• Please Remember: Members are only permitted to share their own experiences. Members are not qualified to give medical advice. Additionally, everyone manages their health differently. Please be respectful of other people's opinions about their own diabetes management.
  • We seem to be having technical difficulties with new user accounts. If you are trying to register please check your Spam or Junk folder for your confirmation email. If you still haven't received a confirmation email, please reach out to our support inbox: support.forum@diabetes.org.uk

Not diagnosed yet but…

Thanks both @Inka and @helli. Ok, I’m not going to go overboard here but is it worthwhile going back to definitely rule out type 1 before I go very much further? I don’t have any of the symptoms mentioned above but could type 1 still be potentially a risk?

On the blood test, I knew that the HbA1c was a rolling average type of test but didn’t challenge the doctor who seemed worried that I erroneously took the test after fasting. (Except that I did exactly what the form said to do). But I’m still booked in for a blood test in two weeks time. That should still be ok, shouldn’t it?
It would not make a difference to HbA1C but is often requested to be fasting if the tests are also for a lipid profile.
 
I’m not going to go overboard here but is it worthwhile going back to definitely rule out type 1 before I go very much further? I don’t have any of the symptoms mentioned above but could type 1 still be potentially a risk?
The problem is that it is not easy to definitely rule out Type 1. You can request additional antibody tests if your GP will allow. But even then negative antibody test do not necessarily mean you have type 2 just that it is more likely. That said, with 90% of people diagnosed with diabetes having type 2, it is already most likely.
Weight loss is the most common symptom that differs between Type 1 and type 2 but not all of us lose weight - I didn't.

If it was me, I would be aware of Type 1 but follow the approach your GP is suggesting and purchase some ketostix from your local pharmacy and read up on the symptoms of DKA. If you start to lose more weight than you expect, test for ketones. If you start to feel any symptoms of DKA, test ketones. If your ketones are high, get to A&E.

As I mentioned, type 2 is most likely but don't write off Type 1 just because your GP is ignorant.
 
Last edited:
Whether the test was fasting of not is unlikely to make much difference to the result and at the level you are the sooner you get going on the dietary changes the better but a word of caution is to reduce carbs slowly over a period of a few weeks, managing your glucose level is a marathon not a sprint to minimise issues with eyes and nerves.
It is not uncommon to be prescribed a statin as a diabetes diagnosis puts you in a higher risk category where they like the cholesterol to be below 4. What was your result?
Many do find lowering carbs naturally lowers cholesterol anyway.
A look at this link should give you some ideas for modifying your diet if you haven't already seen it. https://lowcarbfreshwell.com/
If your combination of meds and diet do not prove effective then there are tests which can be done to help diagnose if you are Type 1.
Thanks @Leadinglights. On the carbs, I am definitely trying to reduce them but not cut them out all together. So far, I’ve cut out the absolute rubbish from my diet. So pies, pizza, chips, cakes and the like. I’ve also swapped sugary cereal, white rice, pasta and bread for smaller portions of oatmeal, brown rice and rye bread. I’m also not getting too hung up on below the ground vegetables. At least for now. Plus I’m eating more lean protein and vegetables in general. So I’ll probably see what the combination of the metformin and lower carbs does and then decide wheat needs to come next.
 
Thanks both @Inka and @helli. Ok, I’m not going to go overboard here but is it worthwhile going back to definitely rule out type 1 before I go very much further? I don’t have any of the symptoms mentioned above but could type 1 still be potentially a risk?

On the blood test, I knew that the HbA1c was a rolling average type of test but didn’t challenge the doctor who seemed worried that I erroneously took the test after fasting. (Except that I did exactly what the form said to do). But I’m still booked in for a blood test in two weeks time. That should still be ok, shouldn’t it?

I’d just keep the possibility in my mind @Ade_essex and maybe buy some Ketostix as @helli suggested. They probably won’t do any additional testing unless they think you might have Type 1. Be pro-active if you think you have Type 1. As you can see, many GP surgeries don’t know much about it.
 
I was sure i was diabetic when test came back at 69 as I had been peeing a lot but the hcp said they liked to have a second test which I did a month later. I had cut rubbish by then and reading was 64 and I had started losing weight. The site link I posted in my first post has lots of info in one place including on left handside at the bottom website links to caldesi freshwell moseley and others. My DN told me not test my blood but I did as I wanted to know what was happening. Look for a monitor that has reasonably priced strips. Several recommended in the forum. Some people test first thing each morning to see a trend. There is a thread you can post on here. At first I tested foods to see how I responded. Test before you eat then 2 hours after you started. You don't want to increase more than 3 and preferably nearer 2. I havent eaten porridge since diagnosis. It causes a spike in some people but others have no problem. If you share a device you must change the needle but if not it can be used a lot. I've been using same one since September but may change it soon.
I regular.y have full fat Greek yoghurt berries and nuts or seeds for breakfast. It's easy to do and surprisingly filling. I had raspberries yesterday but today I've bought some local strawberry's. I sometimes have eggs I've also if I have something I want to use had effectively a lunch at breakfast time
I have ketostix as I was put on an SGLT2 in September but I've only tested once and was fine. I was put on 20mg of atorvastatin a few weeks later. It seems standard. I wasn't happy and haven't had the opportunity to discuss it. I do seem to have more aches but don't know if it is age or steroids. I sometimes have a day off. I was on 4 metformin til put on SGLT2. It was then reduced to 2. At first it bunged me up but I was looser with 4.
I've had blurry eyesight for a while but I'm short sighted and have flares of uveitis. I had a flare 2 years ago and suspect it may partly have been caused by undiagnosed diabetes. In the last six months I've had two cataract ops so have postponed my screening. As I have uveitis I've had lots of appointments and pictures taken. I was told by one consultant it's rare to see damage in the first ten years but of course you have readily available professional advice.
I suggest you keep a food diary adding in mood motions and exercise.
Good luck
 
So in a week I’ve gone from being a working 59 year old who walks a fair bit and works out regularly to an old geezer on diabetes and cholesterol meds who gets free age related prescriptions. Blimey I feel old right now!

Nonsense. You will feel years younger when you have eaten a healthy nutritious diet for a few months and got your HbA1c down into the 40s. Carry on with diet and exercise and you will be good to go for the next 30-40 years.

Good luck.
 
Back
Top