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Not having a great time with GP

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This thread is now closed. Please contact Anna DUK, Ieva DUK or everydayupsanddowns if you would like it re-opened.
Sammi87

Sammi87

Well-Known Member
Relationship to Diabetes
Type 1.5 LADA
Well started a month ago as a type 1 on 24 units insulin am 26 pm after symptoms of severe weight loss, dehydration, unqeunchable thirst, frequent urination, fatigue, co stant sweats, blurred vision, glucose amd ketones in urine, ketones on blood and sugars in the mid 20s. Insulin brought me to level between 4-7. Then have a phonecall after my blood test resukts bk type 2. Given Vipdomet 1000mg metaformin mix twice a day. Tablets were huge couldnt swallow them, told to stop insulin symptoms returned. Returned to diabetic nurse was explained i had a GAD test antibodies were preset so could go either way but due to my weight and body shape and age im treated as type 2. Still cant swallow these massive supository size tablets without insulin symptoms are back with a passion and blood sugar level tonight and all time high of 32.3 will i have to be hositalised before my symptoms are taken seriously?
 
This is terrible, Sammi. Anyone at any age can get Type 1 and your size shouldn't come into it. If you have antibodies, I would presume type 1. it is important that you get seen asap. I would get yourself along to A&e if such high levels persist. Can you test your ketones?
 
@Sammi87 . This is dreadful. I agree with everything @stephknits said but my advise is If your levels are still high when you read this then go to A&E don't delay.
When ou can, please let us know how you are.
 
Agree with the others, get yourself to A&E asap, take care x
 
Ive been pushing fluids and have taken insulin to bring them down but i dont have much left and they wont do me anymore been told to take metaformin 1000mg twice a day for 3 months then have a blood test. No i dont have a ketone meter. I checked my urine yesterday no ketones present of yet but im so tired urinating every 15-20 mins and drinking so much. Have severe thrush returning aswell last time i had it it caused swelling, splits and tears omg brought me to tears nothing would ease or clear it.
 
I am unable to get to a&e i do not drive and have an 8 year old asleep in bed. I have taken 24 unita of insulin around half hour ago. What am i to do the drs arent listening and i cant go on feeling like this. Is the metaformin going to help?
 
@Sammi87 I hope the insulin brings your levels down to safer levels tonight.
But tomorrow or online tonight get an urgent appointment with whatever doc is on duty for emergency appointments and tell them everything esp the results of the GAD .
 
Sammi87 said:
I am unable to get to a&e i do not drive and have an 8 year old asleep in bed. I have taken 24 unita of insulin around half hour ago. What am i to do the drs arent listening and i cant go on feeling like this. Is the metaformin going to help?
Click to expand...
Sammi...wondering how you are this morning...unable to advise on the insulin use...however...hopefully you managed to bring those numbers down...got some much needed advice & assistance...I understand entirely why you feel you're not having a great time with you GP/Practice...similar difficulties myself...I would get back to them first thing this morning...don't take no for an answer...be persistent...don't settle for being brushed off by the receptionist...the doctor can at the very least speak to you on the phone...if you are refused...ask for the practice manager...failing any help from you surgery...if you cannot get to your A & E department...you can at least call them...or the 111 service...must be so worrying for you...no transport & your daughter to care for...when this is resolved...perhaps a letter to the GP/DSN/Practice Manager...all three of them...we have to be so 'pig headed' when dealing with those health care 'professionals' that just refuse to listen...if you can let us know how you fared.
 
how are you doing, Sammi? GPs get diagnosis of Type 1 in adults wrong a lot of the time (they did for me). I would bi-pass the GPs and go straight to hospital. If you are Type 1, the Metformin alone is NOT going to help you. I lost 2 stone and ended up in A&E with high ketone levels after having tried and tried to get the gp surgery to help me. In hindsight, there was no point and I should have gone to hospital sooner. Good luck
 
I to am wondering how you are.
 
Sammi87. Do you have anyone who could trust to help with your child? It you have transport problems could you afford a taxi? If not, call an ambulance and tell them how high the blood sugars are. A friend of mine has been diabetic type 2 for 10 yrs and was taken to hospital with readings of 31. Turned out he had an infection and was kept in hospital until everything was sorted out.

I have to profess ignorance with Type I but the readings sound very high to me for Type II if you have been given medication. I thought you could have late onset Type I. I may be wrong on this one but didn't Theresa May have late onset Type I?

32.7 definitely needs dealing with soon. Please let people know on here how you are.
 
Wow! I thought our Dr s surgery was bad, now I know it could be worse. I am afraid I would be looking to change doctor ASAP!

I hope you are OK and get this sorted soon, whatever else, do not leave it.
 
Hi all, i had a great phone conversation today with a member of the diabetes uk helpline and from a chap from diabetes Uk have had some advice from them which i felt was greatly helpful. My sugars have lowered but this has only been possible through the use of insulin. Currently 16.9 so much better then the 30s from last night. I will keep you all posted but i need my gp to refer me to a specialist and push for a c peptide test to find out what it is we are dealing with.
 
It's good to hear that you received helpful info.
Yes do push for a referral . I'd also push to go back onto insulin till you see a diabetic specialist.
Please let us know how you get on.
 
I can't see how the type one or two is relevant - BG being consistently so high surely requires insulin - they already have the evidence that insulin brings down the levels, so trying to withdraw it is just madness.
If the levels start to rise high phone the doctor - report your BG to them every ten minutes if they try to put you off - if they don't act then use the 111 number and if no help then 999 - they need to take your situation seriously.
 
To use a medical term, sod mucking about, you are type 1 and need insulin. Your initial history screams Type 1. As Drummer says, you need insulin whichever, but your medical care so far has been little short of dangerous. With the same symptoms, if you were 15 instead of 30 it would have been assumed you were Type 1, so I can't see why those same symptoms are assumed to be Type 2 because you are older. Or, should I say, less young.

If your levels go above 25 and you show ketones go to A&E. Do not pass Go. You don't want end up in metabolic chaos, it's dangerous.
 
It's quite clear the only thing that works for you is insulin, you need it constantly , it doesn't matter which type you are. Perhaps they need to do investigations & tests on the pancreas to see how well or bad it's producing insulin if at all.
 
Thank ypu all for your responses. My blood sigar is still high and havr ketones present so i have rang 111 waiting for a call back now. Feel sick and light headed and very tired so am worried about dka.
 
Hope you've had call back from 111 by now?
 
Yes im awaiting an ambulance.
 
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