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Rant

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To expand on what northern said, normally baby is happy, even with lower levels as they are causing it’. They are in that magic bubble.

My daughter Jemima was fine the whole time. She was draining me of all glucose and energy to grow herself into a slightly chunky but very healthy baby.
Born 6 weeks early, let out after less than two weeks in neonatal! Superstar!

She was 6lb 4 at 34 weeks so a chunky but small baby.

She’s hardly ill. We can all get the same bug and me and hubby are very ill and she’s still happy enough to carry and go to school.

She’s everything and completely worth all that horrible pregnancy pain and stress! Xx
 
Phoebe - they are so keen to tell you every blooming downside under the sun just in case the sheet does hit the fan and you decide to sue them - they can utterly omit to remember you are a person ! Of course they can't get sacked for having no empathy whereas they might - if they omit something important ........
 
Thanks everyone.

I’ve just had a response from the diabetes team, basically saying sorry you felt that way but we concentrate on different things every week and we know it’s tough but maybe you should find a pregnancy and diabetes support group or something...

So basically - get on with it! It’s hard but tough.

So good job I have you lot right?!
 
PhoebeC said:
My daughter is nearly 7. Once I got past 20 weeks the sickness and non stop hypos hit. Every time I went below 5 I would start being sick and not stop.
All I could do to stop being sick was eat all the time, loads of sugary and carby things. I had to keep my levels up all the time to not be sick.
I woke up in a hypo one day and was out of it, my husband had to call an ambulance.
Another time I was that sick I couldn’t keep anything in and my levels where low for over an hour, I had to call 999 as I was nearly passing out but still throwing up.
All my meds reduced to nothing, and it just got worse the further along I went. T3 I was on hardly any insulin any hypoing all day. The Diabetes consultant never got to the bottom of why it happened, so I can’t tell you.
I just know that they had less idea than me what was going on.
Kept telling me about my weight and baby measuring big, but I had no other option, but eat all the time.

Each time I got my medication right my body would decide I needed less inlsuin and it could never be the right amount.

Ask them what would happen if you went unconscious with a hypo? Personally i would rather eat carbs than risk anything like that.

I put on 4 stone when I was pregnant!!! That was upto 34 weeks when I had her.

As soon as she was born it just feel off me as it was all the stuff I was having to eat to stay level. Weight can be lost.

Keep your chin up, you are the expert on your body. Only you know how you feel at the time.

They have never experienced Diabetes so everything they say is take a pinch of salt.

Take care. Here if you need to chat xx
Click to expand...
Phoebe how lovely to hear from you. What a remarkable story you relayed to grainger ~ and to come through all that to safely deliver your beautiful baby daughter ~ well you deserve a gold medal and more.🙂 I hope grainger that you don't feel as alone now that Phoebe has shared her story ~ chat with her as she has suggested, you have a friend there. Thank you for sharing your story Phoebe take care. xx
 
grainger said:
Thanks everyone.

I’ve just had a response from the diabetes team, basically saying sorry you felt that way but we concentrate on different things every week and we know it’s tough but maybe you should find a pregnancy and diabetes support group or something...

So basically - get on with it! It’s hard but tough.

So good job I have you lot right?!
Click to expand...
Whaaaaat? What a miserable and insensitive bunch of b******s! Yes you most certainly have got us lot hun and we'll be here as long as you need us.
Why not have a chat with diabetes.org.uk care line ~ they may be able to help you find a diabetes & pregnancy support group in your area? Just a thought🙂 xxx
 
Insensitive doesn't even cover it!
I hope @PhoebeC post has helped you feel a bit better. All my pregnancies were well before I was DX but they were all very different, I put a lot of weight on with one and barely any with another.
It's bad enough being pregnant without D, you're doing great, and we're all here rooting for you 🙂
 
Eating too many carbs? What's that supposed to even mean. Completely subjective. I'd try not to worry about it grainger and carry on what you're doing and what you think is best. 🙂 It doesn't matter how many years experience these medical staff have they'll never know what it's really like living with Type 1.
 
@PhoebeC your story is both shocking and inspiring. It’s incredible what our bodies can do right!
I think a lot of my issue right now is that with my first I had great care but my weight was never considered an issue (I only got weighed twice) and I put on almost 3 stone. But this hospital seem to be obsessing over everything and I feel like a number not a person.

