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Signs and symptoms

Status
This thread is now closed. Please contact Anna DUK, Ieva DUK or everydayupsanddowns if you would like it re-opened.
Thank goodness you took her to A&E. Glad she is getting the care she needs *phew*
 
It's the ketones that are really evil and those are really high!! So glad you are getting sorted, laboured breathing is another bad sign 😱

Glad to help, your daughter will improve really quickly once the treatment starts. It's a lot for you to get your head round but we're here to help, if you have any more questions please ask! We've all been there, no question is too silly!

I don't want to think about what would have happened if you'd waited for that appointment on the 12th - I hope you are going to talk to your GP about it when you get the chance!
 
mum25 said:
Thank you all SO much, blood sugars 19.2, ketone 6.8. Awaiting the dr at the mo. Will keep you updated but just wanted to say a massive thank you. I believe my daughter was really in danger, her breathing is laboured and she can hardly walk.
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Sounds very much like I was just prior to my diagnosis, thank goodness you recognised the symptoms and sought help beyond that offered by your GP. Wishing you both well, please update us when you are able 🙂
 
Wishing you both well mum25. It is appalling for a gp surgery to overlook the glaring symptoms of T1 in a child or anyone for that matter. I'm so relieved to read you are in the best place to get the help your little one needs and once an insulin supply is restored she will start to feel so much better.
 
Those ketones were very high, well done you for being so proactive - a supermum! You should see a great improvement once your daughter is on insulin, it really is amazing how quickly you can feel better.
Once everything is more settled and you want to get your head around the diagnosis etc, there are some other amazing super-parents on here, as well as plenty of older folk who are all rooting for you 🙂
 
I am so pleased that you went to A and E. I hope that your daughter starts to feel better soon.
This is the start of a new normal, and as Sally says we have all been there so keep in touch and keep asking any questions.

When you feel able to do so, it would be well worth you making an appointment to see the GP, just to explain the importance of treating the symptoms that your daughter had as an emergency.
 
I am so glad you took your daughter to A & E and she is getting the correct care, such high ketones and laboured breathing are indeed a very bad sign which landed me in the HDU for a few days many years ago. I really hope you have a supportive paediatric diabetes care clinic and they educate your Drs surgery, as when you are home and sorted out, you will of course be getting her prescriptions from them, I would like to think your clinic will tell your surgery what danger they put your daughter in by not acting as they should have. There are some very knowledgable parents on here, and some of us who are not parents but have lived with diabetes from a young age, who will help you all the way. With best wishes to you and your daughter
 
Thank God you were suspicious enough to come and ask here. Please give her a massive hug from all of us - and - methinks you can do with one yourself!! {{{Hugs}}}

Poor thing should be on a drip shortly - but she'll be so dehydrated - and her body will desperately need some potassium amongst other things, which the drip will include - however uncomfy it is sleeping with em in, she'll need it.

Now you possibly know that we are 'affiliated' to Diabetes UK, the general UK charity - but their is another charity - an organisation MUCH more appropriate for you right at the moment called JDRF - https://jdrf.org.uk/ - the Junior Diabetes Research Foundation.

They produce a pack for newly diagnosed children and their families and I urge you to make contact as soon as you can. They run all sorts of meetings and outings and info days for both children and parents - and as their name suggests, get shedloads of major research for the young uns, whereas DUK have to cover all of us whatever Type of D we have, from cradle to grave, they are both good, but JDRF is just more specific especially at the moment.

She'll have a whole team looking after her very shortly! (and you LOL) There will be a specific Pediatric Diabetes Team - Doctors, Consultants, Nurses - Diabetes Specialist Nurses (who are VERY knowledgeable, caring and helpful people) Dieticians, Psychologists ...... LOL

You'll be amazed at what you get and what you are SUPPOSED to get - in comparison to your awful GPs treatment.

Good luck to both of you! - she will, honestly, feel a LOT better soon.
 
Thank you all for your lovely words and good wishes. She is in the critical care section of the children's ward, had 2 fluid drips and just started her on a small dose of insulin. The nurse looking after her has been wonderful and already started to tell me about the team who will be looking after her (us?!). Tbh I feel absolutely overwhelmed at the prospect of the future but know that I have this support forum (and the websites mentioned) to help us along the way. Honestly, I'm totally drained but so, so appreciative of all your recommendations in getting her here in time. Total respect and love to you all.
 
Hi mum25. Just in from work and very relieved to hear your daughter is in the right place now. It's been a terrible frightening ordeal for you both. I just want to wish you both well and look forward to hearing progress reports. Thanks for letting us know how she's doing so far. I hope you manage to get some sleep now 🙂
 
Total respect to you to for recognising that the situation was much more urgent than your GP would have you believe!

