Please please help

[micosmiling]

Hi,
I've been trying to register on this site for over an hour so I can post in this forum. Please test your site on Android browser registration. I've got a little Web designer experience. If you want to ask me questions then please do. Your site to register has frustrated the f@#&k out of me. Not good.
Not good at all for depression in type 1.
My wife is type 1 and severally depressed after a car crash. I'm reading about new terminology for munchanhausan and factitious disorder type 1 diabetes. Sorry for the first spelling. Surely some one has done connections in this and diabetes.
So much correlation with my wife. Very sad.
Regards
Mico

 

[KARNAK]

Hello @micosmiling welcome to the forum.

On behalf of the members and staff please accept our apologies and we are very grateful you
managed to finally became a member, every member is our family and support is second to none.

Your dear wife will get the support on here she needs but we are not allowed to advise on medication
or diagnosis but we can give an opinion, don`t worry about having a rant we all do it get it off your
chest.

My wife is type 1 and severally depressed after a car crash. I'm reading about new terminology for munchanhausan and factitious disorder type 1 diabetes

So sorry your wife was involved in a car crash no wonder she`s depressed and our hearts go out to you both. {{{HUGS}}

We will need some info from you including when diagnosis was confirmed and what insulin she is on also any other
medication relating to her Diabetes this is to help us to help your wife, also are her daily results under control if not it
would be great to have a little info on her daily figures. Is she on finger prick tests, Libre, pump, sorry about all the
questions but for us to help you and your wife as much info you supply will be very grateful.

Enough for the moment thankyou for joining our wonderful forum, I hope you can appreciate its late and you may not
get much response tonight but please keep on posting that includes your health too.

Kindest regards.

Ted.

 

[Cherrelle DUK]

Hi @micosmiling, welcome to the forum.

I'm sorry to hear that you had difficulties registering on the site. I'll pass this feedback along and will let them know that you're open to providing further insights.

It sounds as though you and your wife have been through an awful lot so I can understand your frustration. I'm not clear on what you mean by "munchanhausan and factitious disorder type 1 diabetes". if you could elaborate we could look into addressing this further.

Sometimes, where there is a complex history, it might be worth giving us a call on 0345 123 2399 so we can listen to your concerns and help with any pressing needs you may have.

Managing both physical and mental health challenges at the same time can be incredibly difficult so if there's anything we can do to support you, please do let us know.

 

[micosmiling]

Hi,
Thanks for all the replies. My wife 39 is on a 1 to 1 ratio of novarapid. Every 12hrs 35 units levemir. She is currently on prescription libre monitor and very occasionally finger picks. She has been diabetic since during pregnancy and that was roughly 16 years ago diagnosed. Hba1c was 100 and we was trying to have another child. We have got her down to around 58 and hanging on there just about. She does get very low but I understand with Diabetes (it should be classified as a disability in the UK) very hard work. Since the accident she has got very very angry and short tempered.....more so than usual. I can't watch all the time dosing and wonder if she is showing signs of this factitious disorder. I have the libre connect app to my phone and I try to look at her phone for dosing and carb levels etc but I feel like I'm spying. Not sure on who will listen to me & also with the anger issues if it's even a good thing to do behind her back. Also with the baby thing, she knows she's getting near the 40+ age and times running out which is putting more stress on her. (also the seat belt tensioners exploded in the crash so badly hurt her stomach but nobody seemed interested to examine her at the hospital).
Regards
Michael

 

[Inka]

Hi @micosmiling Sorry to hear about your wife’s troubles. It must be hard.

I’ve never read any studies about a link between Munchausens, Facetitious Disorder and diabetes. Apologies but I’m not clear what you’re suggesting. Are you wondering if your wife is missing insulin doses?

Type 1 is extremely hard work and there’s something called Burnout where it all gets too much and the person struggles to maintain control and do all the daily tasks of diabetes. Could this be something that’s affecting your wife?

Does she have a DSN (diabetes nurse) to talk to? Is she actively trying to conceive at the moment? If so, she should be able to talk to a Pregnancy DSN too.

 

[everydayupsanddowns]

Sorry to hear about the difficulties your wife is going through - and you too.

Burnout can be a very real challenge for people living with a long term condition as fickle and frustrating as T1, from which there are no days off, and where even your best efforts seem not to be enough.

Not only that but in my experience erratic and elevated BG levels have a direct impact on mood and state of mind. So if you aren’t careful you can get a physiolocically low mood combined with psychological and cognitive impact of frustration, anger, hopelessnes, denial and feelings of guilt and failure. A heady cocktail.

But diabetes IS manageable. And small improvements can make a big difference. Even simply sharing frustrations, worries and fears on a forum like this can be incredibly powerful. Along with picking up a few practical hints, tips and pointers.

But you have to be in the right head-space to receive that, of course.

Hope your wife can access some clinical and psychological support to make her BGs more stable, and to begin to unpack the thinking traps she may have inadvertently fallen into.

 

[micosmiling]

I’ve never read any studies about a link between Munchausens, Facetitious Disorder and diabetes. Apologies but I’m not clear what you’re suggesting. Are you wondering if your wife is missing insulin doses?

Hi,
I'm at a loss, clutching at straws really. I've read a lot about burnout and try to sympathise, encourage her motivate her and I do as much as I possibly can for her. Once the mindset has set in though it's hard to break and to open up to her nurse is a no no, as she thinks they're out to Judge her all the time.
I think I just needed my own support and will try to carry on with helping my beautiful wife and this horrible diabetes
Regards
Michael

 

[Docb]

Hi @micosmiling. I will chip in with my usual thought for those in a caring role and that is to ask whether you have looked into what carer support is available in your area. Local authorities have a statutory obligation to provide carer support but there is a massive difference in the quality of support from council to council, some these days barely providing the legal minimum. Nevertheless, it is worth googling "Carer Support" with your local authority name and see where you get. If you are in one of the better areas, you will be able to self refer and then get access to a support structure designed for carers in all their guises.