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I was diagnosed type 2 a year ago. In that time it has been found I have a severe intolerance to metaphormin and due to that my levels are registering off the scale every day. My local nurse was so worried she gave me another drug glimepiride. After 2 days it sent me into near hypo and was told to stop taking it. I'm worried now as I'm constantly reading 20.0 + with my glycometer and have lost 1.5stone in 12 weeks. Any help?
Hello @Tattoogirl , welcome to the forum .
You need to get back to your nurse or Gp rapidly as they shouldn’t be leaving you without any help or advise and at the blood glucose levels you are experiencing, you need help fast . Its likely that your dose of Glimepiride was to high for you so needs tweaking down also their are plenty of other medications if needed.
Your weight loss is ringing alarm bells in me , was it planned or did it just fall off.
If you start to feel unwell , get to A &E fast .
The reason I am worried about your weight loss is , if it was not planned or not due to dietary changes, some people originally diagnosed with T2 turn out not to be , don’t worry all types of diabetes (their are quite a few ) can be well managed, it’s just that different types of diabetes need different treatments and most GPs and the Gp practice nurses have not even heard of the rarer types.
If you don’t mind me asking, What changes have you made to your diet.
Hello @Tattoogirl , welcome to the forum .
You need to get back to your nurse or Gp rapidly as they shouldn’t be leaving you without any help or advise and at the blood glucose levels you are experiencing, you need help fast . Its likely that your dose of Glimepiride was to high for you so needs tweaking down also their are plenty of other medications if needed.
Your weight loss is ringing alarm bells in me , was it planned or did it just fall off.
If you start to feel unwell , get to A &E fast .
The reason I am worried about your weight loss is , if it was not planned or not due to dietary changes, some people originally diagnosed with T2 turn out not to be , don’t worry all types of diabetes (their are quite a few ) can be well managed, it’s just that different types of diabetes need different treatments and most GPs and the Gp practice nurses have not even heard of the rarer types.
If you don’t mind me asking, What changes have you made to your diet.
Echo Ljc's thoughts. Routine 20+ spot readings are well into the "needs action" zone and you should be going back to your GP to get a plan sorted out to get it down. That's the best advice anybody can give you.
Hello again @Tattoogirl
I have just replied to your message on the 'Newbie' section, before I found this.
I can see now how difficult your problems are and as @Ljc and @Docb have said, it is important to get more medical help soo
You need urgent help now. And I am still worried that you may not have T2 . Their are other blood tests that can be done to determine this which the Hb1ac can’t do.
Sadly many of us with T2 are not given suitable dietary advise, we’re often given advise on what they think is suitable for non diabetics, I think it’s called the Healthy eating plate, now.. Sadly we just can’t handle that amount of carbohydrates anymore.
That is the reason I asked about what changes you have made to your diet. I like many others, was initially told by my Gp just to cut out sugar, often that very same advise is given out many years later.
Till you can get an urgent appointment,
Don’t do any strenuous e exercise, till your levels have come under much better control.
Drink plenty of water or non sugary drinks to keep yourself properly hydrated, as your probably peeing for England because your kidney are trying their very best to excrete excess sugar.
Tip, no added sugar doesn’t mean no sugar. Once again , apologies if you already knew this.
If you haven't already done so , reduce or cut out your carbohydrate intake esp the starchy ones eg, potatoes, rice, pasta and bread some people can’t tolerate wholemeal versions either. Sadly many breakfast cereals are high carb
Avoid obvious sugars too, ie fruit juice and though healthy many fruits contain lots of fructose
We usually have no problems with protein in any form, if you eat meat, go and like sausage and burger go for the high meat content ones.. this may surprise you good fats. eg dairy , some lower carbohydrate unsalted nuts, avocados
Sorry to hear about your experience. I am also worried about your situation. Rapid unexplained weight loss, alongside very high blood glucose could indicate that you have been gradually developing something like LADA (latent autoimmune diabetes in adulthood) which is a slow-onset form of T1 that many GPs would find hard to spot. Initially it can look like T2, but it is actually an autoimmune attack on the insulin producing cells in the pancreas, and once enough have been destroyed and the ‘tipping point’ is reached you would begin to exhibit the 4Ts of T1 - Tired, Toilet, Thirsty, Thinner.
