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Out without testing gear/glucose

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This thread is now closed. Please contact Anna DUK, Ieva DUK or everydayupsanddowns if you would like it re-opened.
lauraw1983 said:
Sorry I am coming into this without knowing the full details, what age is your son? Sounds a heartbreaking situation as a Mum :(

Has he had/been offered any counselling about dealing with his diagnosis?

I truly feel for you - must be so hard xxx
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Hi Laura

My son turned 17 last week, so at the awkward half boy/half man stage. I did ask his DSN at our last appointment if he could see the counsellor. It has been left that he will sit in on his next clinic appointment (haven't got date yet but should be mid March) and if things haven't drastically improved (last HbA1c 12) then he will take him for a one to one session there and then. If my son is asked if he wants to see the counsellor he will say an emphatic NO. At least this way it will be taken out of his control so to speak.

We go to visit the DSN on her own on 24th of this month, and she has confirmed she will do another HbA1c then, so at least if he is still not testing we will get some idea whether he is injecting better than he was and she may adjust the dose of the Humilin M3. All the signs are that he is. He leaves his pens lying around and only because I am worried I am looking at them most days when he is out, and all 3 are now being used it seems. His moods are definitely better so I do believe his levels are lower, and his skin is much better too (at that spotty stage too - bless him!) Much as I do worry he isn't carrying his gear, I am now worried that if I make a big issue about that, he will go back a step with injecting, so maybe one step at a time.

He always has plenty of food in his lunch box including a cereal bar, but of course if he eats all that early then feels hypo later, he will be stuck. Whether he has any dextrose tablets or coke on him is anyones guess. At least the nurse at school has some.
 
Just to add he has been in a lovely mood this afternoon, so I took the opportunity to say I noticed he hadn't taken his meter to work yesterday or school today. He said he knew that. I then said it worried me more that he hadn't got any glucose with him. He said he had, even invited me to look in the front pocket of his bag (I didn't - I like to trust him) and said he always carries that but doesn't see the point of carrying his meter as he knows when he is low and just eats. I know someone said that is the most important thing, and I feel much more reassured now I know that.

Given that he is injecting much more now I am going to give him a bit of breathing space. I did mention that he really does need to put a new cassette in his meter and get a few readings for the DSN, but will leave it at least another week before I mention that again - we go in 2 weeks to see her again.

Much happier now :D
 
Tina63 said:
Just to add he has been in a lovely mood this afternoon, so I took the opportunity to say I noticed he hadn't taken his meter to work yesterday or school today. He said he knew that. I then said it worried me more that he hadn't got any glucose with him. He said he had, even invited me to look in the front pocket of his bag (I didn't - I like to trust him) and said he always carries that but doesn't see the point of carrying his meter as he knows when he is low and just eats. I know someone said that is the most important thing, and I feel much more reassured now I know that.

Given that he is injecting much more now I am going to give him a bit of breathing space. I did mention that he really does need to put a new cassette in his meter and get a few readings for the DSN, but will leave it at least another week before I mention that again - we go in 2 weeks to see her again.

Much happier now :D
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Now that's what I call progress 🙂
Perhaps at another stage suggest the consultant or DVLA will need to see meter readings so his driving licence can be approved.
Glad he is feeling happier now and so is his Mum. 🙂
 
Good news Tina! It does make you wonder if it's because his levels are improving his mood because of the insulin he is now taking 🙂 And reassuring about the glucose. I must admit, I'm one of the people who wants to know how low I am when I feel low, but agree it's not absolutely essential.
 
Tina63 said:
Just to add he has been in a lovely mood this afternoon, so I took the opportunity to say I noticed he hadn't taken his meter to work yesterday or school today. He said he knew that. I then said it worried me more that he hadn't got any glucose with him. He said he had, even invited me to look in the front pocket of his bag (I didn't - I like to trust him) and said he always carries that but doesn't see the point of carrying his meter as he knows when he is low and just eats. I know someone said that is the most important thing, and I feel much more reassured now I know that.

Given that he is injecting much more now I am going to give him a bit of breathing space. I did mention that he really does need to put a new cassette in his meter and get a few readings for the DSN, but will leave it at least another week before I mention that again - we go in 2 weeks to see her again.

Much happier now :D
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Good result! Thanks for reporting back - always good to hear good news.

He's right in stating that knowing when he goes low and taking action is more important than testing to discover he's low. As you say, best wait a while before suggesting again that he takes more readings.
 
Good news Tina, I'm so glad, you must be relieved.

My daughter quite often goes low on the bus home from school (still not quite sure why) and she finds it impossible to test - she just has some glucose out of her pocket or some OJ if she can reach her bag (school bus overcrowded of course) Her journey us about 20 mins so she is usually just coming back up when she gets home - if she doesn't feel right she might test, but usually will just have her snack. It's not ideal but sometimes(often) diabetes has to fit round life IMO.

Bet your son is feeling better with his improved levels, hence the better mood.Not likely to admit it any time soon tho':D
 
Have to add my voice to the atleast he's eating something team. Back in the 90s I just had to go by feeling yamming down a whole bottle of lucasade 😱 plus marses 😱😱. He will have greater hypo awareness as really dropping low will be strange to him. One of the danagers of being really well controled is loss of hypo warnings.

Plus mixtard may be a good move for him as it will keep insulin flowing. MDI like pumping needs work and if people don't do it, best to be on a mixed insulin.

Marc
 
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