• Please Remember: Members are only permitted to share their own experiences. Members are not qualified to give medical advice. Additionally, everyone manages their health differently. Please be respectful of other people's opinions about their own diabetes management.
  • We seem to be having technical difficulties with new user accounts. If you are trying to register please check your Spam or Junk folder for your confirmation email. If you still haven't received a confirmation email, please reach out to our support inbox: support.forum@diabetes.org.uk

Quick update on treatment not doing so well

Status
This thread is now closed. Please contact Anna DUK, Ieva DUK or everydayupsanddowns if you would like it re-opened.

mikeydt1

Well-Known Member
Relationship to Diabetes
Other Type
i did a post that i had gone for screening and my swab came back positive and with this started treatment at home. after a few days in i would wake up in the morning feeling somewhat sick once that feeling passed i would be okay then next i began suffering from full blown joint pains and feeling just awful.

well i spoke to my G,P service and the daft hospital hadn't notified that i had started treatment at home but a quick update resolved that issue and it turns out that i am suffering full blown side effects.

i have been told to try and get to the end of treatment but still have a week to go. doesn't sound too long to go but believe you me this is just horrid. today i have phoned the hospital as whatever does not seem to be clearing so they are going to make me an appointment to decide what to do next.

the only sort of relief is when i can lay down which is where i am going after posting this message. i was even sick on my pillow case the other night.

i know i am fairly tough but think this one is going to beat me side effects wise. the pain gets so bad that even tramadol isn't touching it at times.
 
Sorry to hear that you're suffering with bad side effects. I hope you can get some relief soon. X
 
many thanks stitch. i did see your other post. for me personally i would take a week off work if possible just to let the vaccine work a little bit in your system as you can still get covid but at the same time it can still be passed on. the whole idea is that if you do get covid your body is able to fight it a little better trouble is there is not a lot of data around to show anything it is just this gov playing things up to make thing look good about the vaccine without any backup.

for me the battle continues.
 
If people needed to do that mikey - I think they'd have found that ot by now bearing in mind 14m people have already been vaccinated of ALL ages because the HCPs and keyworkers had their first jabs far sooner than the vast majority of us. Margaret Keegan may have been very elderly but our healthy 16yo granddaughter who has an evening job cleaning at the Uni hospital locally isn't and had her first one in early January. Shedloads of folk like her, at work throughout.
 
The morris side had a Zoom meeting today. One member said that her downstairs neighbour is in hospital very seriously ill after having the jab - he was not a well man, had a lung removed some time ago, doesn't look good for him, apparently.
 
well update i had the results and it is a super growth the only trouble it is not responding to treatment and the treatment is all ready harsh. i have been recalled and am going back to hospital next Thursday sigh with a big gulp. i am in such bad pain just hope to god they don't extend the treatment with the same medication. makes me wonder how long this has been within my body which is why it is been very resistant to treatment and i have part 2 to go.

i was on FB about the jabs seems there is mixed results for both oxford and bio tech people are okay and then not okay. i have been told to wait till i am better then to get it booked in the question is when if the hospital is going to dish out treatment which is making me feel rough
 
I hope they can get this sorted out for you.
 
Try to go to bed on an empty stomach if that is possible, in case you are sick when you are asleep. The thought of choking worries me. :(
 
So sorry to hear you are suffering so much and really hope that you turn a corner soon x
 
Mikey - I'm not about to go anywhere any time soon. We've both been house locked since last ruddy March, a few more months won't hurt us. Whereas, Stitch may feel differently, not having needed to isolate herself that much in the interim. Up to her and her employer - not me, you or the Mayo clinic. I doubt if we'll be allowed to travel very far for several months yet, but we await Bojos Roadmap on Monday to find out what the Gov has in store for us all.

I am sorry you've got trouble at the moment, pain is very wearing without anything else. Hence, you certainly do have my sympathy, but also know that's no help.
 
I am so sorry to hear you are having such a rough time and can only guess at how worried you must be .
 
i was sick on my pillow not a lot. think i had something to eat before going to bed and not even sure why i had something to eat as i have been fasting to help the diabetes.

my recall has come through and i go next Thursday to Maxillo thank god the other good news is that i am on my last week of this horrid treatment and am praying to god that this super growth is knocked out i will soon know when i go back. it is the other stage of treatment what worries me the dreaded biopsy last time though it did come back benign.

i can guarantee at the moment i take the medication with food in the morning no pain then by afternoon i sit here with every joint in agony and all i then want to do is lay down. this morning i got up and yep i wanted to vomit. i just wish someone had told me that it was going to be rough treatment and to just get through as best as possible.

anyone out there know what the heck a super growth is as i have never heard of them?

if things are okay after next Thursday then i am going to get my vaccination booked in asap then at least that is out of the way. lady next door was fine with it but 3 others on same row were poorly and one had to go to hospital she is okay now does seem to be a mixed bag of side effects going on.
 
Got to be honest @mikeydt1 I have never come across a ‘super growth’ and I just hope for your sake that this treatment does the trick and you stop having those dreadful pains.
As for the vaccine I personally have only come across one person who had a reaction where their arm was quite warm and swollen but she was fine after a few days. Hope you can have yours soon x
 
the taxi driver who took me to a shop this morning has had the vaccination and only had a dodgy tummy for a few days not sure what it is with this close seems everything goes on here. think i will have to find a lucky horse shoe and nail it to my door. what was weird one lady who i have mentioned on her had the vaccine and was taken to hospital as it gave her uti like symptoms another ended up bedbound i just don't get it.
 
I've not yet heard from anyone I happen to know who's had a really bad reaction to the jab. We're members of a large camping organisation with c 3 - 400 members and currently both on the Board of it. Some of us have Zoom get togethers on Fri and Sat mornings weekly, most of us lot are 'a certain age' and a high ppn have had to self isolate (on & off as & when) from last March - and we have all been missing being out in the countryside for rallies in our caravans and mohos with our like minded pals, so it's good to touch base with each other. Most of us (some are well over 80) have had jab 1 and of course we all have neighbours, relatives and friends not members of the club too. But, no-one has reported any horror stories.
 
Status
This thread is now closed. Please contact Anna DUK, Ieva DUK or everydayupsanddowns if you would like it re-opened.
Back
Top