Hobie - lots of us do helpful things to do with diabetes research - I used to do shedloads when it was Warwick Uni's turn to do shedloads of D research. (they were instrumental in bringing something called Lantus into use, incidentally) We never shouted it from the rooftops since we saw EVERYTHING and the rule was having passed the Professor in charge the project desins had to get past our eagle eyes before they were allowed to apply for funding. THEY never released questionnaires asking silly questions - things like 'Well if they wanted to know that, they should have asked whatever instead!' - no, cos we'd already told em the questions were wrong and what they ought to say. Next Wednesday my husband and I have been invited to Oxford Uni Medical School to take part in a research project we volunteered for. Last year I took part in a couple of lifestyle projects at Cov Uni. We try and do things locally, seeking to influence and inform the CCG.
I offer to go and speak at meetings or conferences - and have done so and would do so again - if they happen to need someone for whatever and I fit the remit. I actually do a LOT less now I'm retired than I did whilst working but I've by no means given up.
Researchers NEED diabetes sufferers to help inform them - the Professors are better informed than they used to be, but the less senior ones - and the students actually doing it for their Ph D Theses - can be MEGA uninformed, far far worse than Medical Students are and they're almost unbelievably naïve about most medical conditions cos they haven't got deep enough to know the medical equivalent of what every sailor knows - in the classroom on the blackboard the wind ALWAYS blows from left to right - however, out on the 'pond' in a dinghy it NEVER does! - so we are a VERY necessary part of the equation.
So I'm really pleased you are taking part in whatever you can, and I'll never knock that.