Sick and Tired of Type 1

Status
Not open for further replies.
Type II is also a disease of age and not just lifestyle. I once decked a barstool.expert who probably studied the Daily Fail when he kept repeating that I must have been a fat kid!
 
A previous GP practice had an (alleged) DSN who always went on about my weight (BMI 25 or 24 with height adjusted formula). She was obsessed with the idea of my BMI was 21 things would improve (fatty liver on the brain). On fact when I had my amputation I was so ill I lost 20% of my weight. If my BMI had been around 20 I might not have survived. She also said my pulses were fine six weeks before I was diagnosed with PAD. The term "Not fit for purpose" comes to mind!
 
I think if you walked in a Type 2 s shoes and experienced the treatment they actually receive, you might be less envious of them. I was initially assumed to be Type 2 because I developed Type 1 late in life and I can tell you, as a Type 1 you get far more sympathy and support and better treatment, plus you can eat more or less what you want whereas many Type 2s have a very restricted diet and are often the subject of prejudice both within society, the press and even the NHS. There is very much a 2 tier system with health care for diabetes and I can tell you, being Type 2 is like being the poor relation for many people.

It is easy to think the grass is greener on the other side until you cross the fence.
 
rebrascora said:
Type 2s have a very restricted diet and are often the subject of prejudice both within society, the press and even the NHS
Click to expand...
And even on diabetes support forums type 2s are frequently subject to prejudice…
 
Limerick42 said:
7 Months i waited to talk to a Diabetic specialtist theres only 8% Type 1 Diabetics in the UK and 90% diagnoses of type 2 diabetes in the uk, so Type 2's have had alot of those appointments which they should thye have a right to but dont you think 7 Months for a type 1 is too long to wait
Click to expand...
7 months sounds good, the next appointment is 10 months away for me as a t2 to discuss the results of my blood tests with the dr.

You are prejudiced in saying t2 is caused by age and lifestyle, those may be factors but it’s a lot more complex than that.

Try actually being classed a t2 before you insult us
 
I just found some old printouts and discovered that I had raised blood glucose levels for a decade before diagnosis, but no follow up. Mind you, even after diagnosis there was nothing useful said about it.
Perhaps it is just how things are.
 
Limerick42 said:
I'm Type 1 everywhere i go for a diabetes eye test there all type 2's i no this because we talk in the waiting room be about 12 people and only 1 or may be 2 will be a Type 1's im not prejudice just want equal treatment 7 Months i waited to talk to a Diabetic specialtist theres only 8% Type 1 Diabetics in the UK and 90% diagnoses of type 2 diabetes in the uk, so Type 2's have had alot of those appointments which they should thye have a right to but dont you think 7 Months for a type 1 is too long to wait and then dont even get any help
Click to expand...
Most Type 2's never see a specialist at all, so I very much doubt it is Type 2s taking up the appointments, but jyes we all get eye screening so of course there will be an appropriately higher percentage of Type 2s in the waiting room at the eye clinic..
As a Type 1 I get a telephone appointment with the consultant about every 10 months. He says the next appointment will be 6 months but the appointments gradually get further and further apart. They will be annual soon and I am fine with that because I have learned what I need to know from the good people here on the forum and carefully experimenting on myself. The clinics are overwhelmed since Covid because the virus dramatically increased their workload, including an increase in the incidence of Type 1 developing in children I believe.
 
Limerick42 said:
I'm Type 1 everywhere i go for a diabetes eye test there all type 2's i no this because we talk in the waiting room be about 12 people and only 1 or may be 2 will be a Type 1's im not prejudice just want equal treatment 7 Months i waited to talk to a Diabetic specialtist theres only 8% Type 1 Diabetics in the UK and 90% diagnoses of type 2 diabetes in the uk, so Type 2's have had alot of those appointments which they should thye have a right to but dont you think 7 Months for a type 1 is too long to wait and then dont even get any help
Click to expand...
Well of course there will be more type 2s in the waiting room because there are far more of them overall. Why does that mean they are getting better treatment? You’ve got far more chance of getting things like sensors and test strips on prescription if you’re type 1, most type 2s have hardly any chance of that and they would find them just as useful.
If you aren’t happy with the treatment you are getting then find out about the complaints procedure, or contact PALS, or ask to be transferred somewhere else. Channel your energy into doing something about it instead of just complaining.
 
Limerick42 said:
Type 2 diabetes occurs when the body doesn't produce enough insulin to function properly, or the body's cells don't react to insulin. This means glucose stays in the blood and isn't used as fuel for energy. Type 2 diabetes is often associated with obesity and tends to be diagnosed in older people.16 Mar 2023 You’re more at risk of type 2 diabetes if you’re living with obesity or overweight.
Click to expand...
I’m type 2, diagnosed age 21 so clearly not caused by age. My insulin production has been proven to be very low, and losing weight doesn’t make my pancreas produce more insulin. Whilst a lot of type 2s are overweight there’s a lot who are underweight too.

In your first post you said “Type 2 is a life style condition becasue of a persons weight or unhealthy life” but for many T2s it is not. Why did I get T2 age 21 when loads of other people were older, heavier, worse lifestyles without getting diabetes. Why are there athletes with T2 and people who have never been overweight in their life that have T2? You’re wrong about T2 being a lifestyle condition, lifestyle is simply part of a very complex range of factors.

