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Newly diagnosed type 2

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This thread is now closed. Please contact Anna DUK, Ieva DUK or everydayupsanddowns if you would like it re-opened.

Julie Blakeway

New Member
Relationship to Diabetes
Type 2
been diagnosed three weeks ago after going to the doctors for something completely different, tested me for all sorts of things and came back I’m type 2 diabetic. I’m struggling to accept and cope with the diagnosis. My parents have type 1 insulin dependant and have both got renal failure, it’s something I’m scared of too. My gp has been no use, although they referred me to a x-pert diabetes course to learn more, but I’m overwhelmed by it all tbh. I think I’ll find more out from people who actually have diabetes. Thank you for reading. Any info is appreciated, I’m currently on metformin and struggling with any appetite at all.
 
Welcome to the forum. I’m fairly new myself but in six months have got my hba1c down from 73 to 40 which is classed as non diabetic, though I still am of course! It’s quite overwhelming at first I agree and worse if you’ve got no appetite as well. I have to say that I got little help from my GP and diabetic nurse, and the course they promised never materialised, but this forum has been a god send and I couldn’t have done it without it. Others with more experience will be along with clever links and so on but I suggest you ask away and all your questions will be answered by someone! Keep positive as it can be done with a little hard work and perseverance.
 
Hi Julie, welcome to the forum.
It does come as a shock when your first diagnosed. With the right info Diabetes can be managed well, you come to the right place for the info and lots of cyber support too.

Gaining control of this condition lessens the risks of complications, so it’s good to hear that your GP checked you for diabetes amongst the other tests.

You say both your parents have T1 ? as T1 is rare I’m wondering if you mean insulin dependant T2 like me, apologies if I am wrong.

How did you come to be diagnosed.

Metformin was originally developed to aid weight loss, I believe to suppress the appetite but not too sure about that . I expect anxiety may be partly to blame too for you not wanting to eat as well as perhaps being unsure of what’s good and not so good for us T2s.
 
Hi @Julie Blakeway and welcome to this friendly forum. Sadly most GPs are little or no use when it comes to advice on diabetes, but you are in the right place now.

I was diagnosed just over a year ago and I went through an initial phase of grieving for the way of life I had lost. But then I found this forum and realised diabetes is not all doom and gloom and I started to enjoy my new journey. I was put on metformin too but thankfully I have brought my BG levels down and no longer need to take it. I follow the LCHF (low carb high fat) WOE (way of eating) as do many on here. It has really worked well for me not only for my BG levels but my cholesterol has improved dramatically too. Have a look in the food and carbs section for lots of tips. If you have any questions just ask. There are lots of very knowledgeable people on here who speak from experience.

Good Luck!
 
been diagnosed three weeks ago after going to the doctors for something completely different, tested me for all sorts of things and came back I’m type 2 diabetic. I’m struggling to accept and cope with the diagnosis. My parents have type 1 insulin dependant and have both got renal failure, it’s something I’m scared of too. My gp has been no use, although they referred me to a x-pert diabetes course to learn more, but I’m overwhelmed by it all tbh. I think I’ll find more out from people who actually have diabetes. Thank you for reading. Any info is appreciated, I’m currently on metformin and struggling with any appetite at all.
Hi Julie, welcome to the forum 🙂 I understand that you are worried, particularly since it was completely unexpected, and in light of your parents' experiences, but thankfully there are are some considerations that will hopefully make you feel much more optimistic. I'm guessing that your parents have had their diagnoses for quite a long time? The good news is that there is much more knowledge about, and much better treatments available for diabetes, than there used to be - and this is improving every day. Although diabetes is a serious condition, it can be managed very well with the right information and application, and often leads people to become much happier and helathier than they have been for some time prior to diagnosis - we have living proof of this among our many members who have found their way through 🙂

The first thing to bear in mind is to not become overwhelmed by the huge amount of information available. Getting good blood sugar control is a gradual learning process - there are no 'quick fixes', you need to find what works well for you, with guidance, and through your own personal experiences.

