Picnic!

[Sally71]

School picnic yesterday. Daughter was very nervous as she thought it was all going to go wrong again like the Christmas Party did. But in the end it all went quite well 🙂
The demon teacher wasn't even there so that was a good start. The PTA were helping out and I managed to get myself positioned with her year. She came out and said she'd already done her special party bolus (large number 50% up front 50% over 3 hours). Being what I thought was perhaps a slightly fussy mum I checked the handset memory to see - and discovered that she'd forgotten to set it up as a split dose and had just whacked the whole lot in at once! 😱😱😱
So we collected up as many iced and jammy biscuits as we could find and said that she'd have to eat them as quickly as she could. She obliged and ate as many as she could until she felt sick. Then all I could do was hope that we'd done enough and keep an eye on her levels. She had a good time anyway 🙂
For the next two hours her blood sugars were rock steady at 6.9, I was just beginning to think we might have got away with it but then they rocketed up to 21 😱 Didn't manage that quite as well as we thought we had then!
Oh well, c'est la vie, it all came back down again after a correction dose and an hour swimming with the Brownies. One crazy day occasionally isn't going to hurt her. Unfortunately it's her birthday next week so that will be another one

 

[Northerner]

Oops! 😱 Glad to hear she enjoyed her day in spite of the Fairy interfering with her party bolus! 🙂 Hope all goes like clockwork on her birthday! 🙂

 

[Pumper_Sue]

One crazy day occasionally isn't going to hurt her. Unfortunately it's her birthday next week so that will be another one

Oh def needs more special occasions so can practice the boluses 😉 Happy Birthday next week to the very special young lady.

 

[Amigo]

Aww bless her for trying herself though...these calculations must be so tricky. No harm done and glad she enjoyed herself 🙂

Maybe they'd sent the 'demon teacher' on a diabeties awareness course that day! Lol

 

[trophywench]

Oh - sorry Sally - but that's made me laugh! a prime example of 'the best laid plans o' mice and men ....' if ever I heard one !

I think you should look old Rabbie on the web, and show her the saying, an opportune moment to promote the everyday usefulness of a good education in the Classics!

 

[Sally71]

@Amigo - they are supposed to be arranging for the nurse to go in and do some staff training, the nurse is well up for it, but the senior staff member who is supposed to be organising it can't manage to get in touch and fix a date with her, I'll be very surprised if it ever happens

Daughter says she probably won't ever make this mistake again lol

 

[Diabeticliberty]

Please ask her for some more poetry please. I'm still chuckling from her last one.


PS please wish her a very special birthday from me

 

[Sally71]

Unfortunately all her other poems are too sad, all about being locked in a prison cell without a key, they make me cry

 

[Northerner]

Unfortunately all her other poems are too sad, all about being locked in a prison cell without a key, they make me cry

Is that because of her diabetes? Better that she expresses her emotions than bottles them up, but it must be difficult as a parent {{{HUGS}}} As a kid I loved Dr Seuss and Edward Lear, which is why I think a lot of my poetry has pretensions to humour - might it be worth encouraging her in this direction? I find that looking for the ridiculous in things helps reduce its negative impact 🙂

 

[Sally71]

Yes unfortunately

I am inside a prison
Nowhere to go
No one will listen
NO NO NO!
The world around me
Are all wrong
My cell growing larger
No way to escape
The key can't be found
But please let me out.

Diabetes getting bigger
The cage around me growing too.
Then there she is
Just like me
But now she's gone
She never stays for long
Then next to me
I want to see
Somebody just like me!

 

[Northerner]

Bless {{{HUGS}}}

 

[AJLang]

Bless her. Growing up with diabetes is horrible but as you get older it gives you a better perspective on life. Obviously I wish that I hadn't been a child with diabetes but I'm sure that it made me do so much more once I got to being in my teens and older.

 

[Bloden]

Yes unfortunately

I am inside a prison
...
I want to see
Somebody just like me!

