No support from my diabetes nurse ☹

Status
Not open for further replies.
Interesting. I will keep an eye on my vision changes, thank you. I was a bit shocked when I went for the retinal screening test of the effect of the eye drops used which caused my eyes to be very blurry for the rest of the day and I also hadn't known the effects of the outside light sensitivity. They gave me a leaflet regarding it after they had put the drops in but I don't understand why they didn't send me the leaflet when they wrote to me about my appointment which would have been more sensible as difficult to read it when you have blurred vision after receiving the drops! Although they mentioned blurriness in the appointment letter, I was expecting the drops to be similar to the ones you get from the machine at the opticians where I find the effects wear off by the time I leave. It would have helped to understand that sunglasses (even in winter) would have been helpful to have to wear afterwards - next year I will be much more prepared and take the day off work as I couldn't work until the next day when my vision cleared.
I think my letter reminds one to take sunglasses even in winter. It takes a long time for the drops to wear off and I feel like one of those googly eyed soft toys my grand daughters like so much or as if I'm on something. :rofl:
 
I think my letter reminds one to take sunglasses even in winter. It takes a long time for the drops to wear off and I feel like one of those googly eyed soft toys my grand daughters like so much or as if I'm on something. :rofl:
Yes! I was going to say I felt like I assume similar to how it must feel when you are tripping the moment I stepped outside, it was so strange and so unexpected - the letter should make that a lot clearer. They did say don't drive which I don't currently anyway but I was impatient for the bus to come that day so I could get home. At least next time I will be much more prepared.
 
It takes a long time for the drops to wear off
Sorry for being a pedant but in my experience (after about 20 retinal screenings) is that it can take a while for the drops to wear off but it does depend on how many drops they put in, how your eyes react and your definition of “a long time”. The longest fir me has been about 3 hours but that was only once and a long time ago, In recent years, the effect of the drops has warn off after less than an hour.
I know this is pedantic but I am keen to ensure those who are newly diagnosed are not scared to have this really important check done when they invited. I don’t want to play down the need for sunglasses but I also don’t want to make it seem worse than it usually is.
 
I am sure that's a good point. I wonder also if a lot of it is to do with expectation, i.e. next year I will be more prepared and perhaps the blurred vision will affect me less. It's a bit like the first time you might have an injection it might hurt quite a bit but once you have had it the next time you know what to expect and because you are prepared it just feels like a scratch.
 
Yup same here, almost zero support, so I took personal control, found out as much as I could and began my own 'owned' journey. From an HbA1c of 150 to remission! Sorted. The only real help I got was from this forum and my own inquisitive, analytical mind coupled with determination and lots of feedback from home testing covered by the yearly GP reviews (not with a gp).

Success is yours if you grasp it and fight for your health yourself!!!
 
@Leadinglights thank you for your link to Freshwell. I have been reading it today and can see that many of the recipes are very simple to make and mostly stuff I already have in my cupboards so I will give that a go. I was so surprised to see they say full fat milk and yogurt which I haven't had since I was a little girl and I have changed my shopping order this week having looked online at the sugar content in the fat free versions! I have already introduced celariac in place of potatoes. I find it a little bland but better once mixed with herbs.
 
@Leadinglights thank you for your link to Freshwell. I have been reading it today and can see that many of the recipes are very simple to make and mostly stuff I already have in my cupboards so I will give that a go. I was so surprised to see they say full fat milk and yogurt which I haven't had since I was a little girl and I have changed my shopping order this week having looked online at the sugar content in the fat free versions! I have already introduced celariac in place of potatoes. I find it a little bland but better once mixed with herbs.

I love celeriac. It has a subtle savoury flavour, but not overpowering to my taste. We often combine it with a smaller number of actual
potatoes which are bulked up (and I think much improved!) by the addition of combinations of celeriac swede, carrot, or whatever we had in. Last night we added canellini beans, which gave an extra heartiness. Yum!
 
Hi all, I'm new on here but was diagnosed with type 2 in November. My diabetes nurse put me on metformin, took all my measurements and told me I was very overweight (which of course I knew). I was very anxious and when I asked her about diet she just stated the obvious "just eat less carbs" and she didn't expand on that. I felt extremely unsupported and later when I checked the notes she had made about the consultation in my records I was very upset to see "full education on diet given" written down so I complained about it - she did not give me any education!

I came away from my first (and only so far) consultation completely confused and quite scared actually, when I expected to have received good advice all I got was a huge rebuke on being overweight and a distinct impression that it's all my own fault because of that, although it is in my family and she didn't ask me that. I also know that being overweight is not the only factor to getting type 2 diabetes. She gave me a form to get another blood test done in 3 months time. This test was done nearly a month ago at the hospital and my results passed to my GP practice which I was able to see on the NHS app was still showing a reading in the borderline high category.