I would recommend starting by reading Maggie Davey's letter, which will give you a very good overview of diabetes and how to approach managing it well 🙂 I'd also recommend getting hold of a copy of Type 2 Diabetes: The First Year by Gretchen Becker, which is highly recommended by many of our members, and will guide you through these early months. Remember, this is a marathon, not a sprint, so don't feel you need to 'solve' everything overnight. Drastic changes may be unsustainable, and you need to develop a way of life and making food choices that you can stick with long-term. Your tastes will probably change over time as you become more accustomed to the choices you can safely make, and you are allowed occasional 'treats', so don't feel you will be condemned to a highly-restrictive and unappetising diet! There are many alternatives to the traditional carbs we have become accustomed to eating, that will be kinder to your blood sugar levels and just as - if not more - tasty and appealing 🙂 Have a browse of the Food and Recipes section for some of the great ideas some of our members have posted about 🙂

The key to managing your diabetes is being aware of the amount and type of carbohydrates you consume. So, things like bread, rice, pasta, potatoes, as well as sweet, sugary things, all need careful consideration. I would suggest starting a food diary and keeping it for a couple of weeks so you can make an accurate assessment of your current carb consumption - write down the amount of carbs, in grams, in everything you eat and drink so you can determine your average daily consumption (you can use the information on packaging or a book like the Collins Gem Carb Counter). You will then be able to use this diary to look for areas where you might be able to reduce the carb content of your meals, perhaps by reducing portions or by replacing e.g. less potato and more green veg.

Probably the most useful tool you can use to determine how well you tolerate your food choices is a home blood glucose meter -your parents no doubt already use these to assess how much insulin they need to give. If you don't have one, do ask your nurse or GP for one, and a prescription for strips. If they refuse (usually saying you don't need to test, but actually on short-term cost-saving grounds :() then it is really worth getting your own and using it whilst you work out how different foods affect you. The cheapest option we have come across is the SD Codefree Meter which has test strips at around £8 for 50. For a great explanation how to use testing to work out your tolerances for different food choices, read the excellent Test,Review, Adjust by Alan S 🙂 Tolerances gan vary greatly from person to person, so you need to know how you are personally affected so you can tailor your diet to suit you as an individual, and also allows you to keep a diet that is as flexible and appealing as possible, without needing to go to extremes.

Something to bear in mind, given that both your parents are Type 1, is that you may actually have a slow-onset Type 1 yourself, so do keep a close eye on how you are feeling and if things don't seem to be improving at all, or even getting worse, do go back to the doctors and ask them about the possibility, if it hasn't already been considered. Much of the information I have given here will still apply, but there are also some different considerations if you use insulin.

I've probably just overwhelmed you myself with all this! 😱 😉 But do please take your time to read through it all, and let us know if you have ANY questions - we will be more than happy to help 🙂 I look forward to hearing more from you 🙂
 
Hi Julie, welcome to the forum.
It does come as a shock when your first diagnosed. With the right info Diabetes can be managed well, you come to the right place for the info and lots of cyber support too.

Gaining control of this condition lessens the risks of complications, so it’s good to hear that your GP checked you for diabetes amongst the other tests.

You say both your parents have T1 ? as T1 is rare I’m wondering if you mean insulin dependant T2 like me, apologies if I am wrong.

How did you come to be diagnosed.

Metformin was originally developed to aid weight loss, I believe to suppress the appetite but not too sure about that . I expect anxiety may be partly to blame too for you not wanting to eat as well as perhaps being unsure of what’s good and not so good for us T2s.


Yes my parents are type 1 diabetics, quite rare I know but they are also both a set of twins which is quite strange too. They are both on insulin and metformin, my mother is catheterisedand my father they are at a loss what to do so he has to visit his gp daily to keep a check on him. I went to the doctor as I have a heart condition and I thought it was becoming more problematic with dizziness and palpitations, he said he wanted to do blood work first to rule out anything else, then I get a call three days later we need to see you because your diabetic. I had high blood sugars last year while being looked after for another ailment but with diet it became ok, I lost 2 1/2 stone and felt ok until this year. I’m continuing to lose weight, I’ve lost 9kgs since being diagnosed because I just have no appetite. I’ve tried porridge which is slow release carb, my blood sugars after 2 hours were 14.8. Today I’ve tried simple toast and my blood glucose was 15.9 I’m having to force myself to eat food as I know how important it is to eat a stable diet but it leaves me feeling rather sick. I know it’s all trial and error and I’m hoping that being on this x-pert diabetes course will teach me some ways to reduce my blood glucose levels
 
If it's a packet mix porridge, it's probably not slow carbs. For toast, Burgen bread is normally ok.

