francescakate
Member
- Relationship to Diabetes
- Type 1
Hi everyone
I've finally got my diabetes diagnosis after months of waiting and it's a shock. I had gestational diabetes last year, gave birth in Jan 2021 and my HBAC1 in April was normal. By October I wasn't feeling very well with hand foot and mouth (thanks to the little one) and tested my blood sugars and they were all late teens and my HBAC1 shot to 69.
Months of tests later, I expected to get a type 2 diagnosis given my gestational diabetes history but my doctor pushed for type 1 testing due to me being a healthy weight with no risk factors. I waited 2 months for the test results and the hospital confirmed on Christmas Eve that I have slow-evolving type 1, but not type 1.5 because I'm 28.
Before Christmas my levels were around 6 in the morning, 9 in the evening but then I got COVID and since they've been above 10 even for fasting sugars. I finally got my insulin prescribed last week and I'm on 6 units of Levemir in the morning, 1g of Metformin x2 a day but my levels still aren't great (around 7-8 in the morning and the rest of my readings throughout the day are 10+) except for my before bed ones.
For anyone else recently diagnosed, have you found your diabetes team to be... lacking? They've all been lovely but they very much seem to be relying on my previous knowledge of GD (which is a whole different beast) - I had to Google what Type 1 was and what my future held. They hadn't even told me how to inject insulin, thankfully I had to do so for a few weeks during pregnancy over a year ago and remembered after watching a few YouTube videos.
I've not had any face-to-face appointments, just one telephone call with the consultant who said they'd call me again in 4 months. My numbers are still too high so I'm going to call the nurses this week but I'm not the kind of person who is comfortable ringing up constantly for help. I just feel that my numbers are growing fast, my insulin isn't enough and they've got me on the back-burner while they (rightfully) deal with more urgent cases.
I've finally got my diabetes diagnosis after months of waiting and it's a shock. I had gestational diabetes last year, gave birth in Jan 2021 and my HBAC1 in April was normal. By October I wasn't feeling very well with hand foot and mouth (thanks to the little one) and tested my blood sugars and they were all late teens and my HBAC1 shot to 69.
Months of tests later, I expected to get a type 2 diagnosis given my gestational diabetes history but my doctor pushed for type 1 testing due to me being a healthy weight with no risk factors. I waited 2 months for the test results and the hospital confirmed on Christmas Eve that I have slow-evolving type 1, but not type 1.5 because I'm 28.
Before Christmas my levels were around 6 in the morning, 9 in the evening but then I got COVID and since they've been above 10 even for fasting sugars. I finally got my insulin prescribed last week and I'm on 6 units of Levemir in the morning, 1g of Metformin x2 a day but my levels still aren't great (around 7-8 in the morning and the rest of my readings throughout the day are 10+) except for my before bed ones.
For anyone else recently diagnosed, have you found your diabetes team to be... lacking? They've all been lovely but they very much seem to be relying on my previous knowledge of GD (which is a whole different beast) - I had to Google what Type 1 was and what my future held. They hadn't even told me how to inject insulin, thankfully I had to do so for a few weeks during pregnancy over a year ago and remembered after watching a few YouTube videos.
I've not had any face-to-face appointments, just one telephone call with the consultant who said they'd call me again in 4 months. My numbers are still too high so I'm going to call the nurses this week but I'm not the kind of person who is comfortable ringing up constantly for help. I just feel that my numbers are growing fast, my insulin isn't enough and they've got me on the back-burner while they (rightfully) deal with more urgent cases.
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