As for your “T2s get all the help” comment, you’re genuinely just making things up now. As a T2 I had to fight for access to insulin, even with seriously high blood sugars and none of the tablets working. I had to push for access to a specialist service at all, as T2s are typically only managed in their GP surgery.

I’ve paid to fund my own blood glucose testing for most of the last 15 years, because test strips are limited or unavailable for many type 2s and cgm was completely unavailable for T2s until the last few months, when it’s become very minimally available, whereas for a T1 on exactly the same treatment cgm (like freestyle libre) is automatically eligible. I’ve absolutely no chance of an insulin pump as a T2 on insulin whereas a T1 would at least be able to discuss the benefits and make a case for funding. I’ve never ever been on an education course because the carb counting course in my area is only for T1s not T2s.

So please explain exactly where all this superior help is that T2s apparently get over T1s
 
Im type 2 and get no help. On diagnsis was told to google when I asked what to do to avoid progression. I fund testing because I find it essential to manage my T2. I don't see my GP about T2 - I manage it myself and even have to request my HbA1C. There is no diabetic nurse at my practice and as a T2 I don't have access to the diabetes team at the local hospital.

On this forum, I read that T1s wish they were T2 as they believe they would be able to achieve remission.

I read that T2s are envious of T1s as they can eat normally rather than have the restricted diet many T2s use to manage their diabetes. I would love to have a sweet treat but can't - even last week on holiday it was low carb- I can't let it go for a week or one week will become two then three and then .....

I just wish we used different words to distinguish between T2 and T1. They both involve blood sugar levels but are completely different.
 
Is there anything that we can actually help you with rather than just having to counter all your negativity and misinformation..
What problems are you having with your diabetes management that we can help you with. We would prefer to try to help you with practical advice.
 
Last edited by a moderator:
I don’t have diabetes. My daughter does. And yes she’s getting great treatment thank you, and that’s because she’s a type 1. Why are you on here then if you don’t believe what we say?
I shall go now though as I obviously can’t help you. I do genuinely hope you find someone who can.
 
Last edited by a moderator:
rebrascora said:
as a Type 1 you can eat more or less what you want
Click to expand...
According to Kellogs, Coca Cola Company, Unilever, Astra Zeneca, etc. that is.

Being diagnosed as a type 1 saves me about two grand a year compared to when I was still considered type 2.
The only downside is they often treat you differently, but I guess that happens to many type 2's as well.
 
Last edited by a moderator:
MikeyBikey said:
Type II is also a disease of age and not just lifestyle. I once decked a barstool.expert who probably studied the Daily Fail when he kept repeating that I must have been a fat kid!
Click to expand...
A type 2 genetic link has now been found in some families, yes trigger can be environmental or diet but it’s now known as a genetic vulnerability, hoping have described correctly, there’s three generations of us in my family.
 
Limerick42 said:
Its not been a fat kid thats wrong, as a Kid it is a life long thing type 2 live in an unhealtyh way and you have a chance of being a type 2 Diabetic, i get the same with Type 1 did i eat a lot of sweets as a Kid which i did'nt

whatever sounds like your getting all the best treatmeant how you are coming across good bye thanks for the message
Click to expand...
Might not be an unhealthy way by choice especially at the moment re cost of living, many can’t afford health food right now. My type 2 was triggered by an eating disorder, developed it as I hit puberty and was triggered age 13 into insulin resistance then infertility and by 21 was diabetic. There’s research going on on young type 2 diabetes triggers now so hope risk can be managed eventually.
I was lucky enough to attend the professional conference this year as a patient lived experience speaker and there’s a huge amount of type 1 research in progress, it’s just takes time, you can see some of the topics on research page of the website, also volunteers are needed, if you register as a volunteer you get emails as research volunteers are needed, more lately have been type 1 than type 2 but goes in fits and starts, it’s not all drug trials, there’s lots of other ways to help, listen to episode five of the podcast.
 
As a Type I for around six decades I have changed clinics three times whilst living in the same area. I attended the first one for around 30 years until it was restructured. The new lead was strange character who did not believe in the HbA1c test and the route to avoid complications was to max out on statins! I walked away and was under the care of my GP and a brilliant DSN. The DSN left was she was asked to cut diabetic reviews (usually 30 minutes) to fit in dressing changes, random vliid tests, etc. I then got referred to another hospital. The consultant was brilliant to begin with and used to give an annual lecture to the local support group. He then backed away from it and saw increasingly less patients as he climbed the higher echelons. Those that took on his clinics that were no longer that local did not inspire me so I walked away again. I then had some more years under my GP and the replacement DSN. She only seemed to know anything about Type II on diet and tablets, or tablets alone, and obsessed about me having to lose weight although then my BMI was only 24. I then got referred to a third different trust and am happy with the two main consultants there.

So, the point I am making is that you are unhappy with your treatment get your GP to refer you elsewhere but do your homework so you don't jump from the frying pan into the fire!
 
Status
Not open for further replies.
Back
Top