I've swapped most carbs out of breakfast. So usually I have a low carb yogurt plus walnuts. Egg & bacon works well too.
 
You are probably thinking on type one lines - dense starch foods such as porridge and toast usually spike a type two, and there is no need to eat a stable diet - as long as you don't get unstable readings you don't need to worry about eating at all - your liver will regain some control as your insulin levels go down and avoiding high carb foods should help enormously.
As for slow release carbs - more hope over experience for anyone with a normal digestive system. I don't eat any cereals, potatoes or starchy veges, only low carb fruits - and get normal readings. Since the LIdl protein rolls were stopped I have not eaten any breadlike things - there is a protein bread available from Polish Delicatessens but it wasn't breadlike.
 
Eggs ....or omelette with cheese or ham or both...gr8 breks no spike. Greek yog and raspberries or some other berries...fab any time. Make your own meals so you don't get hidden carbs and be very carb conscious. Oily fish at least once a week. Cut out potatoes and bread wherever you can. Those are my top tips....I assure you, your readings will come down dramatically in no time at all.
 
I’ve tried porridge which is slow release carb, my blood sugars after 2 hours were 14.8. Today I’ve tried simple toast and my blood glucose was 15.9
Hi Julie, what were your levels prior to eating these breakfasts? It's important to know what actual rise in levels you experienced was attributable to the meal - if you were, for example, 11.5 before eating then the rise to 14/15 is not huge - it's just (!!!) a case of getting your starting point down so you begin from better levels 🙂

Do you know much about your parents' diagnoses? Is yours similar in any way e.g. age at diagnosis, symptoms etc.?
 
Sorry - I'm wondering that, too.

Julie - what actual diabetes tests did the GP do - 'just' an HbA1c? or were GAD65 or C-peptide tests done as well?
 
welcome to the forum, it takes a while to get your head around the diagnosis.
 
Sorry - I'm wondering that, too.

Julie - what actual diabetes tests did the GP do - 'just' an HbA1c? or were GAD65 or C-peptide tests done as well?
Just the HbA1c was done, my bg is rising by the day 18.9 today I can’t eat anything that doesn’t spike my bg. If I starveand just drink water I can get it down To 14.8 but I feel so ill it’s unreal. Headaches, shakiness, dizziness, weak. I’ve never suffered with headaches til I was Introduced to metformin
 
Just the HbA1c was done, my bg is rising by the day 18.9 today I can’t eat anything that doesn’t spike my bg. If I starveand just drink water I can get it down To 14.8 but I feel so ill it’s unreal. Headaches, shakiness, dizziness, weak. I’ve never suffered with headaches til I was Introduced to metformin
Julie perhaps you need to give your surgery a call now...ask them for some advice...those levels are quite high and they should give you an appointment or at least speak to you on the phone...good luck.
 
Julie - this means that your GP hasn't actually proved whether you are in fact Type 2, he's just assumed that ! Get yourself back there asap please.
 
Just the HbA1c was done, my bg is rising by the day 18.9 today I can’t eat anything that doesn’t spike my bg. If I starveand just drink water I can get it down To 14.8 but I feel so ill it’s unreal. Headaches, shakiness, dizziness, weak. I’ve never suffered with headaches til I was Introduced to metformin
This is sounding very much like a misdiagnosis Julie :( Are you able to test for ketones? Starving yourself and still getting such high levels and feeling so ill are not a normal state of affairs when you have Type 2 diabetes, even when recently diagnosed. I suspect the headaches aren't related to the metformin, but your overall poor health and sustained high levels. Please go back to your GP and insist on an urgent reappraisal.
 
welcome to the Forum. You will get a lot of help and info here. Well done Flakie with your readings. you must be thrilled.
 
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