• Please Remember: Members are only permitted to share their own experiences. Members are not qualified to give medical advice. Additionally, everyone manages their health differently. Please be respectful of other people's opinions about their own diabetes management.
  • We seem to be having technical difficulties with new user accounts. If you are trying to register please check your Spam or Junk folder for your confirmation email. If you still haven't received a confirmation email, please reach out to our support inbox: support.forum@diabetes.org.uk

Newly diagnosed toddler with type 1

Status
This thread is now closed. Please contact Anna DUK, Ieva DUK or everydayupsanddowns if you would like it re-opened.

LeanneAmmon

New Member
Relationship to Diabetes
Parent of person with diabetes
Hi, my 2 year old daughter has recently been diagnosed with type 1 diabetes. Still in shock but learning the ropes slowly. I'd love to hear from anyone else out there in a similar situation.
 
Aaah, bless. Little boy or girl? Have you/they been given a Rufus bear? I'm not in your boat - I have toddling great grandkids instead.

Have you been recommended the Ragnar Hanas book - Type 1 diabetes in children, adolescents and young adults - if not it is excellent and a copy used to live on my own diabetes clinic nurse's bookshelf! It's excellent no matter if you're aged 50+ when diagnosed, because it's written for un-medically trained folk to read and understand - not in 'medicalese'.

How did little one come to be diagnosed ?
 
Hi, yes we have the bear and the book! We took jess to a and e after gp diagnosed throat infection but we weren't convinced. Turned out to be type 1 and she was in dka. A complete shock and still in shock tbh! We are using injections but considering a pump soon. Great grandkids?! How old are they?
 
Hi, what a huge shock for you! Well done for going to A&E. There are some great parents on the site who have loads of experience. My daughter was diagnosed on 1st May, but is at the other end of childhood at 16, so different issues!
 
Hi & welcome to the forum. It definitely is a shock when there is a diagnosis of T1D. There are lots of resources out there and I know there are parents on this forum too. If you have any questions feel free to ask away.
 
Hi, what a huge shock for you! Well done for going to A&E. There are some great parents on the site who have loads of experience. My daughter was diagnosed on 1st May, but is at the other end of childhood at 16, so different issues!
Hi, how was your daughter diagnosed? Must be a huge shock for her, and at that age must take some coming to terms with. Bless her. Injections or pump?
 
Hi & welcome to the forum. It definitely is a shock when there is a diagnosis of T1D. There are lots of resources out there and I know there are parents on this forum too. If you have any questions feel free to ask away.
Hi, thanks. We are considering a pump so if anyone has any experience using one that would be good. Also, because she is only 2 I have a real concern that all this distress will have a lasting emotional impact. That's what keeps me awake most at night if I'm honest! Any experience with this or older children having come out the other side of diagnosis still smiling would be great to hear about!
 
Hi, how was your daughter diagnosed? Must be a huge shock for her, and at that age must take some coming to terms with. Bless her. Injections or pump?
Hi, I also have type 1, so we know the signs to look out for. Alice noticed she was drinking loads and still feeling really thirsty so she asked me to do a finger prick test. My meter just said High, so we went to A&E. Injections at the moment, but am hoping she will choose a pump when she is ready. I have an Omnipod pump myself.
 
Hi, thanks. We are considering a pump so if anyone has any experience using one that would be good. Also, because she is only 2 I have a real concern that all this distress will have a lasting emotional impact. That's what keeps me awake most at night if I'm honest! Any experience with this or older children having come out the other side of diagnosis still smiling would be great to hear about!
Pumps are fantastic, I love my pump and could never go back to injections. I feel like I have more control over the amounts of insulin I am using and my diabetes management is much better, what would you like to know about insulin pumps?
 
Ah I’m so sorry to hear that Jess has been diagnosed with T1 @LeanneAmmon

We have lots of knowledgeable and friendly folks on the forum including parents of children with diabetes at all different ages @LucyDUK @Bronco Billy @Sally71 and many more besides 🙂

Kids are amazingly resilient and adaptable. And while no one would wish diabetes on anyone, part of me wonders whether growing up with diabetes teaches empathy, self awareness, determination, problem solving, communication, mental maths stickability and all many of other worthwhile qualities.

I know 2 Mums (not on the forum) whose lovely girls were diagnosed very young and can‘t speak highly enough of pump therapy when trying to manage T1 in small children.