Oh dear, Sally. Poor little thing! Can she go to a diabetes summer camp? Is there such a thing in the UK? That way she'd be around diabetic people 24/7 for a couple of weeks and make lots of friends in the same situation as her. 🙂

 

[Copepod]

Surviving, even enjoying, a few more days when diabetes control is less than perfect seems to be the way to go to help your daughter regain zest for life. I know for sure my blood sugar control wasn't optimum yesterday, which involved chores all morning, then driving 150 miles, a spot of solo geocaching, 1.5 hours rounders, then BBQ (last two events were a staff party, with many children involved), driving 150 miles back home, arriving 10pm. Still, levels were safe for driving. One of my colleagues, who also has T1D, had done Outlaw Triathlon (half ironman distance) that morning, so was wearing compression socks for rounders, then enjoyed extra burger for protein and potato salad for carbohydrate recovery.
Can I enquire if she feels it's diabetes or her insulin pump that restricts her? Obviously she'd still need to do blood tests and calculate carbohydrate content and other factors with pens, but at least you can put your pen in a pocket or bag between injections.

 

[Pumper_Sue]

Yes unfortunately

I am inside a prison
Nowhere to go
No one will listen
NO NO NO!
The world around me
Are all wrong
My cell growing larger
No way to escape
The key can't be found
But please let me out.

Diabetes getting bigger
The cage around me growing too.
Then there she is
Just like me
But now she's gone
She never stays for long
Then next to me
I want to see
Somebody just like me!

Just a suggestion for you Sally, do diabetes UK still do summer camps for children with diabetes and do you think this would help at all?

 

[Northerner]

Just a suggestion for you Sally, do diabetes UK still do summer camps for children with diabetes and do you think this would help at all?

Listed here:

https://www.diabetes.org.uk/How_we_help/Care-events/Childrens-Events/

 

[Diabeticliberty]

Awwwwwww I am sat here with red eyes. She is extremely bright and diabetic or otherwise she will undoubtedly do very well for herself in life I expect. I do not know of any if any kids of her age with such insight. I do not know what it is like to develop the condition so young. I was a young adult when diagnosed. It must be absolute hell for her and pure torture for you. I have much respect for both of you.

 

[Sally71]

Hi all, thanks for your replies!

We do meet up with other families with T1 kids from time to time, and are actually having a weekend camping with them in July, daughter loves that. We saw another little girl with a pump a couple of weeks ago but daughter went all shy and wouldn't go and talk to her! I might investigate the summer camps/events, thanks. Daughter has requested seeing a counsellor too, hopefully that will happen next week.

We get some glimmers of hope, she made a joke about something D-related the other day, and in small ways she's starting to learn how to deal with some nosy people, it's very small steps though. @Copepod it's the diabetes itself that she doesn't like, the whole kerfuffle every day and being different. She loves her pump!

She had a fab birthday, lots of presents and a party with bouncy castle in the garden. She practically hugged me when I said we wouldn't bother faffing about finger pricking in the middle of the party - did a Libre scan before anyone arrived - 9.6 (close enough, not worth trying to manage it too tightly on a day like that!), then I set up her bolus by remote control while she was eating (will miss that when we haven't got the Combo any more ) and then we scanned again when everyone had left (7.4 and dropping). She dipped to 4.2 at one point but I think she must have recognised it because she was eating a biscuit when I scanned her! Libre is brilliant, so much easier to keep an eye on her without major fuss!

Because of all the bouncing I put her on a 80% temp basal overnight, exercise after tea seems to impact her levels several hours later. At 2am she was 17, oh bother didn't need the TBR then! Did a correction, and rather than turn the TBR off altogether I increased it to 90% so still a bit lower than normal. Wasn't going to check again but found myself still awake at 4.30 so did, and she was LO on the Libre and 3.4 on the finger prick 😡 Sometimes I feel like I haven't learnt anything in the last four years!
Actually I did have a fleeting thought of doing Trophywench's trick of not doing the full correction dose, but as it wasn't a hypo rebound and was quite possibly due to the delayed effect of lots of biscuits I didn't. Ho hum. Daughter just laughed this morning and said "well it was a crazy day mum!"

 

[Northerner]

Glad to hear she had a great day 🙂

 

[Diabeticliberty]

With respect you cannot just say lots of presents and leave us all guessing. What did she get? 🙂

PS A mild word of warning. Never ever try getting on or off a bouncy castle when drunk or even remotely intoxicated. I do of course suggest this for your benefit and not hers.