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OK, here we go. Results are in.

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This thread is now closed. Please contact Anna DUK, Ieva DUK or everydayupsanddowns if you would like it re-opened.
Thank you, everyone.🙂
 
Well done Mark, that is great news indeed....

Q... If you are taken off the diabetic register do they still count you as being a Diabetic for stats?
 
Martin Canty said:
Well done Mark, that is great news indeed....

Q... If you are taken off the diabetic register do they still count you as being a Diabetic for stats?
Click to expand...
No idea. I must still be on some kind of register if I still need annual blood tests. I'm wondering if there really is a register in the first place. If such a thing exists, I want to see it 😎
 
Mark Parrott said:
It's the result you've all been waiting for. HbA1c: 36. 🙂 That's all that was tested. No cholesterol, no BP, no weighing in. And I've been discharged from the diabetic clinic. I will be having a blood test once a year for the rest of my life, but no longer will see the DSN. 🙂
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Wow, that is fabulous. Well done Mark. 🙂 36!
 
Well other people get annual HbA1cs but nowt else - the ladies who had GD spring to mind. However if you are not on 'The List' why on earth would the retinopathy screening service call you for a check? I don't know whose budget that has to get allocated to, but if they take you off The List then the GP isn't going to get the premium for you from the CCG. I had assumed the annual retinal photography came out of that - if that shows problems you'd be referred to the hospital so that then comes out of the hospital budget anyway, not the GP's one.

However if they're not going to do the annual checks other than HbA1c - the Urine albumin testing, the U&E, the Chol, the weight, eyesight, BP, toe tickling - then why the heck should they get paid more?
 
Mark Territic. YOU keep setting my goals for me. Inspirational.
The Diabetic World needs people like you to show that with hard work, dedication and sheer guts, you can beat this thing and show that iit is not a neccessarily permanent catastrophy.
 
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Mark Parrott said:
No idea. I must still be on some kind of register if I still need annual blood tests. I'm wondering if there really is a register in the first place. If such a thing exists, I want to see it 😎
Click to expand...
Did ask my GP that question Mark...he said there is...not sure they can take you off it...since diabetes is a chronic condition...wouldn't make sense if still having HbA1c tests.
 
I book my own blood tests for each review now...on some previous reviews only HbA1c tested...when I make the appointments... I ask for cholesterol to be tested too...full blood count...since it is still high (although ratios good)...still needs to be tested...so far GP hasn't said no...wondering how long that will last if I/when I get into the non-diabetic range.
 
trophywench said:
Well other people get annual HbA1cs but nowt else - the ladies who had GD spring to mind. However if you are not on 'The List' why on earth would the retinopathy screening service call you for a check? I don't know whose budget that has to get allocated to, but if they take you off The List then the GP isn't going to get the premium for you from the CCG. I had assumed the annual retinal photography came out of that - if that shows problems you'd be referred to the hospital so that then comes out of the hospital budget anyway, not the GP's one.

However if they're not going to do the annual checks other than HbA1c - the Urine albumin testing, the U&E, the Chol, the weight, eyesight, BP, toe tickling - then why the heck should they get paid more?
Click to expand...
DSN told me they can't stop the retinal screening, though I can choose not to go. I also could've chosen not to have the annual HbA1c, but decided it was a good idea. I still want to be monitored, so I think as I've chosen that option, I will still be on the register.
 
Bubbsie said:
I book my own blood tests for each review now...on some previous reviews only HbA1c tested...when I make the appointments... I ask for cholesterol to be tested too...full blood count...since it is still high (although ratios good)...still needs to be tested...so far GP hasn't said no...wondering how long that will last if I/when I get into the non-diabetic range.
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My next annual blood test hasn't been booked, so I don't know if that means I have to book it myself or not. If I do, I will ask for a full blood count.
 
trophywench said:
Well other people get annual HbA1cs but nowt else - the ladies who had GD spring to mind. However if you are not on 'The List' why on earth would the retinopathy screening service call you for a check? I don't know whose budget that has to get allocated to, but if they take you off The List then the GP isn't going to get the premium for you from the CCG. I had assumed the annual retinal photography came out of that - if that shows problems you'd be referred to the hospital so that then comes out of the hospital budget anyway, not the GP's one.

However if they're not going to do the annual checks other than HbA1c - the Urine albumin testing, the U&E, the Chol, the weight, eyesight, BP, toe tickling - then why the heck should they get paid more?
Click to expand...

I think retinal screening has been separated off TW. It isn’t reported as part of the GP’s submissions for the National Diabetes Audit any more. It’s been taken out of their hands and is handled nationally/regionally I think.
 
Mark Parrott said:
My next annual blood test hasn't been booked, so I don't know if that means I have to book it myself or not. If I do, I will ask for a full blood count.
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I would Mark...gone from an awful start with my GP...to a really good doctor/patient relationship...we discuss it...explain why I ask for whatever it is I need...seems to work (so far)...when I get within non-diabetic range...have asked him to leave my prescription for Metformin as it is...so if/when I stop taking them can monitor BGs...if it rises can restart them...if not will wait for a while...make sure I can maintain lower levels... then he can take them off my repeat...did the same when I reduced the Metformin...and again when I stopped taking Blood Pressure meds...wise to have the HbA1c check continue...keep an eye on the date...book your own if they don't.
 
everydayupsanddowns said:
I think retinal screening has been separated off TW. It isn’t reported as part of the GP’s submissions for the National Diabetes Audit any more. It’s been taken out of their hands and is handled nationally/regionally I think.
Click to expand...