One of them wrote this a while back, which might be helpful:
 
We have 5 GGKs - eldest is 9, youngest so far is 7 months. But only 3 of the 7 GKs has produced so far, cos one of them is still 12 months younger than her 2nd cousin, ie the eldest GGK.
 
Hi, my daughter was 8 when she was diagnosed so quite a bit older. Our experience with the paediatrics team has been really good and they will help guide you through both a pump and a Libre. Funding for both is relatively easy to get for younger kids. It’s good to be able to do injections so you know what you’re doing but the flexibility of a pump and fewer injections tends to be easier for the littler ones.

Our team were good at making the psychologist available to all the family so we could get support through the early weeks.
 
@LeanneAmmon
Hi and welcome

I’m sorry to hear about the diagnosis. It does very much come as a shock My two were diagnosed when they were six and five. I promise it won’t have a lasting impact on your daughter. If you’re looking for positives; one of the benefits of being diagnosed so young is that she won’t know a different life. This will actually help her adjust. It can sometimes be harder for the parents.

My daughter used to swim for the local club and my son does Taekwono-do. Diabetes doesn’t hold them back, we just need to plan a bit more before we do things. They both have the Medtronic pump. It works for them as they love not having to inject every time they eat. The downside is having it attached the whole time, but they have got used to that.

Don’t be afraid to ask any questions, there’s no such thing as a daft question.

Oh, my daughter is 17 now, and she still has Rufus in bed with her
 
Hello, my daughter was 6 at diagnosis and went onto a pump only 8 days later so we don’t really know anything else! She has just turned 14 and is pretty clued up on her condition now, and gets very frustrated when other people spout the “you can't eat sweets” rubbish and don’t believe her when she tries to explain that that isn’t true. She still likes me to do some things for her, but just gets on with it when I’m not there, and has been diabetic longer than not now so I don't know if she remembers much from before.

Pumps are great, they are harder work than injections, I seem to spend half my life fiddling with the settings on my daughter's, trying to get her blood sugars as close to perfect as I can. But the extra flexibility they provide is more than worth it, especially for little children who need such tiny doses! I think they get used to wearing them pretty quickly, we just told my daughter that it was her new best friend and she seemed to accept it. At primary school she didn't like talking about her diabetes, or if someone asked her what her pump was. But since transferring to secondary school she seems to have gained confidence, she says she still doesn’t like talking about it, but she seems to do so more easily now and laughs about some of the things people have said about it. She's got some amazing friends now which probably helps (she didn’t go to the same secondary school as her primary school friends).

Good luck to you getting used to it all, it's tough at first but does get easier, honest!
 
Welcome to the forum @LeanneAmmon. Glad that you have found us.

You have had lots of advice above from other parents.
If you have any other questions just fire away.
Always happy to help.
 
Welcome to the forum @LeanneAmmon, plenty of parents on here which you have already encountered.
My daughter in law was diagnosed in her early teens and was given a pump, she is now 36 and has two beautiful children,
(my beautiful Grandchildren). Leads a perfectly normal life works hard sometimes 7 days a week, (hairdressing).

Stay close to the forum and ask any question you like, someone is usually here 24/7. Thankyou for joining our virtual family
we look forward to hearing from you again, you and your family stay safe.
 
HI @LeanneAmmon welcome to the forum, though sorry you’ve had to join. My son was diagnosed just after his second birthday and is now nearly 17. He was also in DKA at the time but has no recollection of any of it and doesn’t remember not having diabetes, so the actual initial diagnosis and early days of things certainly hasn’t had any lasting emotional impact - living with it longer term is sometimes a bit overwhelming for him, but his hospital have lots of support and most paediatric teams are really good at helping children of any age emotionally, if they need it, which not all do of course.
I cant comment on using a pump with a toddler as my son didn’t go on to a pump until he was 8, but he would never go back now. Pumps were more difficult to get 15 odd years ago than they are now and I know they are more commonly used in very small children now and allow for the tiny dosing that toddlers may require.
 
Hey I feel like I’m in your shoes my toddler has just been diagnosed too sorry that’s not helpful but reading your post has prompted me to join. Didn’t know 2 year olds could get diabetes until 3 weeks ago yesterday.
 
That's exactly why Ragnar Hanas wrote the book about it - for parents of the title of it - Type 1 Diabetes in Babies etc.
 
Status
This thread is now closed. Please contact Anna DUK, Ieva DUK or everydayupsanddowns if you would like it re-opened.
Back
Top