Sigh, dietitian

[Shivles]

After high hopes for the dietitian helping me make some changes I'm left frustrated. After she admitted grains are non essential food she still said I need to feed them to my child despite them sending her hypo constantly (before the insulin is able to bring her down). Multi seed bread sends her soaring above 14 but as it's 'healthy' I should keep giving it her...

The only useful thing she said would she'd speak to the consultant about us getting the CGM for a few weeks while I take food diaries.

Trying not to worry what all these hypers are doing to my baby in the mean time

 

[Northerner]

Sorry to hear she wasn't very helpful It can be very hit and miss getting a dietician who looks at the individual and works out something that will suit them not just parrot standard advice

It would be good to get a CGM so you can see more clearly what happens when she eats various things, so good luck with that 🙂

 

[Shivles]

It would certainly save me testing her 20+ times a day to see what's happening!

Maybe I'm being paranoid but I got the feeling she didn't believe me, when I told her so far ALL grains are causing issues she replied 'oh well she must be very carb sensitive...' of course she is she's 16mo, 24lbs and TYPE ONE DIABETIC :bangs head on wall:

 

[CMDD]

I'm six months into my type 1 diagnosis, and I was in the same boat. I've swapped grain for high protein/good-fat foods, and feel great. I use bananas and berries spread over the day for carbs, and I manage to avoid readings above 11 now. Sometimes, all I need to do is look at grains and I hit 15+ or use a shed load of insulin, which I don't like doing. My rule now is if it's more than 10g carbs to every 100g then forget about it!

 

[Martin Canty]

After she admitted grains are non essential food she still said I need to feed them to my child

I would be interested in the justification of feeding "non essential food" to someone who cannot tolerate grains.....

 

[CMDD]

Good point. There's so many conflicting expert opinions out there. Who do you trust?

 

[Shivles]

I would be interested in the justification of feeding "non essential food" to someone who cannot tolerate grains.....

She said for b vitamins when I challenged that, I asked where we got those from before cultivation of grains, she didn't understand the question

 

[Shivles]

15.6mmol after nothing since 12:30. I'm done for the day, she's having a low carb dinner with me, I'm not having her suffer through the night just because they can't see sense

 

[CMDD]

She said for b vitamins when I challenged that, I asked where we got those from before cultivation of grains, she didn't understand the question

I like that "before cultivation of grains" idea. That's what I'm trying to do with all the nuts, seeds, berries ... in my diet now. No more pasta carbs, I use grated zucchini ... so I'm applying the principle of what I would survive on in the wild without a farm or spear as experts seem to be agreed on the fact that our bodies are similar to what they were when we were hunter gatherers or more gatherers I guess for me 🙂

 

[Shivles]

I like that "before cultivation of grains" idea. That's what I'm trying to do with all the nuts, seeds, berries ... in my diet now. No more pasta carbs, I use grated zucchini ... so I'm applying the principle of what I would survive on in the wild without a farm or spear as experts seem to be agreed on the fact that our bodies are similar to what they were when we were hunter gatherers or more gatherers I guess for me 🙂

The more you read the more you realise, I firmly believe now we only ate plants when all the meat was gone to avoid starvation, many many people thrive on a meat only diet (myself included although my sugar addiction put a stop to it in the end!)

 

[Martin Canty]

She said for b vitamins

Thus dismissing all the other classes of foods.... Oh, and all then B vitamins are found in abundance in animal products without having to be artificially enriched.... Sighs in despair.......

 

[Shivles]

Thus dismissing all the other classes of foods.... Oh, and all then B vitamins are found in abundance in animal products without having to be artificially enriched.... Sighs in despair.......

Ah but there's not enough in lean meats! It's the fatty bits you need apparently to get enough which I pointed out would be fine on a LCHF diet, got a saturated fat lecture. ..

At least I know not to waste my time in future! My Dr Bernstein book should arrive tomorrow anyway so hopefully that will help me because the diabetes team sure aren't!

 

[bilbie]

The more you read the more you realise, I firmly believe now we only ate plants when all the meat was gone to avoid starvation, many many people thrive on a meat only diet (myself included although my sugar addiction put a stop to it in the end!)

It seems we ate a lot of the liver, 'brains, marrow, fat' and blood. we gave most the meat to the dogs.

Given you are getting Dr. B's book, I should be able to post this without being seen as trying to influence you.
What Parents of T1 Children Need to Know
www.youtube.com/watch?v=dPd78PnsQNA&list=PLs_TA02I6IvU8hlBhash0Ww3Nn3EkBYWd&index=1

 

[Pumper_Sue]

Has your daughter been tested for coeliac? If not getting her checked would be a good idea. How many carbs a day is your daughter having each meal?

 

[Shivles]

Has your daughter been tested for coeliac? If not getting her checked would be a good idea. How many carbs a day is your daughter having each meal?

They told me they was at hospital and never heard anymore about it so presume it was fine.

It varies by meal but typically between 20-40g

 

[bilbie]

I think I've said this before, but I can't understand why they want so much carb. Given that 100g is 40%carb on a 1,000 cal infant diet. I personally would target no more than 100g/day as a starting point. That may be still problematic, given what you have posted. I would look at 75g, then 50g.
50g is equivalent to 100g adult diet, which most people accept as OK. I wouldn't do the same with protein as kids need more % than adults

 

[Owen]

Try to stay open minded. I am still not convinced that fatty meats are a good thing. I try and get some oily fish two to three times a week. You can combine healthy fats to slow down glucose release from carbs. Your LO is type one, it is important to get the insulin at the right level, if you focus on diet whilst not doing this, then you are just going to run around on circles. I have not eaten processed foods for months now, this has been the biggest change for me. I try and have one carb free meal a day. Moderation and balance are important. Prior to insulin, diet controlled diabetes ended the lives of too many young people. Try to get patient and get as much information you can before committing to any specific approach. I knows it is hard to do this when you are compelled to protect your child. Remember this disease is long term and you are out of the danger zone, so now think of it as tweaking things slowly until you find the right balance.

 

[Owen]

It seems we ate a lot of the liver, 'brains, marrow, fat' and blood. we gave most the meat to the dogs.

Given you are getting Dr. B's book, I should be able to post this without being seen as trying to influence you.
What Parents of T1 Children Need to Know
www.youtube.com/watch?v=dPd78PnsQNA&list=PLs_TA02I6IvU8hlBhash0Ww3Nn3EkBYWd&index=1

@bilbie you are passionate about something that you have discovered and obviously benefits you greatly. Sometimes this can be misunderstood by many as being a bit radical. I may or may not agree with you (still trying to decide what is right and what is guff). But I will defend your right to have an opinion. Please continue to be passionate. But remember there is no one size fits all with this complex and varied disease.

 

[Owen]

15.6mmol after nothing since 12:30. I'm done for the day, she's having a low carb dinner with me, I'm not having her suffer through the night just because they can't see sense

Basal insulin cannot be be correct

 

[bilbie]

Owen, It was only because Shivles bought the Bernstein book that I put up the Bernstein video. His point is to have normal BG levels, something I think we can all agree on.
Also Bernstein isn't LCHF ketogenic.

Given that the respected Joslin diabetic clinic recommend 30-45% carb, I'm quite comfortable saying the same. I think the problem lays with misinformed NHS dietitians and nurses

I think it was the lack of insulin that ended the lives, The very LCHF ketogenic diet was to extend life. It needed the least amount of insulin production
the pre-insulin diet
http://www.icsarchive.org/paperback/cookbooks/diabetic_cookery_1917.pdf