So a ‘Diabetes Register’ does actually exist quite apart from the Retinal Screening and foot check everydays?
I wonder if it’s a National Register? I’ve only ever had 1 result in the diabetic range when I was first diagnosed and since then they have been under 42 but I’m firmly classed as Diabetic. In fact the pharmacist has just rung me about my b/p ‘because I’m diabetic’. I only have an annual Hb test but have blood tests every 3 months for the other conditions anyway. I never see a GP about the diabeties and have never seen a DSN.
However, I receive testing strips and always have even though I’m not on meds. I suspect it’s highly unusual and due to my additional risks.

So @Mark Parrott, for insurance purposes etc. you’ll now be able to say you’re not diabetic? It makes a big difference for things like that.
 
Amigo said:
So a ‘Diabetes Register’ does actually exist quite apart from the Retinal Screening and foot check everydays?
I wonder if it’s a National Register? I’ve only ever had 1 result in the diabetic range when I was first diagnosed and since then they have been under 42 but I’m firmly classed as Diabetic. In fact the pharmacist has just rung me about my b/p ‘because I’m diabetic’. I only have an annual Hb test but have blood tests every 3 months for the other conditions anyway. I never see a GP about the diabeties and have never seen a DSN.
However, I receive testing strips and always have even though I’m not on meds. I suspect it’s highly unusual and due to my additional risks.

So @Mark Parrott, for insurance purposes etc. you’ll now be able to say you’re not diabetic? It makes a big difference for things like that.
Click to expand...

Interesting Amigo! I’ve known about the NDA for years in terms of results for T1 care (and T2 too I think). Plus I’ve also heard several T2’s mention being told they can ‘come off the Register’ but I’d never really linked the two. I’m not sure they are exactly the same, but I do know that GP surgeries get extra cash for people with a diabetes diagnosis - which is related to various important aspects of care (regular checks, flu jabs, some outcome measures like Cholesterol and HbA1c). I am pretty sure the ‘refister’ whatever it is is separate to the NDA, because the NDA is optional. I must ask my GP friend whether ‘The Register’ is an actual thing!
 
Amigo said:
So a ‘Diabetes Register’ does actually exist quite apart from the Retinal Screening and foot check everydays?
I wonder if it’s a National Register? I’ve only ever had 1 result in the diabetic range when I was first diagnosed and since then they have been under 42 but I’m firmly classed as Diabetic. In fact the pharmacist has just rung me about my b/p ‘because I’m diabetic’. I only have an annual Hb test but have blood tests every 3 months for the other conditions anyway. I never see a GP about the diabeties and have never seen a DSN.
However, I receive testing strips and always have even though I’m not on meds. I suspect it’s highly unusual and due to my additional risks.

So @Mark Parrott, for insurance purposes etc. you’ll now be able to say you’re not diabetic? It makes a big difference for things like that.
Click to expand...
It's all very confusing. I would imagine that I wouldn't have to declare it when I go on holiday abroad. I don't think the term 'resolved' that my DSN called it is an official term. Another GP (who I later found out is a diabetes specialist) said I was cured!. I went to see him about an unrelated matter, and all he said was, 'Sod that, look at this!' and pointed at my HbA1c results. He couldn't believe it!
 
everydayupsanddowns said:
Interesting Amigo! I’ve known about the NDA for years in terms of results for T1 care (and T2 too I think). Plus I’ve also heard several T2’s mention being told they can ‘come off the Register’ but I’d never really linked the two. I’m not sure they are exactly the same, but I do know that GP surgeries get extra cash for people with a diabetes diagnosis - which is related to various important aspects of care (regular checks, flu jabs, some outcome measures like Cholesterol and HbA1c). I am pretty sure the ‘refister’ whatever it is is separate to the NDA, because the NDA is optional. I must ask my GP friend whether ‘The Register’ is an actual thing!
Click to expand...

I strongly suspect it’s rather like the ‘Disability Register’. It doesn’t actually exist but eligibility to be on it does.
The only way surgeries would keep one is if it formed part of their contract which attracted additional funding like the ES (Enhanced Service Specification) where surgeries keep a register of their top 2% or vulnerable patients. The aim is to keep them out of hospital and attracts an additional £20,000 for each surgery.

I’ve no doubt that being on the Retinal Screening re-call is a Register in itself.

My concern would be telling an insurance company I wasn’t classed as diabetic and then them coming back to ‘bite’ me on it if I claimed. I have a sense that once you get that diagnosis, it’s hard to shift.
 
Amigo said:
I strongly suspect it’s rather like the ‘Disability Register’. It doesn’t actually exist but eligibility to be on it does.
The only way surgeries would keep one is if it formed part of their contract which attracted additional funding like the ES (Enhanced Service Specification) where surgeries keep a register of their top 2% or vulnerable patients. The aim is to keep them out of hospital and attracts an additional £20,000 for each surgery.

I’ve no doubt that being on the Retinal Screening re-call is a Register in itself.

My concern would be telling an insurance company I wasn’t classed as diabetic and then them coming back to ‘bite’ me on it if I claimed. I have a sense that once you get that diagnosis, it’s hard to shift.
Click to expand...

Would that only matter if it were a Diabetes-related claim though? @trophywench would be my go-to guru for all things insurance-fine-print so I really don’t have the first idea, except that I must have the world’s worst record for successful insurance claims. I’ve not managed to get anything back for the last 28 years, no matter how insurancey it seemed to be to me!
 
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