I was expecting my GP practice to contact me to ask me to make another appointment with the nurse to discuss the 3 months results but I have heard nothing. I feel like they don't care and now I'm wondering what is the next step - do I just keep on taking the metformin and not get checked up again?

I bought myself a blood glucose monitor so I can do readings myself but when I told my aforementioned friend about it (because I wanted to know if the metformin was making my readings lower) she said they don't like you to do your own monitoring during the first 3 months as it's transistioning and then afterwards they will tell you to do readings as necessary but I've not heard anything after my 3 months so (apart from my friend) I have absolutely no support and no clue what happens now. Can anyone please advise if this is normal? Many thanks.
I am sorry to hear you have been treated like this. You will certainly find people here very helpful. I was pre-diabetic and was sent on a diabetes prevention course. Also my GP did sit with me to talk about it. At our surgery we have one who specialises in diabetes. I myself was surprised when I came here to find that sandwiches, muesli, toast, potatoes, pasta and rice were terrible for my diet. I gave some advice to a lady I know at my German who was pre-diabetic (she isn't now). She said she had had more advice from me than her GP. I explained to her that I have the time to research it. I think the trouble with GPs now is they are not trained in diabetes and they have so little time.

people here helped me considerably as did the books by Michael Moseley and Dr David Cavan.
 
Thank you for that Maz. Yes, I think you are right about GPs but I would have expected my diabetic nurse to be fully trained in her subject and to provide helpful and supportive advice but clearly I have too high expectations! Will see how I get on with the low carb diet to boast my PT sessions. I want to go for walks more too but it just won't stop raining - I know I shouldn't let that influence me but ...
 
Thank you for that Maz. Yes, I think you are right about GPs but I would have expected my diabetic nurse to be fully trained in her subject and to provide helpful and supportive advice but clearly I have too high expectations! Will see how I get on with the low carb diet to boast my PT sessions. I want to go for walks more too but it just won't stop raining - I know I shouldn't let that influence me but ...
I do agree about the diabetic nurse. She certainly should be trained and be more helpful. Going on about your weight is not helpful. My friend is obese and eats chocolates, biscuits and anything she feels like and she has no problems with her blood sugars. Everyone is different so criticising people about their weight is not helpful.
 
Absolutely. You could just eat plants and veg all your life and still have diabetes and not necessarily even look overweight. Life is not fair. Still, there are of course a lot worse things some people have to deal with.
 
Absolutely. You could just eat plants and veg all your life and still have diabetes and not necessarily even look overweight. Life is not fair. Still, there are of course a lot worse things some people have to deal with.
Absolutely Clairsey. What some people have to go through in life is dreadful.
 
Hi all, I'm new on here but was diagnosed with type 2 in November. My diabetes nurse put me on metformin, took all my measurements and told me I was very overweight (which of course I knew). I was very anxious and when I asked her about diet she just stated the obvious "just eat less carbs" and she didn't expand on that. I felt extremely unsupported and later when I checked the notes she had made about the consultation in my records I was very upset to see "full education on diet given" written down so I complained about it - she did not give me any education!

I came away from my first (and only so far) consultation completely confused and quite scared actually, when I expected to have received good advice all I got was a huge rebuke on being overweight and a distinct impression that it's all my own fault because of that, although it is in my family and she didn't ask me that. I also know that being overweight is not the only factor to getting type 2 diabetes. She gave me a form to get another blood test done in 3 months time. This test was done nearly a month ago at the hospital and my results passed to my GP practice which I was able to see on the NHS app was still showing a reading in the borderline high category.

I was expecting my GP practice to contact me to ask me to make another appointment with the nurse to discuss the 3 months results but I have heard nothing. I feel like they don't care and now I'm wondering what is the next step - do I just keep on taking the metformin and not get checked up again?

I bought myself a blood glucose monitor so I can do readings myself but when I told my aforementioned friend about it (because I wanted to know if the metformin was making my readings lower) she said they don't like you to do your own monitoring during the first 3 months as it's transistioning and then afterwards they will tell you to do readings as necessary but I've not heard anything after my 3 months so (apart from my friend) I have absolutely no support and no clue what happens now. Can anyone please advise if this is normal? Many thanks.
Like you I was diagnosed last November in A&E, was a bit overweight but not drastically so and one of my symptoms was some sudden weight loss. My HbA1C was 98 and the consultant there put me on Metformin. I saw the diabetic nurse a couple of times that month and have not been impressed. Like lots of people told not to test but then not sure how you learn what food affects me so I can work out what is best for me. Eventually I resorted to paying for the Libre 2 sensors which I found really helpful. Supposedly I was put on some online education programme, I learnt last week that it was a couple of emails that I received which told me nothing I didn't already know. Had an annual diabetic check at beginning of February (after only 3 months diagnosed!) but the HCA said they couldn't do the HbA1C test as it was too early, the appointment was on the 6th February and she said I had the last test done on the 8th November at the surgery. It was actually the 3rd November at the hospital and she argued with me as to when and where I had it done. Asked when they would do it then and she said at the next annual review.
I then got a an appointment with the GP, especially as I was concerned that I can't seem to stop losing weight, think I may have cut down too much on carbs. He arranged to get the blood tests done again. My HbA1C is now down to 37 and the diabetic nurse told me to stop the Metformin on Monday. Now my blood glucose levels are going high again, even with the same foods I ate last week!
 
