Nursey (2)

[Bill Stewardson]

Went along to my 2nd nurse appt this morning, took my meter to show how Ive been doing, (seven day 7:2 , fourteen day 7:4. , thirty day 8:6) . It was as if I hadn't spoken.

Sailed straight on by it and said she had the D template to work through. Told me about the healthy eating plate and exercise. What have I got to do ?

I'm stood there, 6-3, 15st 6lb listening to advice about exercise and healthy eating, well,
obviously Ive never considered any of that. I first started getting paid for sport in the late 70s, my diet has always been very good, as for exercise it's been second nature to me for decades, I,m sick of telling them.

That person is doing her job and as I don't know her it is not personal.
She had her guidelines and that's that.

If it wasn't for the blood test next time I would send my fridge along.

 

[Amigo]

Went along to my 2nd nurse appt this morning, took my meter to show how Ive been doing, (seven day 7:2 , fourteen day 7:4. , thirty day 8:6) . It was as if I hadn't spoken.

Sailed straight on by it and said she had the D template to work through. Told me about the healthy eating plate and exercise. What have I got to do ?

I'm stood there, 6-3, 15st 6lb listening to advice about exercise and healthy eating, well,
obviously Ive never considered any of that. I first started getting paid for sport in the late 70s, my diet has always been very good, as for exercise it's been second nature to me for decades, I,m sick of telling them.

That person is doing her job and as I don't know her it is not personal.
She had her guidelines and that's that.

If it wasn't for the blood test next time I would send my fridge along.

Sounds like she needs her batteries changing Bill. The programme is stuck! 🙄

 

[New-journey]

Went along to my 2nd nurse appt this morning, took my meter to show how Ive been doing, (seven day 7:2 , fourteen day 7:4. , thirty day 8:6) . It was as if I hadn't spoken.

Sailed straight on by it and said she had the D template to work through. Told me about the healthy eating plate and exercise. What have I got to do ?

I'm stood there, 6-3, 15st 6lb listening to advice about exercise and healthy eating, well,
obviously Ive never considered any of that. I first started getting paid for sport in the late 70s, my diet has always been very good, as for exercise it's been second nature to me for decades, I,m sick of telling them.

That person is doing her job and as I don't know her it is not personal.
She had her guidelines and that's that.

If it wasn't for the blood test next time I would send my fridge along.

Oh Bill, I can totally relate to your appointment and how very frustrating for you. I will have a similar challenge soon when I see my consultant. Did she not listen to you after the D template? What's next for you with appointments?

 

[the blue wildebeest]

So very much like DSN "T", who considered my assiduously kept diary of BGs excessive... "You don't need to..." Apparently, the stray 20.8, 16.9, 4.6, 4.8 is just fine, can be ignored... And there was I, finding staying above 62.5 kg a bit difficult without prolonged high BGs. And the regular morning 9.3s a little disappointing. "That's the Dawn Phenomenon", she said triumphantly. (Or perhaps "Gluconeogenesis" to someone with the remnants of a classical education and an ability to recognise medical terminology often derived from Greek or Latin...unless "Gluconeogenesis" is really a tribute band...and on drums...😉)

Perhaps a DSN is only required to reiterate the same mantra, until the next mantra becomes the orthodoxy.

As someone not naturally given to unreasoning compliance I am asking questions which just seem to reveal the lack of certainty, and decisions made for me without rational clinical judgment, or even a proper understanding of statistics.

 

[Bill Stewardson]

Oh Bill, I can totally relate to your appointment and how very frustrating for you. I will have a similar challenge soon when I see my consultant. Did she not listen to you after the D template? What's next for you with appointments?

Well,, D wise Ive no idea. I have said to others not to neglect care,,now here I am wondering about inviting them to ,, errr,,, well,,, you know !

I see surgeons, consultants, radiologists, research fellows, all the time and they all listen pause and give great advice.

Why is D different ??

I actually got some great news on Thursday last week, the life threatening surgery I was being prepared for is now deemed not necessary. Still need some minor messing about but not due to be dead as far as they can tell.

