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Parent of newly diagnosed child

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Polareclipse

New Member
Relationship to Diabetes
Parent of person with diabetes
Hi folks
Son is 9 and was diagnosed last week with type 1 . Today in clinic we were told his bloods showed a strong positive for coeliac. I am so sad and overwhelmed .
 
I understand why things seem very overwhelming at the start.

There is a lot to learn in the early days but it does get easier.
There is a lot of help available on this forum and the Diabetes UK website.
You might want to look at the section here specifically for parents of children with Type 1.

Don't be afraid to ask questions here, everyone is keen to help.
Just take things step by step.
 
I'm sorry to hear about your son polar eclipse, It must be very overwhelming at the moment, especially given the two diagnoses within a few weeks. There's lots of support to be had here when you need it, and have recovered from the shock a little. It is a massive shock and a big change for all of you so give yourself some time to acclimatise, one day at a time (actually one minute at a time if needs be). Hope your youngster is coping OK 🙂
 
Hi folks
Son is 9 and was diagnosed last week with type 1 . Today in clinic we were told his bloods showed a strong positive for coeliac. I am so sad and overwhelmed .
Hi Polareclipse, welcome to the forum 🙂 So sorry to hear about your son's diagnosis, and potential Coeliac's :( Unfortunately, Coeliac is common amongst Type 1s as it is another autoimmune disease. It does present an extra challenge, along with the diabetes, but please be encouraged by the fact that people do live well with both conditions, the key is knowledge and planning.

I would highly recommend getting a copy of Type 1 Diabetes in Children Adolescents by Ragnar Hanas - considered to be the 'bible' for children and young people on insulin regimes. You might also like to get a KIDSAC from JDRF, which includes a Rufus bear who can help children cope with injections and fingerpricks. I'd also recommend reading Adrienne's Essential Guide for newly-diagnosed children

Please let us know if you have any questions - there are lots of friendly, knowledgeable people here who know just what you are going through, and will be happy to help.
 
Hi and welcome to the forum. Sorry to hear about your sons double whammy - not only overwhelming but very confusing.
 
Hi folks
Son is 9 and was diagnosed last week with type 1 . Today in clinic we were told his bloods showed a strong positive for coeliac. I am so sad and overwhelmed .
Hello and welcome to the forum. Wow your flabber must be gusted with all that info to take in. Even though it's feels like a mountain to climb things will become easier as the days go by. Coeliac isn't that much of a problem once you have sussed the basics, just be prepared for very long shopping trips to start with as takes so long to read the ingredients this again does get easier.
 
Hi and welcome to the forum. It is a massive shock at first but as others have said it will get easier. There will be ups and downs along the way but with a bit of hard work and your support things will work out fine. There are a number of T1's in professional sport, music, the media, politics etc - it shouldn't and doesn't stop anyone from achieving what they want to.
 
Thanks everyone. It's always been my kitchen and my cooking. Already getting told how to run my kitchen now from family members. Just feeling overloaded at the moment. Praying for a final negative diagnosis on the coeliac but a mother's instinct had my suspicion s before the strongly positive came through. I feel like I am in a period of mourning .
 
Hi polareclipse and welcome. It is hard when others think they know best and offer good sdvice-in their eyes being helpful. I think diagnosis fo me did generate a period of mourning at the change, and for you as a mum and son a double whammy.theres tons of support here.hope this makes sence. Carol
 
Hi, and welcome to the forum. You have my sympathy, I too support a young man with learning disabilities and other health issues who developed type 1 only 2 years ago. I am just starting to relax about it and you will too in due course. I understand the enormous sadness, I felt that too and spent many nights snivelling and wishing it had happened to me, and not him. However, the positives, knowledge is everything. There is a lot to learn and most of it you won't get from the NHS, not because they are defective, but because you need advice on a day to day basis, from the start and this forum is excellent for answering questions very quickly. The other thing that I would say is read everything you can, the Ragnar Hanas book recommended is excellent. And one thing I was told early on (and which I didn't quite follow) was that when you do tests, they are not a judgment of how well or badly things are going, they are there to advise you what to do next, what insulin is needed or what food. I used to get quite shaky when doing bloods as I was always worried that they would show something unexpected. They often do, diabetes is an unpredictable beast and all sorts of things can make a difference, stress, heat or cold, exercise as well as too much food, too little or too much insulin or too little. You honestly do start to get a feel for things after a while and will relax. Finally, finally, have heart that treatment of diabetes is improving all the time with some real developements that look as if they will lead to very effective treatment or a cure in the not too distant future. I know that everyone says that they have been saying that for years, but we have the internet (for better or worse) and it is easy to follow what is happening and to be kept up to date about the availability of new insulins and new testing techniques. Hang on in there, you will be fine and it is perfectly normal to feel so sad.
 
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This thread is now closed. Please contact Anna DUK, Ieva DUK or everydayupsanddowns if you would like it re-opened.
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