Sensible Chocolate Advice?

[Tina63]

Corr! I'm good at getting you lot going!!! It is really good reading other peoples 'takes' on it though.

I have spoken to the DSN this morning as my boy has been away overnight and not surfaced yet today (though his sister has been in touch so I know he's alive )

She has confirmed this new mixed insulin is just a 'stop gap' to try and get him back into some sort of injecting pattern. She advised as others have to just use the chocolates as pudding, just a few now and then, so we will have to see how it goes.

She is also going to make sure the psychologist sits in on his next consultation and will then take him to one side on his own afterwards for a chat. If things vastly improve before then though, it may not happen, but I think we are all expecting more rebellion/denial. She was very approachable today and we had a good half hour chat (oops!) and I felt very constructive, so very glad I called. I have her personal work email address now too, not just a general one, so can contact her direct that way if it's hard to talk.

She has said it would be fine for him to revert to just Novorapid and Lantus at weekends if it fits better with his sleeping/eating/working routine (he works odd hours at the weekend) but to try as far as possible to stick to this new plan for at least a few weeks to get some sensible readings (hopefully) - that is if he tests of course! We will see!

 

[Northerner]

Good to hear that you had a good chat with the DSN Tina 🙂 I do hope things turn around for you all in the New Year. I must admit, I can't get my head around not wanting to test - it would drive me mad not knowing all the time! 😱 But there again, I am about 35 years older than him and have no real way of knowing how I would have felt at his age. I've often thought how lucky I am to have been diagnosed at age 49, after I'd done all my 'growing up' (some people might debate whether I have actually grown up yet though! 😉)

 

[CarolK]

regarding the pepsi max thing, my son drinks gallons of the stuff. I did try and ask him to cut down but his answer was, he couldnt do much of anything else and there seemed so many restrictions in his diabetic life, pepsi max seemed the least of anyones worries. I thought about it and tended to agree with him!

 

[Monica]

Carol and Tina

regarding the pepsi max thing, my son drinks gallons of the stuff. I did try and ask him to cut down but his answer was, he couldnt do much of anything else and there seemed so many restrictions in his diabetic life, pepsi max seemed the least of anyones worries. I thought about it and tended to agree with him!

I understand you not wanting your boys to drink too much pepsi. I don't like Carol to drink too much of any kind of (sugar free)"cola". But I've stopped nagging. I don't buy it to have at home though.

I had a friend tell me off for giving Carol "no added sugar" squash, because the sweetener isn't good for her. She should have water if she can't have the full sugar stuff. I told her no way will I stop her having it, as I deny her enough things due to Diabetes.

 

[AJLang]

I have been a Diet Coke (or TAB as it used to be when I was younger) addict for over thirty years it keeps me hydrated (I know that there is an argument that it dehydrates you) and means that I don't eat chocolate very often or desserts. I know that Diet Coke isn't meant to be that healthy but as it is one of the few sweet things that a diabetic can have without it affecting BGs I think it is wonderful. It also gives me my caffeine fix as I don't like tea or coffee (Jill also don't like plain water because I'm awkward)

 

[Adrienne]

I would say,Adrienne, that we don't lead a normal life (if anyone does? 🙄).

Our 'relationship' with food is not normal. We have to see it as carbs/100g and have to then slot it into the day. We also have to be more in tune with our bodies and try to guess the state of the glucose/insulin cycle.

Then there's the injecting and testing regime that for some of us isn't really a social problem, but for others is a huge obstacle and carries taboos.

I always feel that the 'normal' tag is just a way of sweetening the pill but for me it's easier to see it as it is. A bit of a strange way of life but it enables us to carry on within the normal world, much like others who have to adapt for various other reasons, soem visible, some not.

Sorry if others feel different, but for me, it's a lot easier to see it this way than try to do things like others do. We can do them, just differently.🙂

Rob

Well funnily enough Rob, I totally agree. It isn't normal in my eyes either, although what is normal eh! I just didn't want to offend anyone into thinking that I thought they weren't normal. 😉

 

[Adrienne]

Corr! I'm good at getting you lot going!!! It is really good reading other peoples 'takes' on it though.

I have spoken to the DSN this morning as my boy has been away overnight and not surfaced yet today (though his sister has been in touch so I know he's alive )

She has confirmed this new mixed insulin is just a 'stop gap' to try and get him back into some sort of injecting pattern. She advised as others have to just use the chocolates as pudding, just a few now and then, so we will have to see how it goes.

She is also going to make sure the psychologist sits in on his next consultation and will then take him to one side on his own afterwards for a chat. If things vastly improve before then though, it may not happen, but I think we are all expecting more rebellion/denial. She was very approachable today and we had a good half hour chat (oops!) and I felt very constructive, so very glad I called. I have her personal work email address now too, not just a general one, so can contact her direct that way if it's hard to talk.

She has said it would be fine for him to revert to just Novorapid and Lantus at weekends if it fits better with his sleeping/eating/working routine (he works odd hours at the weekend) but to try as far as possible to stick to this new plan for at least a few weeks to get some sensible readings (hopefully) - that is if he tests of course! We will see!

Well that is all very positive Tina. I hope the psychologist is a good one and knows her/his diabetes. We have seen an excellent psychologist under our team. There is a small group of them and are all brilliant and up in diabetes as well as psychology babble.

Your DSN sounds on the ball.

🙂