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Not having a great time with GP

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Sammi87 said:
Yes im awaiting an ambulance.
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Thank God for that. I hope when you read this you're feeling oh so much better and are back on insulin .
When you can, please let us know how you are.
 
Just been discharged. They wouldnt put me back on insulin as they didnt wanna step on my drs toes so been told to keep on with metaformin and go see my gp asap. Feel like c**p and what a waste of my time. My ketones in my blood had lowered after fluids so they said it was down to dehydration.
 
Sammi87 said:
Just been discharged. They wouldnt put me back on insulin as they didnt wanna step on my drs toes so been told to keep on with metaformin and go see my gp asap. Feel like c**p and what a waste of my time. My ketones in my blood had lowered after fluids so they said it was down to dehydration.
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I think the time for worrying about stepping on anyone's toes is long past. The GP could do with being introduced to the hammer of comprehension.
 
Hope you keep yourself well hydrated today, @Sammi87 and get an appointment with GP on Monday - it's urgent! If the hospital gave you a discharge letter, take that to show GP.
 
What a nightmare for you Sammi87. Surely when it comes to your health it doesn't matter whether they tread on your GPs toes or not. Glad you had those calls from diabetes uk.
 
When you see your GP, if you don't end up in A&E in the meantime, ask for, nay, demand an urgent appointment with the diabetes team at the hospital. This situation is crazy, as well as dangerous.
 
Sammi I'm so sorry to hear what you're going through & hope you get things sorted soon.
No one is worse than I for having probs with swalling tablets so I empathise - but I found a solution to swallowing large tablets when I was on metformin - first I took a sip of water to wet my tongue - then after popping the tablet as far back at the back of my tongue I then squirted tap/or mineral water from the bottle into my mouth and kept squeezing the bottle which pushed the tablet down my throat - & even when I felt I was going to choke I carried on squeezing & squeezing the bottle until the darn tablet had gone down. I got so used to helping the tablet down this way that I no longer need to use this method now *To help the medicine go down*. (I now swallow 6 tablets all in one go each morning without any problem)

If you dont fancy this method then take lots & lots of big gulps of water until the tablet has gone down. Hope this is helpful & good luck.x
 
I have been breaking the metaformin to swallow them only way i could manage it. Taking them regularly but my symptoms have not diminished my immune system must be so low as i have an abcess on my face which ive never had before. Feel exhausted just want all this sorted. :(
 
Sammi87 said:
I have been breaking the metaformin to swallow them only way i could manage it. Taking them regularly but my symptoms have not diminished my immune system must be so low as i have an abcess on my face which ive never had before. Feel exhausted just want all this sorted. :(
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Hope you have an urgent appointment with your GP Sammi...sounds like a nightmare for you...let us know how you get on...good luck.
 
Hope you get sorted Sammi, it's scary to feel helpless and alone with no transport and a child to look after. They should be falling over backwards to help you and see to your medical needs. Make demands!
 
Understanding of how you're feeling Sammi but please do seek medical attention very very soon. Ask ~ no demand an emergency appointment to see your GP. You can't carry on like you are, you are very ill. Take care and do please keep us updated as we are concerned for you x
 
Oh Sammi, I can't emphasise enough that if you feel ill with your symptoms you must go to A&E again, particularly if you get readings over 25. Never mind about stepping on your GP's toes, on this subject his treatment is distinctly below par. You need to be on insulin, and the sooner you do that you will feel like a human being again
 
Hi @Sammi87 - How are your levels today? I strongly advise you request an emergency appointment with your GP, or if this is not possible and you still have sustained high levels and ketones, then please go to A&E, it does sound like you need insulin to manage your levels at the moment, whatever type you have.
Keep us updated.
 
I am completely confused as to what has happened here.

Why did they run GAD tests when you were diagnosed as T1? And when they came back positive, why were you then re-classified as T2 (apart from by age and weight which they would have known without running the expensive GAD tests). From what I can tell GAD and cPeptide tests are never conclusive in their own right, and diagnosis of diabetes is best done by clinical factors - which in your case from what you have said (rapid onset, weight loss, ketones) seem to indicate T1.

Then having re-classified, despite having been admitted to A&E with raging high BGs and ketones (both suggestive of T1) you are returned to GP care without insulin for the strangest of reasons 😱

Was your re-classification ever explained to you Sammi? Were you ever seen by the diabetes service at the hospital? I really think you could do with a diabetes specialist/consultant reviewing your case. Something really isn't adding up here. I've never heard of ketones in the context of diabetes being dismissed as being caused by dehydration. I'm not even sure that's possible!

If what you are saying is right... several healthcare professionals seem to be acting very strangely indeed.

This from the latest NICE guidance:

5.6
1.Diagnose type 1 diabetes on clinical grounds in adults presenting with hyperglycaemia, bearing in mind that people with type 1 diabetes typically (but not always) have one or more of:
-ketosis
-rapid weight loss
-age of onset below 50 years
-BMI below 25 kg/m2
-personal and/or family history of autoimmune disease. [new 2015]

2.Do not discount a diagnosis of type 1 diabetes if an adult presents with a BMI of 25 kg/m2 or above or is aged 50 years or above. [new 2015]

3.Do not measure C-peptide and/or diabetes-specific autoantibody titres routinely to confirm type 1 diabetes in adults. [new 2015]
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Those GAD tests should not have been run in the first place from what I can tell. You really do need to be seen by a specialist and have your situation sorted out.
 
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Hi Sammi been thinking of you and wondering how you are ~ concerned & worried about your welfare ~ have you been to A&E yet or been seen by your GP? x
 
Absolutely agree with all the above posters. This really should not be continuing. I do hope you are sorted out and, if not, will be sorted soon. It certainly sounds like Type 1 to me.
 
Hello all thank you for your messages. I have been working since being dishacharged from hospital (was guilt tripped in to going to work the day after being discharged from hospital) i now am on antibotics for an infected abcess on my face (another complication or poorly controlled diabetes) therr are still high ketones in my urine and i am severly dehydrated which i have found online ketones can be from dehydration but i do think this is running alongl side my constant hypers as i am running between 16 and 25 all day every day. Typical symptoms still present thirst, urination, blurred vision, constantly hot amd sweating (sleeping with a fan), severe thrush and my appertite has disappeared due to the severe thirst.
 
Hi Sammi thank you for getting in touch with us again ~ so sorry to hear you're still having problems ~ we are all very concerned for you hun - you can't carry on with these high levels ~ this can't be stressed enough but you must seek medical attention ASAP ~ do you hear? Constant daily levels of 16-25 are far too high to be ignored. Please please get yourself to A&E ~ ring for an ambulance - and if there isnt any one to mind your daughter for you then take her with you til someone can. In the meantime continue drinking water to save yourself from becoming even more dehydrated. Please stay in touch with us Sammi, take care now xxx (((hugs)))
 
I was taken to hospital saturday for same thing was there 5 hours and sent home. They obviously dont share your concerns
 
Shocking to say the least but on Saturday you weren't seen by a Diabetes Specialist or DSN ~ if/when you go back to hospital then you need to ask to be seen by one so you can be treated accordingly. It is imperative that you are. Its incredulous that you were sent home after 5hrs only to be told to see your GP.! Hoping the antibiotics kick in quickly to relieve that painful abcess on your face. Keep drinking plenty of water Sammi and let us know what you plan to do next. Take care & stay in touch xx
 
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