Sigh, dietitian

[Shivles]

Very much so, but you cannot stay objective, unless you get some space. Try 15 minutes, then build towards an hour. You will be amazed at how this will help you.

Dad won't even check her sugars, it's hard for me to get time away

 

[Owen]

Hi

Dad won't even check her sugars, it's hard for me to get time away

For a stroll to the park, visit a friend or family. When I am called out to paediatric emergencies, I always get the parents to do some tasks. You are emotionally attached without any respite. This will end with irrational thinking. Please find someone and sometime to escape.

 

[Pumper_Sue]

Dad won't even check her sugars, it's hard for me to get time away

Perhaps have a sit down with hubby and find out what his feelings are. It's only a guess but I suspect he has a massive guilt complex because he has got it in his head that he gave it to his daughter, so his way of coping is to shut the door so to speak.

 

[Owen]

Perhaps have a sit down with hubby and find out what his feelings are. It's only a guess but I suspect he has a massive guilt complex because he has got it in his head that he gave it to his daughter, so his way of coping is to shut the door so to speak.

You beat me to it.

 

[Shivles]

I know that's how he feels and I've tried to reassure him it's a gene combination and neither of our faults... don't really know how else to reach out to him over it.

Last night's graph, after tea and overnight, fish fingers and sweetcorn is an issue too it seems.I've just give scrambled egg this morning and no insulin as she's in the 5s and I can't safely give it

 

[Owen]

Not horrendous, remember its going to take a while to get it right.

If it is genetic, there is nothing he has done wrong. If he wants to chat, I have two surviving diabetics plus a goat of others no longer here. It's just a lottery.

 

[Pumper_Sue]

I know that's how he feels and I've tried to reassure him it's a gene combination and neither of our faults... don't really know how else to reach out to him over it.

Then you need to speak to someone to get him the help he needs. I speak from experience, being a 4th generation type 1 on my fathers side of the family he decided it was all his fault so his way of coping was to ignore me completely, this started at the age of 4 1/2 for me and went on until he died aged 82 on this day 2 years ago. All I can say is it wasn't good for him or me.

 

[bilbie]

How did the Friday meeting go? I hope you came away with a workable plan for LO

 

[Shivles]

The team reluctantly agreed to try her on a higher basal but warned me to check her at 3am to make sure she doesn't go too low (obviously why they didn't want to try it, didn't want to take the risk)

She stayed with grandma and grandad Friday night so everything was a bit off Saturday day time, tea seemed to go well but we did dip a bit too low at 3am, this morning I put down to getting up an hour and a half later than she normally does.

If 1.5 units of levemir isn't enough but 2 is too much what do I do?

 

[Owen]

Not ignoring, just thinking.

 

[Radders]

The team reluctantly agreed to try her on a higher basal but warned me to check her at 3am to make sure she doesn't go too low (obviously why they didn't want to try it, didn't want to take the risk).

If 1.5 units of levemir isn't enough but 2 is too much what do I do?

Would splitting the dose help? That way you could alter the timing of the low or high reading so it's during the day when you can compensate by tweaking the bolus?

I realise that basal and bolus are meant to do different things, but I have found I sometimes get on better by treating them as a partnership with the aim of getting numbers where I want them!

I know you don't want to go for a pump but you can fine tune the doses with a pump: my basal can be tuned to .01 increments per hour.

 

[Shivles]

Would splitting the dose help? That way you could alter the timing of the low or high reading so it's during the day when you can compensate by tweaking the bolus?

I realise that basal and bolus are meant to do different things, but I have found I sometimes get on better by treating them as a partnership with the aim of getting numbers where I want them!

I know you don't want to go for a pump but you can fine tune the doses with a pump: my basal can be tuned to .01 increments per hour.

I'll be asking about splitting the dose but I'm unsure how that would help, I don't really understand lol, dad's on novomix so we don't have a clue 🙄

 

[Sally71]

If 1.5 units of levemir isn't enough but 2 is too much what do I do?

GO ON A PUMP!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

Sorry to keep banging on about it, but honestly, on a pump if your child is dipping at 3am then you can reduce the basal from 1am - 5am only just to smooth out that dip. With small children a difference of just 0.02 units per hour can make all the difference between them going hypo or not. You absolutely can not ever adjust one dose per day of Levemir like that!

I know you said pump is a last resort for you, but are you not desperate enough already? Could you not ask to meet some children with pumps and their families so that you can see what you are really dealing with? Or ask to try one for 3 months and if you really don't get on with it you can go back to pens. Pumps are pretty tough, it's unlikely that even the most boisterous toddler could damage it. If you don't like the idea of her being attached to it all the time, just tell her that it's her best friend now and it's making her feel better (and it's instead of needles every day), she'll pretty soon get used to it and will hardly notice that it's there.

I"m also sorry to hear that your hubby isn't helping; my mum is also T1 and yes I think she too briefly felt very guilty when my daughter was diagnosed. But she knows deep down that it's nobody's fault really. She can't help much with the day to day management as she knows very little about pumps, but I think my daughter likes talking to her about it, Grandma is the only other person in the family who really knows what it FEELS like to have diabetes! My hubby doesn't help much, he knows how to do a basic meal bolus and how to manage a hypo, other than that he leaves all the complicated stuff to me. But it's nice to have someone to bounce ideas off occasionally! You need a break occasionally too, good luck 🙂

 

[Radders]

I'll be asking about splitting the dose but I'm unsure how that would help, I don't really understand lol, dad's on novomix so we don't have a clue 🙄

It's about the timing of Levermir's peak action. If it's peaking in the middle of the night, switching the dose to the morning might work but might also fall too short to cover the morning rise in levels. By splitting it, it can sometimes smooth out the action. I was on Levermir before going on the pump and I found that splitting it helped me.

 

[Owen]

Funkypumpers.com

 

[Shivles]

I do wish everyone would stop pushing a pump, I've said several times I don't want her on one yet. I appreciate they work well for you all but please respect my decision as a parent that it isnt the right time for my LO

 

[stephknits]

The Levemir last around 18 hours, so is usually split to try to give a 24 hour coverage. Although the doses are very small, I think this may be of benefit to you. That way, she is less likely to go hypo in the night and more likely not to see high bs when no carbs eaten throughout the day. Unfortunately on pens, it is a blunt tool, but splitting would at least give you more flexibility, it has certainly helped me 🙂

I think people keep suggesting a pump because it answers many of the things you are frustrated with and they are just trying to be as helpful as possible. I can understand your feelings about them, though - many adults feel the same way.

 

[Sally71]

Apologies, I won't mention pumps again. As stephknits says, I was only trying to help, and it seems to me that it answers many of the questions you have. But you have your reasons not to choose one, sorry

Oh and I do genuinely hope that someone else can help you find a solution that works for you and your little one

 

[Shivles]

Breakfast was a write off, thought I'd give the toast another try with the increased basal. Lunch seemed to go pretty well, her carbs for lunch were 2 cream crackers with pate, she also had some cheese and olives. In two minds about tea now, I'm making bolognaise which I eat on its own with cheese, wondering if I should do the same with her or give her a little pasta

 

[Owen]

Breakfast was a write off, thought I'd give the toast another try with the increased basal. Lunch seemed to go pretty well, her carbs for lunch were 2 cream crackers with pate, she also had some cheese and olives. In two minds about tea now, I'm making bolognaise which I eat on its own with cheese, wondering if I should do the same with her or give her a little pasta

I find with bread. I have to either increase bolus or avoid. The screen shots are looking better. Stop punishing yourself, you're doing an amazing job.
I just bought a fridge pack of beans, I can weigh exact amounts.