You got to laugh honestly, such a mad ride, stuff that's gone in since Dec 15 is mind boggling. Maybe one day I will write another book

 

[New-journey]

I wish I had the answer to the question Why is D different?? I have decided next time to wait till he has finished telling me what I am doing wrong and then then let him know the questions I would have liked him to ask me and give him the relevant answers. I have nothing to lose!

That is amazing news, fantastic, imagine it is a huge relief and writing another book sounds a good plan.

Yes, we have to laugh! I am still laughing at my first consultant just two weeks after diagnose when she said I could no longer cut my toe nails as I might not notice I have cut the skin. I was doing yoga every day, very supple and think I might have noticed, all fun and games of life post diagnose. I know she was just being helpful!

 

[DaveB]

So very much like DSN "T", who considered my assiduously kept diary of BGs excessive... "You don't need to..." Apparently, the stray 20.8, 16.9, 4.6, 4.8 is just fine, can be ignored... And there was I, finding staying above 62.5 kg a bit difficult without prolonged high BGs. And the regular morning 9.3s a little disappointing. "That's the Dawn Phenomenon", she said triumphantly. (Or perhaps "Gluconeogenesis" to someone with the remnants of a classical education and an ability to recognise medical terminology often derived from Greek or Latin...unless "Gluconeogenesis" is really a tribute band...and on drums...😉)

Perhaps a DSN is only required to reiterate the same mantra, until the next mantra becomes the orthodoxy.

As someone not naturally given to unreasoning compliance I am asking questions which just seem to reveal the lack of certainty, and decisions made for me without rational clinical judgment, or even a proper understanding of statistics.

Hi. You sound like a possible LADA?

 

[trophywench]

... that'll be where Keith Moon has got to (playing the drums for Gluconeogenesis, obviously) - is Brian Jones still with them, or Marc Bolam?

Bill - just a thought ..... if you regularly see other hospital personnel - any way you could chat one or other of em up to put you in touch with either a proper DSN or consultant in their D clinic - and thus circumvent Nursie Nightshade ???

My gynaecologist did this for me, once when I was obviously seeing her about something entirely different and happened to comment at the end of that consultation eg 'Good that's being sorted then, so that's fine - if only my D was ...'

 

[the blue wildebeest]

Hi. You sound like a possible LADA?

I sound like a grumpy pedantic old wildebeest, once accustomed to grazing freely at the edges of the Serengeti, and inclined to take a different direction from the rest of the herd. Still inclined to question authority, and find my way into confrontations with hyenas, and other predators, and to extend a metaphor way too far.

Looking into LADA.

Thank you.😉

 

[pav]

Had that as well, just goes through the tick box effect, does not listen or interested in the patient, might as well send a dummy to the appointment for all the help and support you get.

 

[Bubbsie]

Well,, D wise Ive no idea. I have said to others not to neglect care,,now here I am wondering about inviting them to ,, errr,,, well,,, you know !

I see surgeons, consultants, radiologists, research fellows, all the time and they all listen pause and give great advice.

Why is D different ??

I actually got some great news on Thursday last week, the life threatening surgery I was being prepared for is now deemed not necessary. Still need some minor messing about but not due to be dead as far as they can tell.

You got to laugh honestly, such a mad ride, stuff that's gone in since Dec 15 is mind boggling. Maybe one day I will write another book

That's very good news Bill...must be a great relief...your next book...will it be about Nurse Rachett...and the 'one size tmeplate' that fits all diabetics...I refuse to see the DSN at my surgery anymore...saw her for the first (and only time) time in March this year...eight months after diagnosis...she told me I was obsessive testing my blood between 4-6 times a day...she never mentioned my results...down from 17.4 last year to 6.2 at my last test...when my GP finally prescribed testing strips (after I had challenged the CCG)...she tried to interfere...said I couldn't have the meter/strips until I had seen her...she wanted to 'question me on my use of strips throughout the day'...spoke to my GP...point blank refused to see her...instead had an appointment with GP...made it clear I did not want her involved in my diabetes care...that's how it stayed.

