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Physical activity

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I use a vibrating/oscillating exercise machine Amanda and even when my joints are very bad, the muscles get a good work out and I can do simple exercises on there that are not too extreme for my condition.
It’s not the same as a cardio work out but it keeps the muscles and joints moving, the cellulite down and is very good for the circulation. You need a decent machine because the smaller, cheap ones just rattle your teeth! Lol
 
Thank you Amigo, mum had one like that and really enjoyed it. Unfortunately I haven't got room for one - I don't mean that to sound negative - but my house is small and literally every corner/piece of room has something in it. We only realised yesterday that we hadn't got room for the Christmas tree (not that we're putting it up yet) so Mark had to do some imaginative moving around 🙂
 
Thank you Amigo, mum had one like that and really enjoyed it. Unfortunately I haven't got room for one - I don't mean that to sound negative - but my house is small and literally every corner/piece of room has something in it. We only realised yesterday that we hadn't got room for the Christmas tree (not that we're putting it up yet) so Mark had to do some imaginative moving around 🙂

Yes they can be bulky Amanda so I understand. Also when they are tucked away in a bedroom they don’t get used so much. I fortunately have a huge room so I can wobble away watching the tv! (Not an edifying sight I’m sure at teatime!) :D
 
I think I've come up with an exercise plan - very short sessions on the exercise bike i.e. 2 minutes for the moment, 10 minutes of chairobics and getting out of the house a bit more making sure that I've had my painkillers and that there is somewhere to sit at least every 5-10 minutes. I won't be able to manage that every day, especially as my motivation for a lot of things in life is generally absent at the moment due to depression (I'm either down or up and it varies) - plus the CFS fatigue levels - but at least my plan gives me variety and I may also get to go swimming some weekends when I can get a lift.
 
Yes they can be bulky Amanda so I understand. Also when they are tucked away in a bedroom they don’t get used so much. I fortunately have a huge room so I can wobble away watching the tv! (Not an edifying sight I’m sure at teatime!) :D
Oh Amigo you have made me laugh 🙂
 
That's a good idea Ralph, yes I must be careful. I'm not very good at not recognising my limitations until I end up in yet another pickle 🙂
 
Now on tablet on it was such a failur doing the last two posts. And took half an hour at it
Ugh😡
 
One of my Yoga teachers just posted a YouTube video with a very easy yoga sequence which should help with lower back issues....
 
Thanks Ralph for the suggestion. I've just looked self-referring myself for NHS physio and it's an 18 week wait and they won't come to my house. I have looked at private physio but can't really afford it because they've said that I will need to go for several months.
You might find it's a referral from your GP to an OT rather than a physio. I had an absolute cracker who came and saw me at home and made some very useful suggestions which included an exercise bike and starting off at a minute per day and building this up to 5 mins a day. The OT was a specialist ME OT. Even though my diagnoses was wrong and I do in fact have MS and not ME her advice was none the less sound and very helpful because I can now walk a reasonable distance now even though it's with a stick.
 
You might find it's a referral from your GP to an OT rather than a physio. I had an absolute cracker who came and saw me at home and made some very useful suggestions which included an exercise bike and starting off at a minute per day and building this up to 5 mins a day. The OT was a specialist ME OT. Even though my diagnoses was wrong and I do in fact have MS and not ME her advice was none the less sound and very helpful because I can now walk a reasonable distance now even though it's with a stick.
Thank you for that Sue. I have been in touch with the council's services this afternoon to try to get an OT appointment, I'm waiting for them to contact me. The website said that if the problem has been longer than a year to go through the council rather than GP. I'm feeling positive although our council is in a dire financial situation i.e. They've just deducted a day's pay from all staff! If they can't help I have a GP appointment on November 13th.
 
One of my Yoga teachers just posted a YouTube video with a very easy yoga sequence which should help with lower back issues....
Thanks Martin. I'm not sure if I can manage all of those exercises but I'm going to try 🙂
 
I meant to add that I've also got a rheumatologist appointment the first week of Janauary and I'm also seeing an osteopath. I am trying everything that I can think of 🙂
 
Although having said all that when rheumatology diagnosed the CFS five years ago they discharged me to my GP, who was very thorough as a GP, but told me to look at the internet about what to do with CFS. We have no CFS/ME specialists in my county.
 
Another option, if there are classes in your area are FABS groups. https://www.moveitorloseit.co.uk/

I have a friend who is an instructor, then her husband did the course too, because they enjoyed it. She now does classes locally. It's very much an NHS promoted and supported form of exercise, and can be as east or hard are each participant makes in on the day. All of the exercises can be done sitting, standing beside , for a little support (a bit like a ballet barre), of free-standing.

My friend did a session as part of our local DUK Group meeting, which meant the participants ranged from 20's to 80's. Through the session some sat, some stood and some were even having little rests. It was great fun. 🙂

I'm sure you'll find something to suit you.
 
Thank you very much AndBreathe. I've just had a look and unfortunately there aren't any classes near me, which is a shame.
 
I meant to add that I've also got a rheumatologist appointment the first week of Janauary and I'm also seeing an osteopath. I am trying everything that I can think of 🙂

Often the rheumatology departments will have an OT as part of the team Amanda. Ask for an appointment.
 
Thank you for that Sue. I have been in touch with the council's services this afternoon to try to get an OT appointment, I'm waiting for them to contact me. The website said that if the problem has been longer than a year to go through the council rather than GP. I'm feeling positive although our council is in a dire financial situation i.e. They've just deducted a day's pay from all staff! If they can't help I have a GP appointment on November 13th.

OT’s who work for the Council will be more involved with disability equipment and adaptations to property Amanda. It isn’t the full remit of their role but in honesty it’s what they tend to do working for Social Services.
 
Thank you Amigo I hadn't realised that rheumatology might have an OT attached.
With regard to council OT I did wonder that after looking at their website.
I did contact a private OT company but just the assessment was £450!!
 
Hi @AJLang, I also have (intermittently) problems with my back that make walking or just standing very painful, and have found a folding walking stick seat really helpful. Not cheap, but just having it with me gives me confidence that I can sit down when I need to, so I go further than I might without it, and don't need to scan the horizon all the time for possible seats!
I am at the upper end of the suggested weight limit, and it copes well with that. There are 3 sizes, you need to get the most suitable for your height. Not all suppliers stock all 3. VAT relief is possible.

https://www.completecareshop.co.uk/...MIyqyMpYWi1wIVorftCh0EKA6pEAQYBSABEgJhx_D_BwE

Hope the link above works - you may need to copy and paste rather than just click, sorry, my IT skills very basic!
 
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