So sorry you are in this situation, it's one hell of a shock and your lives have changed forever. Tough at first but it does get easier, and you've got lots of help available. You'll probably find that your daughter will be absolutely starving all the time for a few weeks while her body tries to rebuild itself - that will eventually subside!

Thank you for keeping us updated. Best wishes to you, your daughter and the rest of the family. And welcome to the forum by the way 🙂
 
Hope she (and you!) have had a good night 🙂 I felt completely transformed once I had started receiving insulin, so hoping she does too! In case you get bored, here are some links to good resources:

Type 1 – the basics, a support and information pack for children (JDRF)

Type 1 Diabetes in Children Adolescents by Ragnar Hanas - considered to be the 'bible' for children and young people on insulin regimes.

Children with Diabetes website - a very supportive and active site with an email list for exchange of support, information and advice.

You might also like to read Adrienne's guide for parents of newly-diagnosed children

Plus, of course, a wealth of information here whenever you need it 🙂
 
Thank you so much for keeping us updated. I am pleased that your daughter is now getting the care that she needs. Lots to learn for both of you, and lots of help available.
 
So pleased and sorry for you at the same time! But everyone here is right - she is going to feel a lot better very soon. You? Possibly not so much - and it's ok to feel like that.

The community here is fantastic, whether you need info or just a meltdown with people who know where you are coming from. However you and your family are feeling, and whatever you difficulties you are facing, someone on here has been or is going through the same and there's always really practical advice so ask.

Also, I'm with TW on giving your GPs a thorough chewing out. Appalling. Apart from the fact that they clearly need it (and it might make you feel better!), I can highly recommend it as a service sharpener - I made a bit of a scene at mine (and the pharmacy) early after diagnosis when I wasn't happy with things and since then then they've been extremely accommodating! :D

All the best to your family, you're doing a fantastic job already getting her the care she needs.
 
Well done Mum25, your daughter is in the best place, they'll get her sorted now. Thank goodness you sensed the advice wasn't right. I hope she starts to feel better very soon, and do let us know how she's doing. Definitely let the GP know the error of their ways, it might save a life. There are loads of great people here with loads of experience so don't be afraid to keep the forum warm it helps to talk to people who understand 🙂
 
Just read through all this and I hope Mum25 that your daughter is now feeling much better. 🙂 Well done to you on recognising what was wrong and doing something about it. Good work. 🙂

I cannot believe what the GP did. After you explained the symptoms, a urine test showing glucose - all this in a 10 year old girl and what does the GP do? - prescribes antibiotics. 🙄 I agree you should speak to the GP to ensure they are fully aware of what has happened and something like this doesn't happen ever again to anyone else.
 
Matt Cycle said:
I cannot believe what the GP did. After you explained the symptoms, a urine test showing glucose - all this in a 10 year old girl and what does the GP do? - prescribes antibiotics. 🙄
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I have personal experience of how clueless a few GPs can be. 🙄 In autumn 2007 I was suffering constant tiredness, and I saw a GP (not one I'd seen before) and accurately described to her all my symptoms, including waking up in the night several times with the knowledge that what had woken me was that I'd stopped breathing in my sleep -- and she concluded that I was just malingering! 😡😱 Fortunately, about six weeks later I was admitted to hospital with an unrelated problem, and while I was on the admission ward the nurses picked up the breathing problem and correctly diagnosed obstructive sleep apnoea (a highly dangerous condition if left untreated), and I finally got the correct treatment. Needless to say, I made sure I never saw that particular GP again, as I had no confidence in her judgement. 😱
 
Update

Thanks once again for all the good wishes. I'm happy to report that our daughter is making progress and has been up and about today. We've met some of the team who are looking after her and I'm seriously impressed. One of my sons has special needs and I've had to fight every step of the way to get him the services he needs, so it's an alien concept having it from the start!! Her blood sugars are still high and some ketones still but much less. I've given her a dose of insulin and shook and panicked all the way through, apparently "daddy is much better". Got to get my head around this.
 
Oh and re the GP from what I understand, the consultant will be dealing with that for me 😉
 
LOL at Mummy's difficulty!!

Recommendation - ask for a few disposable insulin syringes - or nip into a chemist and treat yourself to a packet (LOL) (1.25 for 10) (Diabetics don't pay the VAT)

These come with the needles firmly affixed. Then - practice stabbing yourself with them! If your technique is correct - you will not feel the needle at all - merely your hands on your skin. If you get clammy with fear, or the skin is otherwise wet - it hurts like stink!

Blokes are usually much better at stuff like this, see it's technical same as changing sparkplugs or sawing wood etc LOL - hence they are quite confident about doing it. Being confident does actually make all the difference!
 
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