 

[Bill Stewardson]

... that'll be where Keith Moon has got to (playing the drums for Gluconeogenesis, obviously) - is Brian Jones still with them, or Marc Bolam?

Bill - just a thought ..... if you regularly see other hospital personnel - any way you could chat one or other of em up to put you in touch with either a proper DSN or consultant in their D clinic - and thus circumvent Nursie Nightshade ???

My gynaecologist did this for me, once when I was obviously seeing her about something entirely different and happened to comment at the end of that consultation eg 'Good that's being sorted then, so that's fine - if only my D was ...'

Indeed it is possible. I'm on the case and a meeting is on the horizon with various local D clinicians etc, don't want to say too much yet incase it all adds up to nothing, will post after.
Would be good if I was not the only voice. Could do with an organised approach from various parts of the country.

 

[Bill Stewardson]

That's very good news Bill...must be a great relief...your next book...will it be about Nurse Rachett...and the 'one size tmeplate' that fits all diabetics...I refuse to see the DSN at my surgery anymore...saw her for the first (and only time) time in March this year...eight months after diagnosis...she told me I was obsessive testing my blood between 4-6 times a day...she never mentioned my results...down from 17.4 last year to 6.2 at my last test...when my GP finally prescribed testing strips (after I had challenged the CCG)...she tried to interfere...said I couldn't have the meter/strips until I had seen her...she wanted to 'question me on my use of strips throughout the day'...spoke to my GP...point blank refused to see her...instead had an appointment with GP...made it clear I did not want her involved in my diabetes care...that's how it stayed.

Bubbsie I'm trying to get the conversation going at various levels. I'm getting replies to my messages and there is enthusiasm to hear what I have to say.
It's slow going and I guarantee nothing other than I will be heard.

Will post if/when it's worth doing so.

 

[trophywench]

Sounds at least an opportunity for you to let off steam to the right audience, and I hope it does sink in with one or more of them,

Travel in hope, Bill !

 

[Bubbsie]

Bubbsie I'm trying to get the conversation going at various levels. I'm getting replies to my messages and there is enthusiasm to hear what I have to say.
It's slow going and I guarantee nothing other than I will be heard.

Will post if/when it's worth doing so.

Bill...rarely any contact with the NHS before June last year...prior to that had heard horror stories about our local hospital (Bedford)...dreaded attending there (none of it diabetes related)...however...so far I have not had one bad appointment there...seen Haematology Consultant...Gynaecology Consultant...Vascular Scientist...and more...all the appointments have been positive... I was given the time I needed...never rushed...reasoned discussion...listened to...I was involved in the decisions made...the real battle has been with my diabetes care...had to work so hard with my GP...several discussions...letters...CCG...now at the point where I have a good relationship with him...taken almost a year...exhausting at times...like you...I have no idea why diabetes care is so different...challenging...I will be watching with interest...good luck.

 

[Bill Stewardson]

Sounds at least an opportunity for you to let off steam to the right audience, and I hope it does sink in with one or more of them,

Travel in hope, Bill !

Its not about "letting off steam" or trying to look clever it's about going in to bat on behalf of all those who are not receiving the correct guidance and hopefully improving things from the NHS angle as well.
The biggest things lay in the smallest margins.
I found out about my D on May 16th and have opened communication with professors and research fellows as well as local D clinicians etc.
This will be a difficult path, there are more of them than me and they are all better educated, which is just how I like it.
Forums are "echo chambers" real progress takes place in carpeted offices.

 

[Bill Stewardson]

Bill...rarely any contact with the NHS before June last year...prior to that had heard horror stories about our local hospital (Bedford)...dreaded attending there (none of it diabetes related)...however...so far I have not had one bad appointment there...seen Haematology Consultant...Gynaecology Consultant...Vascular Scientist...and more...all the appointments have been positive... I was given the time I needed...never rushed...reasoned discussion...listened to...I was involved in the decisions made...the real battle has been with my diabetes care...had to work so hard with my GP...several discussions...letters...CCG...now at the point where I have a good relationship with him...taken almost a year...exhausting at times...like you...I have no idea why diabetes care is so different...challenging...I will be watching with interest...good luck.