I would suggest to try to get an appointment as soon as possible, and if you get abdominal pain, nausea or breathlessness, particularly if your breath develops a ‘pear drop’ smell, you should go directly to A&E.
Let us know how you get on, it do please act quickly as it’s better to rule out the forum’s (non-medically-qualified) suspicions, than to collapse with DKA from a misclassification.
As a medically qualified member of the forum, suspicions are in accord with everyone so far. 20+ is an alarm bell - A&E is the best bet for a quick response.
I've had those symptoms for about 3 months now and noone seems to listen to me. I can eat an evening meal and struggle to stay awake about 30 mins later. Up 3 times in the night to use the loo. Had phone appointment today with GP after registering a reading of 26.2 but was told to just attend my diabetic nurse wednesday morning.
They do not seem to be taking you seriously. Suggest you keep a record of your readings between now and Wednesday, before food, 2 hours after food, first thing, when you go to bed, and when you get up during the night. If your DN does not take you seriously either then take the lot to A&E and tell them your GP surgery just fobs you off. Also make sure you have with you your history of medications, and a list of the side effects, so you can give them the whole picture.
Have cut carbs to minimum a while ago and love my protein... eg meats etc. Its been call.good for about 8 months but since november gone crazy. After being put on the reducing medication (2mg I forget the name... glime something) it sent my levels down to 1.5. I've never felt so I'll. 2 sugar cubes later and back to 19.4. Gp tells me dont take any more unless it reaches 30 +. Am quite concerned but they dont seem to think its urgent. I'm lethargic, thirsty, peeing like I'm an Olympic medalist in urination... and the weight falling off at a rate of knots.....
Have cut carbs to minimum a while ago and love my protein... eg meats etc. Its been call.good for about 8 months but since november gone crazy. After being put on the reducing medication (2mg I forget the name... glime something) it sent my levels down to 1.5. I've never felt so I'll. 2 sugar cubes later and back to 19.4. Gp tells me dont take any more unless it reaches 30 +. Am quite concerned but they dont seem to think its urgent. I'm lethargic, thirsty, peeing like I'm an Olympic medalist in urination... and the weight falling off at a rate of knots.....
Oh goodness that sounds very worrying.
I haven't anything to add other than listen to everyone here and don't be fobbed off. I'd go to A&E like Felinia said - if your DN doesn't come up with something useful on Wednesday.
Hiya. I was like you..diagnosed type 2, everything ok for a while then peeing, high levels and losing loads of weight so i know how you feel. Luckily my GP referred me straight to my DSN and i was re diagnosed. All sorted out now and levels down. PLEASE follow the advice everyone has given you, push your GP/DSN to get it sorted or go to A&E. I hope everything gets sorted for you.
Hi guys and thanks for all your kind words and support.
My DN referred me to my GP who was quite concerned with the weight loss etc. Sh rang the hospitals specialised diabetic clinic who are reviewing my notes and will get back to me within 48hours.
Also referred for an urgent CT scan to make sure nothing very serious (am sure u all know) is happening to my pancreas.
Rather a worrying time but.... hey..... could be worse!
Hello @Tattoogirl.
Thanks for letting us all know how it is going, and good that you are at last getting some action from the medics.
I hope that this continues, and that you get your diagnosis sorted, and can then move on in an appropriate way.
As you can see from the responses there are many caring people on the forum who will do what they can to help.
Please keep posting and let us know how it goes.
It's amazing what happens when u see a different doctor isnt it? Will update . And thanks again.... without your help I would've just thought it was something everyone contended with.
Status
This thread is now closed. Please contact Anna DUK, Ieva DUK or everydayupsanddowns if you would like it re-opened.
