-
Please Remember: Members are only permitted to share their own experiences. Members are not qualified to give medical advice. Additionally, everyone manages their health differently. Please be respectful of other people's opinions about their own diabetes management.
Online study of type 1 diabetes and knowledge. A chance to win a ?20 Amazon voucher!
- Thread starter Matt91
- Start date
- Status
PattiEvans
Well-Known Member
- Relationship to Diabetes
- Type 1
- Pronouns
- She/Her
I found some of the questions difficult to answer because none of the responses was actually correct. e.g. does protein raise BGs. Answer (which I wasn't able to give) is that protein in the absence of carbohydrates can raise BG but isn't so likely to if carbs are eaten at the same time.
I was also somewhat mystified by the final page where the study apparently found that people got lower Hba1cs when they relied on their health team to manage their D. I find managing my own is far more successful - I'm the one who lives with it day to day.
I was also somewhat mystified by the final page where the study apparently found that people got lower Hba1cs when they relied on their health team to manage their D. I find managing my own is far more successful - I'm the one who lives with it day to day.
I thought some of them questions were a bit misleading but since it is a validated questionnaire I couldn't play around with it due to changing it's reliability.
You hit the nail on the head with the lower levels being odd with the health team. That's what I though, and through further reading I found that this study only incorporated health professionals questions rather than the views individuals with diabetes have on significant others (such as parental care through the teenage years and through first diagnosis of diabetes being more important).
Thanks to all of you that have already taken part, your participation means a lot to me. Any of you that know anyone else with type 1 diabetes, could you please share my study with them it would be great to gain a large cohort of individuals to get a more valuable view of the area. Thank you.
This is one of the downfalls of using validated surveys I'm afraid. They are very reliable but because we are all individuals sometimes the questions can be irrelevant. Thank you so much for taking part, if you have any questions regarding the research please do not hesitate to get in touch.
Dory
Well-Known Member
- Relationship to Diabetes
- Type 1
i found a lot of the questionnaire not very useful I'm afraid - early on it asks whether you use a pump but the immediate following questions then ask how many background and quick acting injections you take. Completely useless questions to ask a pumper I'm afraid.
Also, other questions are very vague - this varies from person to person. Regarding sport, and it's usual effect, some people may experience their livers kicking out glucose (thus a rise) and others the opposite. Same goes for alcohol and stress questions asked later.
Having to provide a figure of exactly how many years and months you've had diabetes for? Really?! and how many days weeks and months since your last A1c??!! There is also a lot of emphasis on relying on professionals if your D takes a turn for the worse; I would far rather come on this forum and seek advice from those that have been through it in the first instance!
Unfortunately the questions all seem to revolve around the 'established norms' as set by NHS historically for diabetics. As this forum (and many other sources!) will show you, it's by no means a 'one size fits all' for us T1s.
Also, other questions are very vague - this varies from person to person. Regarding sport, and it's usual effect, some people may experience their livers kicking out glucose (thus a rise) and others the opposite. Same goes for alcohol and stress questions asked later.
Having to provide a figure of exactly how many years and months you've had diabetes for? Really?! and how many days weeks and months since your last A1c??!! There is also a lot of emphasis on relying on professionals if your D takes a turn for the worse; I would far rather come on this forum and seek advice from those that have been through it in the first instance!
Unfortunately the questions all seem to revolve around the 'established norms' as set by NHS historically for diabetics. As this forum (and many other sources!) will show you, it's by no means a 'one size fits all' for us T1s.
I had to ask all those questions because certain questions are provided later on due to what answers you give. As to the questions regarding sport and alcohol etc. that's a standardised questionnaire so I couldn't change that (major limitation of using them now). I know it's difficult to ask for the length of time people have had diabetes but without knowing (even an approximate) this I would not be able to control for it and would put a spanner in the works with the results.
I know there is many differences between individuals with diabetes but I'm more focused on whether there are some variables which can predict better well-being, if some items are more related to better well-being, it may give more information to where it is best for health professionals to intervene with those with difficulty controlling diabetes.
My girlfriends been using a pump since January and there is such a massive change in her blood glucose level, they are amazing inventions!
Hi,
Unfortunately I can only use adult participants due to ethical restrictions and some of the questions used are specific to only adults.
Thank you so much for your interest in the research. 🙂
Many thanks for completing it. Some of the questionnaires I used were really in depth, mainly the one about knowledge, these inputs are great points to discuss when I disseminate this research.
I'm hoping to get this published, I'm hoping it will show where the best areas are to intervene with issues of control are and whether there is a direct or indirect route to control issues through knowledge.
Please Share
Hi,
I am still looking for participants for my survey, if you know anyone else that has T1 diabetes could you share the link and please complete the survey if you haven't already.
https://qtrial.qualtrics.com/SE/?SID=SV_8jnutdyb5FAj17n
Your input means so much to me and I would like to thank all of you for being so kind and giving me your time and input in this area.
Hi,
I am still looking for participants for my survey, if you know anyone else that has T1 diabetes could you share the link and please complete the survey if you haven't already.
https://qtrial.qualtrics.com/SE/?SID=SV_8jnutdyb5FAj17n
Your input means so much to me and I would like to thank all of you for being so kind and giving me your time and input in this area.
Thank you
Hi,
I would like to firstly thank you for taking part in this study, your input is invaluable to my research. The link will be taken down Monday 17th 9:00pm (GMT), so if you know anyone that would like to still take part please let them know.
Once I have completed my analysis and my report I will post my results to let you know (Hopefully around July 27th). Do not hesitate to get in touch via the forum or private message me if you have any questions.
Hi,
I would like to firstly thank you for taking part in this study, your input is invaluable to my research. The link will be taken down Monday 17th 9:00pm (GMT), so if you know anyone that would like to still take part please let them know.
Once I have completed my analysis and my report I will post my results to let you know (Hopefully around July 27th). Do not hesitate to get in touch via the forum or private message me if you have any questions.
- Status