Like you I was diagnosed last November in A&E, was a bit overweight but not drastically so and one of my symptoms was some sudden weight loss. My HbA1C was 98 and the consultant there put me on Metformin. I saw the diabetic nurse a couple of times that month and have not been impressed. Like lots of people told not to test but then not sure how you learn what food affects me so I can work out what is best for me. Eventually I resorted to paying for the Libre 2 sensors which I found really helpful. Supposedly I was put on some online education programme, I learnt last week that it was a couple of emails that I received which told me nothing I didn't already know. Had an annual diabetic check at beginning of February (after only 3 months diagnosed!) but the HCA said they couldn't do the HbA1C test as it was too early, the appointment was on the 6th February and she said I had the last test done on the 8th November at the surgery. It was actually the 3rd November at the hospital and she argued with me as to when and where I had it done. Asked when they would do it then and she said at the next annual review.
I then got a an appointment with the GP, especially as I was concerned that I can't seem to stop losing weight, think I may have cut down too much on carbs. He arranged to get the blood tests done again. My HbA1C is now down to 37 and the diabetic nurse told me to stop the Metformin on Monday. Now my blood glucose levels are going high again, even with the same foods I ate last week!
That indicates the metformin was doing it's job.
However are you still losing weight that isn't explained by reduction in carbs. Many are told to continue the metformin even though their HbA1C is in normal range of below 42mmol/mol
How low carb are you going?
Many do ignore the no need to test and do get a home testing monitor.
It is usual to do a HbA1C 3 months after diagnosis and only once blood glucose is stable are the tests once a year.
 
Thank you both for your replies. That's interesting to know as I got a text message just this morning out of the blue from the GP surgery asking me to make an appointment for my annual review when I like @SWAN2019 only got diagnosed last November so it seems to be a bi-annual thing. Due to the lack of care received to date I was expecting to have to ask them for my annual review in November.
 
That indicates the metformin was doing it's job.
However are you still losing weight that isn't explained by reduction in carbs. Many are told to continue the metformin even though their HbA1C is in normal range of below 42mmol/mol
How low carb are you going?
Many do ignore the no need to test and do get a home testing monitor.
It is usual to do a HbA1C 3 months after diagnosis and only once blood glucose is stable are the tests once a year.
I personally think they should have lowered the Metformin dose to start with to see what affect it had.

Last week was the first week I hadn't lost weight since diagnosis, see what it is this week when I weigh when at work (easiest as in same clothes, same time of day and same scales). As mentioned I had already lost weight quite quickly in the few weeks before diagnosis when the symptoms started, which is more unusual for Type 2 diabetes, so was eating carbs as normal. Part of it will be down to less carbs, although I wasn't a big cake or biscuit eater as can't eat Gluten, I do have a love of potatoes though, but not convinced such a huge loss is just down to the diet. I was about 65kg when I started to loose weight around last October, by the time I saw a diabetic nurse mid November had lost about 5kg and now lost a further 10kg.

I had actually been using the Libre 2 sensors since around Christmas which has let me eat a bit more carb as felt I wasn't actually having enough, it helped as showed me which carbs were not good for me and which seemed OK, strangely gluten free while bread didn't seem to have much impact on me, although M&S gluten free oat bread increases my blood sugars more, potatoes don't seem to have much impact either. I am probably having a bit more carb now than some diabetics, although less than those that I see stuffing cakes and biscuits all the time!, It all seem to be going OK till I came off the Metformin.

I don't understand how they could consider not giving me a test after 3 months to see how it was all going?
 
Thank you both for your replies. That's interesting to know as I got a text message just this morning out of the blue from the GP surgery asking me to make an appointment for my annual review when I like @SWAN2019 only got diagnosed last November so it seems to be a bi-annual thing. Due to the lack of care received to date I was expecting to have to ask them for my annual review in November.
Is it your birthday this/next month? Some GP practices tend to make your review of your diabetes on or around your birthday month annually.
 
Hi Barbara, yes it is next month so that must be it, very strange, I assumed it would be a year after diagnosis.
 
Status
Not open for further replies.
Back
Top