there are other options.
This website is invaluble, i think that one of the things that is missing in my area,maybe nationally, is emotional support for diabetics of all varities. Here you can complain, rant, moan and whine, you can ask questions and get practical answers from the people who know, because they live with it too, without jargon or endless ammounts of medical waffle. It's been a godsend to me, i've posted when i'm down and somebody always posts a supportive message back (usually Steff or HelenP, but loads of people, most of whom i've never met, i've been lucky to meet some of them recently and it was amazing, i learnt so much). It's great because some days i'm positive and trying to help out (like today) and you never know, tomorrow i might be back in a "oh woe is me, i'm diabetic" strop. And because everybody has bad days and good days, people understand.

Sorry, that's got a bit out of hand, i didn't mean to type so much.

Rachel
 
Thank you

I got a bit of a shock to see today's contributions to a note I posted 5 months ago!

How appreciative I am of your supportive comments.

A fortnight ago was the first anniversary of my initial diagnosis and my HBa1C was 6.4 (it was 7.3 in June). The improvement all began with this webpage: being on to it was the best thing that happened to me.

I'm controlled-carbing - and it seems to be having some effect. It's hard work and it does have to become a way of life. Yes, you can still enjoy a small piece of dark chocolate (86%).

Thank you all again.
 
Great to hear that things are continuing to go well Jean - well done to you for your hard work and determination🙂
 
.......hahha love the post John!! am sure they love you realy ..........
I'm certain that they do but I'm fairly certain that they have no desire to have to wipe my backside..........like I'm always threatening them with! :D
 
I got a bit of a shock to see today's contributions to a note I posted 5 months ago!

How appreciative I am of your supportive comments.

A fortnight ago was the first anniversary of my initial diagnosis and my HBa1C was 6.4 (it was 7.3 in June). The improvement all began with this webpage: being on to it was the best thing that happened to me.

I'm controlled-carbing - and it seems to be having some effect. It's hard work and it does have to become a way of life. Yes, you can still enjoy a small piece of dark chocolate (86%).

Thank you all again.

Dear Jean,

I just noticed this thread that Whally resurrected, it doesn't seem like 5 months have passed! You are doing well and controlled carbing is certainly working for you. Yes, it is hard, even for me after 16 years, but I'm sure you now know that the alternatives to good control are worse. As in the past, you can PM me any time if you feel more comfortable than using an open post.

Warmest Regards Dodger
 
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