Thank you so muchI've just had a pork chop, spuds, carrots and full carb cauliflower cheese - white sauce made starting with a roux of flour and butter then the milk added very gradually and beaten constantly then a very good dollop of English mustard added (made mustard absorbs far better than adding mustard powder) and plenty of pepper then allowed to cool a little before beating in an awful lot of grated strong cheddar. It should only be able to slide out of the saucepan in dollops, NOT be poured. And lovely thick Bisto gravy. Know what else? I'm going to have some trifle in a minute.
Just carry on with your normal diet is what I'm saying - and NOOOOOOO! - long acting insulin does NOT have any effect of what we do or don't eat. All our bodies need insulin to simply exist 24/7/365, which is what the slow acting/background/basal insulin does, then if we wish to eat anything - we then need fast acting bolus insulin to deal with that. The two are not interchangeable, they are not intended to do the same things at all - it's a tricky balancing act, but we all get there over time.
You have no necessity whatever to change anything you did or ate before she was diagnosed - hence the 100% correct advice that if she wants pizza or cocopops, assuming she usually eats either thing you should let her, although most people know they are both high carb. We don't care if you are carboholics or vegans as long as you can calculate how many grams of carb are in Scarlett's portion and capable of learning how to adjust her insulin doses to accommodate the food and activity level. Nobody expects you to know how to do this to begin with - we all had to learn how to do that however old we happen to be.
While you're waiting for Waterstone's, dive into the Diabetes UK Learning Zone - you need to register with it after you click on the link at the top of every forum page in bright orange, and get educating yourselves asap.
If you thought the dieticians advice was potty - why did you not question it? She is your new mate and 100% willing to explain everything, as are everyone that works in your daughter's diabetes clinic from the receptionists to the cleaners - and if it happens to affect either one of you or Scarlett a bit too much mentally - so is the psychologist! She's under their care until she's 19 and can be gradually handed over to the adult clinic, who also will be there for all of you to begin with. They absolutely are there to hold our hands throughout (well during working hours anyway LOL) whether the Type 1 person is aged 5 like Scarlett or 70 like me!
Make full use of them - and never stop asking until whatever it is has sunk in properly. Ask, ask, ASK.
She's a rather free spirit and love to dance and roll around a lot. Shes also HATES anything attached, stuck and hanging off her so I think a pump is while off tbh. Getting her to accept the Libre sensor was hard enough and she's not had it changed yet which we're dreading Tuesday. So basically we need to become 'experts'.
What are the best but smallest pumps offered on the NHS for 5/6 yr olds does anyone know?When things settle down & gets used to libre on body she might be more open to pump idea, device is game changer & shouldn't interfere with activities like dancing, plenty sports people use them.
Good luck hope all goes well.
We got the libre sensor off this morning with some plaster remover. Cost £10 for a tiny spray bottle. Robbing gits. Aparently we can get our GP to add it to pur rescription thoughRemoval of Libre sensors gets easier after a fortnight when I've had some showers than it was with the first one ever, several years ago which I accidentally ripped straight off on Day 3 by walking into the edge of the aggressive thin wood (?) panel at the side of our motorhome bathroom door when I was utterly desperate for the loo, Sheet!!! - rendered me speechless for approx 20 minutes and that's not like me at all!
So I was dreading it - but have been pleasantly surprised, I start by running my thumbnail under the nearest edge and take it very gently then once it's halfway ish, it peels off quite easily and painlessly.
But I'm not 5 - so over to all the other parents on here for any tips and distractions they've tried.
I use one of the antiseptic wipes which comes with the Libre sensors i.e. you use one before putting the sensor on and one when you take it off Does the job for me Also, if a sensor does not work as expected i.e. if it is considerably out of line with blood tests, do ring Abbott and request a replacement, they accept this can happen and will happily replace. Also, if one falls off or gets knocked off accidentally (I've had a couple fall off, but never knocked one of, but a 5-year old's daily lifestyle is probably a lot more active than mine! )I remove my sensor in the shower - start peeling it off and then let the water get under the tape to loosen the glue. Then it comes off without any problem.
Just like when wearing sticking plasters for a while, there may be some dirty glue left. I remove this with nail varnish remover. Some people seem to be afraid of nail varnish remover being too stringent on the skin but it is no longer acetone and is much nicer to skin (when removing nail varnish, it will get on hands so it can't be too nasty). And cheaper than removal sprays even if you get them on prescription (someone needs to pay for them and the NHS can do with any extra cash it can at the moment).
That's interesting to hear. We should have kept the last Libre sensor as it was up +1-2mmols at the lower end and +2-5 at higher BG levels. The new one has been on 24hrs and appears to be accurate +/- 1mmols which we can live with. The Libre 2 scanner arrived today so can't wait to try it out in a couple of weeksI use one of the antiseptic wipes which comes with the Libre sensors i.e. you use one before putting the sensor on and one when you take it off Does the job for me Also, if a sensor does not work as expected i.e. if it is considerably out of line with blood tests, do ring Abbott and request a replacement, they accept this can happen and will happily replace. Also, if one falls off or gets knocked off accidentally (I've had a couple fall off, but never knocked one of, but a 5-year old's daily lifestyle is probably a lot more active than mine! )
Good to see all the great advice you have received - you've made two excellent moves already: getting the Ragnar Hanas book and joining here!