Everyone - your support and backup is great thank you.

@Matt Cycle too many carbs is approx 180-250 I believe. Which is a lot more than I normally eat (80-120) but also less than I’ve been craving so for me an in between.

I’m going to try and write off today as feeling overwhelmed, and tired after rubbish broken sleep. Off to inlaws tomorrow so will likely lose my son for the weekend so guess r&r is on the cards.

Thanks again all. It is so appreciated x
 
Unless they've lived with type 1 themselves, they can't possibly understand the complexities. Yes, they have medical qualifications, and yes they may need to point out areas for you to tighten up on, BUT there's no excuse for letting a patient leave a consultation demoralised and upset. They should've praised you for keeping such a fab Hba1c, congratulated you on a healthy pregnancy/baby so far, commiserated on your feeling so nauseous and rotten, and then offered gentle and practical advice on carbs/diet in a supportive and encouraging way.
 
Urgh, Grainger that's rubbish - I'm sorry they were like that with you. I think a good chunk of the medical profession need to go on customer service courses to help them deal with people because taking someone at their lowest then kicking them is clearly never the way to go. I think you're doing well, and this is a good place to rant when you need.
 
grainger said:
Thanks everyone.

I’ve just had a response from the diabetes team, basically saying sorry you felt that way but we concentrate on different things every week and we know it’s tough but maybe you should find a pregnancy and diabetes support group or something...

So basically - get on with it! It’s hard but tough.

So good job I have you lot right?!
Click to expand...
Not a lot of helpful from them, but glad you let them know how you felt.
Yes we are here for you.
You are doing g brilliantly.
Congratulations
 
Grainger you are doing ace

Is there anyone there you can tell how you feel? The whole time I had a great team of nurses who worked with the rest of the team, I found them the most human.

Honestly I’d put the weight thing at the bottom of things to worry about.

Take care. Xx
 
Just caught up with this Grainger, and really sorry you are having to deal with unsupportive appointments while you are trying so hard and doing so well.

Ignore everything that doesn't help or provide you with benefit. You are awesome #thatisall.
 
Just caught up with this thread grainger. They sound like quite an insensitive bunch of people. How dare they make you feel demoralised like that .

You are doing an amazing job, don't ever forget that. And remember you did it before with your son so you CAN do it again.

And I'm sorry but they expect you to put on 7kg throughout the entire pregnancy !!? Really ?!

A type 1 pregnancy is so hard, relentless and frustrating the last thing they should be doing is making you feel bad. If they say anything again perhaps remind them that in your last pregnancy strategy X, Y, Z worked well and that you'll be doing the same .

You are doing so well, chin up xxx
 
Sorry Grainger have not been on for a while so only just saw your post. Really sorry to hear that you are being treated so insensitively, it really is too bad. You are doing brilliantly. I think that we all have to remember that most of these people cannot really have any idea of what having this disorder is like. They never have to push themselves and struggle like diabetics do with never a day's respite. Do try to put this unpleasant experience behind you and look forward to when you hold your new baby in your arms. Hope you have a good few days away and get some rest and are spoilt by those who love you 🙂
 
Thanks again all!

I’m doing much better (possibly the joys of not having an appointment for 3 weeks so all communication is done via email!)

I’m feeling more positive, my numbers are still generally good (single figures for the most part wit occasional blip) so I’m trying not to stress. I haven’t thrown up in a couple of days so that’s positive - nausea still a constant friend tho! Have my scan tomorrow so hopefully that’ll be positive and help ease worries - pebbles is definitely an active little one so in that respect I don’t need to worry.

Have taken everything you’ve all said on board and I’m taking the good where I can.

Friend of mine is newly pregnant so we are going to go swimming together once a week to keep active and I’m just going to do what I can to be healthy.

And as many of you have said - bollox to the weight gain - I’ve decided I’m not going to look when they weigh me in future and if they bring it up I’m just going to say I can either worry about that or my levels - they can pick which one! :D
 
And the sickness will be done to low levels as it is for all pregnant women. Those babies need that engery to grow fit and healthy/ Glad you are feeling more positive, and that you have a bump buddy!
 
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