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Newly diagnosed type 1

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This thread is now closed. Please contact Anna DUK, Ieva DUK or everydayupsanddowns if you would like it re-opened.
Kirstylou911 said:
Yeah had all of them but my gps was still saying vertigo got sent home from work ill 2 days later my dad checked on me and found me was in hospital nearly 4 weeks DKA, sepsis, low cells and nerve damage in leg/foot can move my leg now its just my foot/ankle under neurology so hopefully they can fix it haha
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Type 1 is relatively rare so GP's may not see many or any cases. That's no excuse and really poor if you were going to them for nearly 2 months with those symptoms. Luckily when I went to my GP with DKA he just did a urine dipstick test and sent me straight to hospital. Hopefully now with your diagnosis you can move on from that and manage it. 🙂
 
Kirstylou911 said:
Yeah had all of them but my gps was still saying vertigo got sent home from work ill 2 days later my dad checked on me and found me was in hospital nearly 4 weeks DKA, sepsis, low cells and nerve damage in leg/foot can move my leg now its just my foot/ankle under neurology so hopefully they can fix it haha
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Good grief, Kirstylou! 🙂 Welcome to the forum - I’m so glad you found us.😛
 
Matt Cycle said:
Type 1 is relatively rare so GP's may not see many or any cases. That's no excuse and really poor if you were going to them for nearly 2 months with those symptoms. Luckily when I went to my GP with DKA he just did a urine dipstick test and sent me straight to hospital. Hopefully now with your diagnosis you can move on from that and manage it. 🙂
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Yeah was going at least once a week even went to A&E and yeah it is a massive leaning curve but just take 1 day at a time and hope for the best
 
Hi Kirsty and welcome. You have certainly been through it, and your situation is another example of GPs not looking for T1 in Adults!! You may find that some of the problems that you are having with nerve damage will correct themselves, but if not I have found that it is amazing how your brain adapts to the nerve messages that you do have in tact.

I was diagnosed as an adult, and found the book T1 in Children adolescents and young adults is brilliant, in spite of the age reference. the book is clearly set ou, gives explanations for the instructions we are given in how to manage our diabetes. And as you have already found there is loads of support on here. I have learnt most of what I know from people on here.

As Northerner said it will help you to get switched to Multiple Daily Injection (MDI) where you are then able to deliver insulin for the glucose that your liver is making (background or basal) and a different quick acting insulin for the glucose that comes from your food (bolus). It might sound a bit daunting doing more injections but it gives you so much more flexibility, and you can learn to match you insulin to what you want to eat.

Keep in touch and keep asking questions. There is plenty of help available and no question is considered silly. Just ask.
 
Kirstylou911 said:
Thank you and no idea Dr's at hospital said my pancreas is dead thats how I ended up so bad... Going to ask my DSN about all this at my next app see what she says as she's just changed me onto the m3 and she said she might have to up the dose at next app depending on my blood sugars, all they've all said is they are trying to get in under control first don't think much has been explained to me
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It takes time for your body to recover and levels to settle. It sounds as if you are in good hands at the hospital with the specialist team and they are working with you to gradually settle things down. I look back on the targets that I was set at the beginning and realise that it took me quite a while to get down to ‘normal’ levels (or at least the new normal).
Like learning to drive there seems to be a lot to do all at the same time in the beginning, but it then becomes automatic. Just keep asking your team and people on here any questions that you have.
 
Benny G said:
Hello Kirsty I was diagnosed about the same age you are now with a thrombosis in my leg and my immune system shot to pieces. I had 6 episodes of blood poisoning over the next 2 years. I was started on a similar mix insulin like you. With only 2 injections a day it is a bit easier to remember to keep to schedule. Mix insulin is like training wheels on a bike, as you progress you will want greater freedom.
It's early days for you so spend as much time as you can educating yourself about nutrition and type 1 diabetes. Don't worry, life goes on.
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Thanks and it's still a bit of a shock just trying to get a bit of normality now trying to get out more too I've got good friends trying to learn about it too but still feel a bit alone just taking 1 day at a time
 
Hello Kirstylou and welcome 🙂

You've already been given lots of good advice so I'll just add another vote in favour of MDI - it's so much more flexible to inject when you want to eat rather than having to eat because you've injected.

Do keep asking if you have any questions, someone here is sure to be able to help.
 
Hi and welcome 🙂
Sorry to hear you were messed about so badly at the beginning, I hope you are recovering OK x
 
Good morning Kirsty
Glad that you are taking things step by step.
Let us know how you get on with your next appointment and if you have any questions at all, just ask.
 
Hey everyone,

Had app with my DSN other day she's upped my dose of insulin again but has said it looks like I'm. Getting my bg levels under control they are still a bit up and down but not as bad as they first was so good news I'm getting there with it
 
Kirstylou911 said:
Hey everyone,

Had app with my DSN other day she's upped my dose of insulin again but has said it looks like I'm. Getting my bg levels under control they are still a bit up and down but not as bad as they first was so good news I'm getting there with it
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Hi Kirsty

Good to hear things are beginning to settle. Everyone’s BG goes up and down through the day, with food we eat, exercise, sitting around (I have to take account of the Wimbledon factor each year in adjusting my Insulin). Once things settle you will be able to manage the lumps and dips in your levels more effectively.

Has your DSN discussed Multiple Daily Injections (MDI) yet. That will certainly make your life a lot easier and far more flexible. Then you can start to adjust your own doses of insulin to match what you want to eat and want to do each day.
 
SB2015 said:
Hi Kirsty

Good to hear things are beginning to settle. Everyone’s BG goes up and down through the day, with food we eat, exercise, sitting around (I have to take account of the Wimbledon factor each year in adjusting my Insulin). Once things settle you will be able to manage the lumps and dips in your levels more effectively.

Has your DSN discussed Multiple Daily Injections (MDI) yet. That will certainly make your life a lot easier and far more flexible. Then you can start to adjust your own doses of insulin to match what you want to eat and want to do each day.
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Hey not discussed MDI yet with being newly diagnosed just trying to get it leveled out first next app won't be till next month because DSN on holiday now so see how it goes and I might mention it
 
Good to hear you have another appointment soon.
You certainly seem to have a good team around you.
 
Hi kirstylou

Welcome to the forums. Yeah getting told the dreaded news is a lot to take in but take your time to absorb it and don't forget that your diabetes team are there to help and have probably seen everything before now. Also the forums are a wealth of information and don't be scared to ask anything at all.

Hope things settle down soon.

Mike
 
At the moment i dread to inject my insulin it stings really bad... Anyone else had this problem?
 
Kirstylou911 said:
At the moment i dread to inject my insulin it stings really bad... Anyone else had this problem?
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At first yeah but it does get easier and stings less often. My advise on this is to not use your insulin straight from the fridge give it a little time to warm up as this can lessen stinging.

Hope this helps a little

Mike
 
Status
This thread is now closed. Please contact Anna DUK, Ieva DUK or everydayupsanddowns if you would like it re-opened.
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