Bubbsie you encapsulate the thing that pressed my start button.

Why is D different ??

 

[Bubbsie]

Bubbsie you encapsulate the thing that pressed my start button.

Why is D different ??

Wondering if it's the perception of who is will /become diabetic...how does that happen...at the risk of getting my head bitten off here...I sometimes feel there is a clear distinction made with the different types of diabetic...type 1's an auto immune condition...nothing you can do about it...it happens...whereas type 2...often perceived to be fault based...seen as lazy...sloth like creatures who bring it on themselves...deserved...what did you expect?...the media often portray us as a group likely to bankrupt the NHS...rarely anything positive...took me some time to realise it wasn't my fault...that I could bring about a positive change...manage my diabetes...ironically I only began to do that after coming to the forum...by chance ...after someone made a casual reference to DUK...so far I've been lucky...in the right place at the right time...shouldn't have to rely on chance...challenge to that ill conceived concept is essential.

 

[Bubbsie]

Its not about "letting off steam" or trying to look clever it's about going in to bat on behalf of all those who are not receiving the correct guidance and hopefully improving things from the NHS angle as well.
The biggest things lay in the smallest margins.
I found out about my D on May 16th and have opened communication with professors and research fellows as well as local D clinicians etc.
This will be a difficult path, there are more of them than me and they are all better educated, which is just how I like it.
Forums are "echo chambers" real progress takes place in carpeted offices.

Experience is what counts Bill...any amount of theory is often useless in the face of practical experience...that has to be earned...I wondered how to challenge the 'Committees' to get what I needed...what I felt I was entitled to...came to the conclusion I was just as well educated as most of the 'Clinicians' I had to deal with (if not more so)...had as much if not more experience in my chosen field as they had...read the NICE guidelines...told my GP & the CCG how they were being narrowly...wrongly interpreted...devoured the minutes of committee meetings...made sure I was well prepared...it worked for me...those that make the decisions which define how we are treated...what we are given... are not used to being challenged...it doesn't happen often enough...some think what's the point...how can I do that...what to say...very often a simple letter...is sufficient...this is what I need...this why I need it...these are my results... is sufficient...I would love to encourage more to follow suit...we do have an advantage...we live with diabetes...manage it daily...know our subject...I'd be happy to help in any way possible...hope others feel the same.

 

[Bill Stewardson]

Wondering if it's the perception of who is will /become diabetic...how does that happen...at the risk of getting my head bitten off here...I sometimes feel there is a clear distinction made with the different types of diabetic...type 1's an auto immune condition...nothing you can do about it...it happens...whereas type 2...often perceived to be fault based...seen as lazy...sloth like creatures who bring it on themselves...deserved...what did you expect?...the media often portray us as a group likely to bankrupt the NHS...rarely anything positive...took me some time to realise it wasn't my fault...that I could bring about a positive change...manage my diabetes...ironically I only began to do that after coming to the forum...by chance ...after someone made a casual reference to DUK...so far I've been lucky...in the right place at the right time...shouldn't have to rely on chance...challenge to that ill conceived concept is essential.

One way or another I will get them to acknowledge that D is treated like no other subject. This one size fits all outlook has to go, or at least be reconsidered. Would they be the same in Opthalmology ? or, any other branch of medicine ? We already know the answer to that.
They also know the answer, trick is getting it out in the open.
I really don't like division on any level, and will not accept it regarding this or any other illness. It does seem that the bloody brainless template they refer to parrot fashion is indeed built on shallow views, that is nothing short of unprofessional.
Obese people are wrongly portrayed when it suits the media who want to pressure people into not being seen as actually using the NHS for the very reasons it exists.
Obviously I have now sat in a few waiting rooms full of D people, sure there are obese people, just as sure there are plenty who are not which rather proves my point does it not ?
D people all belong in one group, quite simply known as D people.
I take on board your view that we gain more valuable and efficient advice in here than any D nurse gives, again, does this not prove the point ?
When there is something to post re this I will post.